Literature DB >> 24820336

The concept of a toolbox of outcome measures for children with cerebral palsy: why, what, and how to use?

F Virginia Wright1, Annette Majnemer2.   

Abstract

Accurate and well-targeted measurement of a child's abilities and participation in daily activities pre- and post-intervention is essential to understanding the effects of therapies provided by pediatric practitioners. There is growing interest in identification of outcome core sets for specified client groups. This article elaborates on the concepts to consider when selecting and interpreting measures from an outcomes toolbox for children with cerebral palsy. Principles discussed include use of self-report measures to open a dialogue with the child/parent; a holistic assessment approach to identify a child's challenges, strengths, and contextual factors that can influence functioning; links between measurement and heightened engagement of the child/family in the rehabilitation process and goals; and the need to plan the evaluation and dialogue aspects of the assessment process. If clinicians across the international rehabilitation community draw from the same toolbox, the end result could be a cohesive approach and common language to outcome measurement.
© The Author(s) 2014.

Entities:  

Keywords:  cerebral palsy; core sets of measures; family-centered care; outcome measures; pediatrics

Mesh:

Year:  2014        PMID: 24820336     DOI: 10.1177/0883073814533423

Source DB:  PubMed          Journal:  J Child Neurol        ISSN: 0883-0738            Impact factor:   1.987


  5 in total

1.  Computerized Adaptive Tests Detect Change Following Orthopaedic Surgery in Youth with Cerebral Palsy.

Authors:  M J Mulcahey; Mary D Slavin; Pengsheng Ni; Lawrence C Vogel; Scott H Kozin; Stephen M Haley; Alan M Jette
Journal:  J Bone Joint Surg Am       Date:  2015-09-16       Impact factor: 5.284

2.  Outcomes of importance to children and young adults with cerebral palsy, their parents and health professionals following lower limb orthopaedic surgery: A qualitative study to inform a Core Outcome Set.

Authors:  Hajar Almoajil; Francine Toye; Helen Dawes; Jo Pierce; Andrew Meaney; Aziz Baklouti; Lara Poverini; Sally Hopewell; Tim Theologis
Journal:  Health Expect       Date:  2022-01-27       Impact factor: 3.318

3.  Orthopedic surgery in cerebral palsy: Instructional course lecture.

Authors:  Deepak Sharan
Journal:  Indian J Orthop       Date:  2017 May-Jun       Impact factor: 1.251

4.  Development of a core outcome set for lower limb orthopaedic surgical interventions in ambulant children and young people with cerebral palsy: a study protocol.

Authors:  Hajar Almoajil; Helen Dawes; Sally Hopewell; Francine Toye; Crispin Jenkinson; Tim Theologis
Journal:  BMJ Open       Date:  2020-03-04       Impact factor: 2.692

5.  Functional Gains in Children With Spastic Hemiplegia Following a Tendon Achilles Lengthening Using Computerized Adaptive Testing-A Pilot Study.

Authors:  Eli Saleh; Noémi Dahan-Oliel; Kathleen Montpetit; Thierry Benaroch; Rita Yap; Nadia Barakat; M J Mulcahey
Journal:  Child Neurol Open       Date:  2018-11-14
  5 in total

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