Literature DB >> 24795287

Stigma and optimism in adolescents and young adults with cystic fibrosis.

Kendea N Oliver1, Matthew L Free1, Cody Bok1, Karen S McCoy2, Kathleen L Lemanek2, Charles F Emery3.   

Abstract

BACKGROUND: Despite increased life expectancy among patients with cystic fibrosis (CF), few studies have examined coping among adolescents and young adults with CF. Previous research suggests that stigma associated with chronic disease is related to worse physical and psychological health, but optimism may be protective. This study examined stigma and optimism among patients with CF.
METHODS: Seventy-two patients with CF (ages 14 to 25) completed a self-report questionnaire assessing stigma, distress, CF-specific quality of life (QoL), and optimism. Objective health data were recorded from patient medical records.
RESULTS: Greater stigma was associated with lower pulmonary function, QoL, and optimism. Stigma was positively correlated with distress. Optimism moderated the relationship between stigma and anxiety (p<0.001), and between stigma and emotional functioning (p<0.01).
CONCLUSIONS: Stigma is related to worse lung function and psychological health in patients with CF, but higher levels of optimism may act as a protective factor.
Copyright © 2014 European Cystic Fibrosis Society. Published by Elsevier B.V. All rights reserved.

Entities:  

Keywords:  Coping; Cystic fibrosis; Optimism; Quality of life; Stigma

Mesh:

Year:  2014        PMID: 24795287     DOI: 10.1016/j.jcf.2014.04.005

Source DB:  PubMed          Journal:  J Cyst Fibros        ISSN: 1569-1993            Impact factor:   5.482


  7 in total

Review 1.  Lung transplant referral for individuals with cystic fibrosis: Cystic Fibrosis Foundation consensus guidelines.

Authors:  Kathleen J Ramos; Patrick J Smith; Edward F McKone; Joseph M Pilewski; Amy Lucy; Sarah E Hempstead; Erin Tallarico; Albert Faro; Daniel B Rosenbluth; Alice L Gray; Jordan M Dunitz
Journal:  J Cyst Fibros       Date:  2019-03-27       Impact factor: 5.482

2.  Psychological Resources, Personality Traits and Buddhism: A Study of Italian Young Adults.

Authors:  Marco Giannini; Yura Loscalzo; Daniela Beraldi; Alessio Gori
Journal:  J Relig Health       Date:  2018-12

3.  Depression and anxiety prevalence in people with cystic fibrosis and their caregivers: a systematic review and meta-analysis.

Authors:  Louise Lord; David McKernon; Luke Grzeskowiak; Sue Kirsa; Jenni Ilomaki
Journal:  Soc Psychiatry Psychiatr Epidemiol       Date:  2022-06-04       Impact factor: 4.519

4.  Incorporating patient and caregiver feedback into lung transplant referral guidelines for individuals with cystic fibrosis-Preliminary findings from a novel paradigm.

Authors:  Patrick J Smith; Jordan M Dunitz; Amy Lucy; Sarah E Hempstead; Erin Tallarico; Albert Faro; Joseph M Pilewski; Kathleen J Ramos
Journal:  Clin Transplant       Date:  2020-08-17       Impact factor: 2.863

5.  Identifying and Integrating Parent Priorities for Psychosocial Support Services in a Pediatric Cystic Fibrosis Clinic.

Authors:  Robin S Everhart; Stephen J Molitor; Dena Wentz; H Joel Schmidt; Michael S Schechter
Journal:  J Clin Psychol Med Settings       Date:  2019-06

6.  A Cross-Sectional Study of the Psychological Needs of Adults Living with Cystic Fibrosis.

Authors:  Smita Pakhale; Justine Baron; Michael Armstrong; Georgio Tasca; Ena Gaudet; Shawn Aaron; William Cameron; Louise Balfour
Journal:  PLoS One       Date:  2015-06-23       Impact factor: 3.240

7.  Lived experiences of individuals with cystic fibrosis on CFTR-modulators.

Authors:  Annelise Page; Aaron Goldenberg; Anne L Matthews
Journal:  BMC Pulm Med       Date:  2022-01-21       Impact factor: 3.317

  7 in total

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