Literature DB >> 24830499

TMI! ethical challenges in managing and using large patient data sets.

Eric T Juengst1.   

Abstract

The advent and expansion of electronic medical record systems and open-access databases are creating a "data tsunami." As this wave descends, we must anticipate and address several ethical and social risks: threats to patient privacy, threats to the reputations of various social groups, and threats to public trust in biomedical research.

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Year:  2014        PMID: 24830499     DOI: 10.18043/ncm.75.3.214

Source DB:  PubMed          Journal:  N C Med J        ISSN: 0029-2559


  3 in total

1.  Biomedical Data Sharing and Reuse: Attitudes and Practices of Clinical and Scientific Research Staff.

Authors:  Lisa M Federer; Ya-Ling Lu; Douglas J Joubert; Judith Welsh; Barbara Brandys
Journal:  PLoS One       Date:  2015-06-24       Impact factor: 3.240

2.  Rethinking the ethical approach to health information management through narration: pertinence of Ricœur's 'little ethics'.

Authors:  Corine Mouton Dorey
Journal:  Med Health Care Philos       Date:  2016-12

3.  Patient data and patient rights: Swiss healthcare stakeholders' ethical awareness regarding large patient data sets - a qualitative study.

Authors:  Corine Mouton Dorey; Holger Baumann; Nikola Biller-Andorno
Journal:  BMC Med Ethics       Date:  2018-03-07       Impact factor: 2.652

  3 in total

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