Literature DB >> 24777070

Understanding Parental Experiences Through Their Narratives of Restitution, Chaos, and Quest: Improving Care for Families Experiencing Childhood Cancer.

Jill M G Bally1, Lorraine Holtslander2, Wendy Duggleby3, Karen Wright2, Roanne Thomas4, Shelley Spurr2, Christopher Mpofu5.   

Abstract

The purpose of this secondary analysis was to develop an enhanced understanding of the experiences of parents who have children in treatment for cancer. Data collected from 16 parents (12 mothers and 4 fathers) were analyzed using Frank's dialogical narrative analysis. Findings demonstrated that parents' experiences were represented in chaos, restitution, and quest narratives. Each of these narratives was only one instance of a very complex and changing parental experience that cannot be understood in isolation from the others. The holistic understanding provided by these findings contributes to a more comprehensive understanding of parental experiences of their child's illness and highlights the need for health professionals to invite conversations about parents' illness experience and attend to the specific narrative type parents are presenting to support them adequately. Additional research is required to develop supportive approaches for each narrative which takes into account the complexities of parents' experiences.
© The Author(s) 2014.

Entities:  

Keywords:  caregivers; childhood cancer; family nursing; narrative analysis; parents; pediatric oncology nursing

Year:  2014        PMID: 24777070     DOI: 10.1177/1074840714532716

Source DB:  PubMed          Journal:  J Fam Nurs        ISSN: 1074-8407            Impact factor:   3.818


  5 in total

1.  Strategizing and Fatalizing: Self and Other in the Trauma Narratives of Justice-Involved Women.

Authors:  Amanda M Emerson
Journal:  Qual Health Res       Date:  2018-02-24

2.  Psychosocial Profiles of Parents of Children with Undiagnosed Diseases: Managing Well or Just Managing?

Authors:  Allyn McConkie-Rosell; Stephen R Hooper; Loren D M Pena; Kelly Schoch; Rebecca C Spillmann; Yong-Hui Jiang; Heidi Cope; Christina Palmer; Vandana Shashi
Journal:  J Genet Couns       Date:  2018-01-02       Impact factor: 2.537

3.  Parental expectations of support from healthcare providers during pediatric life-threatening illness: A secondary, qualitative analysis.

Authors:  Kim Mooney-Doyle; Maiara Rodrigues Dos Santos; Regina Szylit; Janet A Deatrick
Journal:  J Pediatr Nurs       Date:  2017-06-29       Impact factor: 2.145

4.  Riding a roller coaster: narrative typologies of patients with neuroendocrine tumors.

Authors:  Alessia Miconi; Daniele De Nuzzo; Solfrid Vatne; Paola Pierantognetti
Journal:  J Multidiscip Healthc       Date:  2015-12-15

5.  A window into living with an undiagnosed disease: illness narratives from the Undiagnosed Diseases Network.

Authors:  Rebecca C Spillmann; Allyn McConkie-Rosell; Loren Pena; Yong-Hui Jiang; Kelly Schoch; Nicole Walley; Camilla Sanders; Jennifer Sullivan; Stephen R Hooper; Vandana Shashi
Journal:  Orphanet J Rare Dis       Date:  2017-04-17       Impact factor: 4.123

  5 in total

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