Literature DB >> 24796679

Case studies of the perceptions of women with high risk congenital heart disease successfully completing a pregnancy.

Kylie Ngu1, Margaret Hay2, Samuel Menahem3.   

Abstract

PURPOSE: Women even with moderate to severe congenital heart disease (CHD) seek motherhood despite posing significant health risks to themselves and their infant. This study explored their motivations and perceptions and compared them to those of women with low risk CHD who conceived. PROCEDURES: Twenty women over 18 years with CHD who had a successful pregnancy were recruited, half of whom were identified as having a high risk cardiac abnormality. They completed a questionnaire and a semi-structured interview following which a thematic analysis was employed. Their medical records and clinical status were also reviewed and their current cardiac status graded by their attending cardiologist.
FINDINGS: Women with high risk (moderate to severe) CHD (n=10) appeared to have similar motivations for conceiving as women with low-risk (mild) CHD (n=10). Their decision to conceive seemed based on their own and at times unrealistic perceptions of the consequences of their CHD.
CONCLUSIONS: Women with mild or more severe CHD had similar motivations to conceive tending to down play the seriousness of their CHD. Their drive for motherhood appeared to be stronger than the drive for self care. It behoves clinicians, both obstetricians and cardiologists caring for women with high risk CHD to be knowledgeable of the effects of the CHD on the pregnancy and the impact of the pregnancy on the cardiac status.
Copyright © 2014 Australian and New Zealand Society of Cardiac and Thoracic Surgeons (ANZSCTS) and the Cardiac Society of Australia and New Zealand (CSANZ). Published by Elsevier B.V. All rights reserved.

Entities:  

Keywords:  Congenital heart disease; Motivations; Perceptions; Pregnancy; Risks

Mesh:

Year:  2014        PMID: 24796679     DOI: 10.1016/j.hlc.2014.03.019

Source DB:  PubMed          Journal:  Heart Lung Circ        ISSN: 1443-9506            Impact factor:   2.975


  7 in total

1.  Sexual and Reproductive Health Care Experiences and Perceptions of Women with Congenital Heart Disease.

Authors:  Natalie Stokes; Olivia M Stransky; Shawn C West; Arvind Hoskoppal; Mehret Birru Talabi; Traci M Kazmerski
Journal:  Pediatr Cardiol       Date:  2022-06-22       Impact factor: 1.655

2.  Illness Uncertainty and Posttraumatic Stress in Young Adults With Congenital Heart Disease.

Authors:  Patricia Moreland; Sheila Judge Santacroce
Journal:  J Cardiovasc Nurs       Date:  2018 Jul/Aug       Impact factor: 2.083

3.  Experiences of health care in women with Peripartum Cardiomyopathy in Sweden: a qualitative interview study.

Authors:  Harshida Patel; Maria Schaufelberger; Cecily Begley; Marie Berg
Journal:  BMC Pregnancy Childbirth       Date:  2016-12-08       Impact factor: 3.007

4.  Experiences of women with cardiac disease in pregnancy: a systematic review and metasynthesis.

Authors:  Angela J Dawson; Yordanka Krastev; William A Parsonage; Michael Peek; Karin Lust; Elizabeth A Sullivan
Journal:  BMJ Open       Date:  2018-09-28       Impact factor: 2.692

5.  Exploring the lived experiences of pregnancy and early motherhood in Italian women with congenital heart disease: an interpretative phenomenological analysis.

Authors:  Serena Francesca Flocco; Rosario Caruso; Serena Barello; Tiziana Nania; Silvio Simeone; Federica Dellafiore
Journal:  BMJ Open       Date:  2020-01-23       Impact factor: 2.692

6.  Psychosocial well-being in postpartum women with congenital heart disease.

Authors:  Annika Freiberger; Jürgen Beckmann; Sebastian Freilinger; Harald Kaemmerer; Maximilian Huber; Nicole Nagdyman; Peter Ewert; Lars Pieper; Charlotte Deppe; Bettina Kuschel; Caroline Andonian
Journal:  Cardiovasc Diagn Ther       Date:  2022-08

7.  Perceptions of risk in pregnancy with chronic disease: A systematic review and thematic synthesis.

Authors:  Elizabeth R Ralston; Priscilla Smith; Joseph Chilcot; Sergio A Silverio; Kate Bramham
Journal:  PLoS One       Date:  2021-07-19       Impact factor: 3.240

  7 in total

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