Literature DB >> 24832035

The impact of multiple sclerosis on family members: a review of the literature.

Michele Messmer Uccelli1.   

Abstract

Multiple sclerosis (MS) is one of the most common neurological diseases in young adults and involves inflammatory demyelination of the CNS. MS typically manifests between 20 and 40 years of age, and can lead to significant disability in some cases. The disease course is unpredictable. MS has a significant impact on families, influencing their wellbeing and quality of life, often creating psychological stress in each family member as well as on family functioning in general. Common themes include the impact of the emotional state of the person with MS on family members, the role of the healthy parent on how children cope, the effect of a lack of information about MS, communication within the family and with healthcare professionals, and the importance of assessing and treating families as a dynamic unit in order to assure comprehensive intervention plans. The current literature review is based on 30 full research articles meeting inclusion criteria related to partners/couples, family caregivers, children with a parent with MS and parents of young children with MS.

Entities:  

Mesh:

Year:  2014        PMID: 24832035     DOI: 10.2217/nmt.14.6

Source DB:  PubMed          Journal:  Neurodegener Dis Manag        ISSN: 1758-2024


  12 in total

1.  Educational achievements of children of parents with multiple sclerosis: A nationwide register-based cohort study.

Authors:  J Y Moberg; M Magyari; N Koch-Henriksen; L C Thygesen; B Laursen; P Soelberg Sørensen
Journal:  J Neurol       Date:  2016-08-19       Impact factor: 4.849

2.  Examining the Relationship Between Family Caregivers' Emotional States and Ability to Empathize with Patients with Multiple Sclerosis: A Pilot Study.

Authors:  Sepideh Pooyania; Michelle Lobchuk; Wanda Chernomas; Ruth Ann Marrie
Journal:  Int J MS Care       Date:  2016 May-Jun

Review 3.  An update on the use of natalizumab in the treatment of multiple sclerosis: appropriate patient selection and special considerations.

Authors:  Barbara Kornek
Journal:  Patient Prefer Adherence       Date:  2015-05-19       Impact factor: 2.711

4.  The impact of quality of life on treatment preferences in multiple sclerosis patients.

Authors:  Gitte Lee Mortensen; Peter V Rasmussen
Journal:  Patient Prefer Adherence       Date:  2017-10-19       Impact factor: 2.711

Review 5.  The Relational Impact of Multiple Sclerosis: An Integrative Review of the Literature Using a Cognitive Analytic Framework.

Authors:  Joanna Blundell Jones; Sue Walsh; Claire Isaac
Journal:  J Clin Psychol Med Settings       Date:  2017-12

6.  Dealing with Chronic Illness: Experiences of Iranian Families of Persons with Multiple Sclerosis-A Qualitative Study.

Authors:  Hossein Ebrahimi; Hadi Hasankhani; Hossein Namdar; Esmail Khodadadi; Marjaneh Fooladi
Journal:  Mult Scler Int       Date:  2017-09-07

Review 7.  Caregiver Burden in Multiple Sclerosis: Recent Trends and Future Directions.

Authors:  Rebecca Maguire; Phil Maguire
Journal:  Curr Neurol Neurosci Rep       Date:  2020-05-22       Impact factor: 5.081

8.  Fatigue and Mood States in Nursing Home and Nonambulatory Home-Based Patients with Multiple Sclerosis.

Authors:  Zilfah Younus; Caila B Vaughn; Shaik Ahmed Sanai; Katelyn S Kavak; Sahil Gupta; Muhammad Nadeem; Barbara E Teter; Katia Noyes; Robert Zivadinov; Keith Edwards; Patricia K Coyle; Andrew Goodman; Bianca Weinstock-Guttman
Journal:  Int J MS Care       Date:  2017 Nov-Dec

9.  Family Functioning and Multiple Sclerosis: Study Protocol of a Multicentric Italian Project.

Authors:  Marialaura Di Tella; Virginia Perutelli; Giuseppina Miele; Luigi Lavorgna; Simona Bonavita; Stefania Federica De Mercanti; Lidia Mislin Streito; Marinella Clerico; Lorys Castelli
Journal:  Front Psychol       Date:  2021-06-09

10.  Measuring burden in caregivers of people with multiple sclerosis: psychometric properties of the CSI questionnaire.

Authors:  Jose M García-Domínguez; María L Martínez-Ginés; Olga Carmona; Ana B Caminero; Daniel Prefasi; Jorge Maurino; Javier Ballesteros
Journal:  Patient Prefer Adherence       Date:  2019-01-09       Impact factor: 2.711

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