Literature DB >> 24769808

Banking (on) the brain: from consent to authorisation and the transformative potential of solidarity.

Shawn H E Harmon1, Aisling Mcmahon2.   

Abstract

Modern technologies and biomedicine ambitions have given rise to new models of medical research, including population biobanking. One example of biobanking is brain banking, which refers to the collection and storage of brain and spinal cord samples for research into neurological diseases. Obviously, brain banking involves taking brains and tissue from deceased people, a fact which complicates the role of recruiters and makes consent a poor tool for stakeholders. After contextualising brain banking and considering the public health issues at stake, this article explores the legal definitions and demands of, and actual processes around, consent in England/Wales/Northern Ireland and authorisation in Scotland, articulating and evaluating their conceptual and practical differences. It then argues for an expanded but improved operation of 'authorisation' in the brain banking (and broader biobanking) setting, adopting 'solidarity' as our foundation and the improvement of the 'public good' our objective.
© The Author [2014]. Published by Oxford University Press; all rights reserved. For Permissions, please email: journals.permissions@oup.com.

Entities:  

Keywords:  Authorisation; Autonomy; Brain Banking; Consent; Human Tissue; Posthumous Donation; Solidarity

Mesh:

Year:  2014        PMID: 24769808     DOI: 10.1093/medlaw/fwu011

Source DB:  PubMed          Journal:  Med Law Rev        ISSN: 0967-0742            Impact factor:   1.267


  4 in total

1.  An International Survey of Brain Banking Operation and Characterization Practices.

Authors:  Beatrix Palmer-Aronsten; Donna Sheedy; Toni McCrossin; Jillian Kril
Journal:  Biopreserv Biobank       Date:  2016-07-11       Impact factor: 2.300

2.  The NSW brain tissue resource centre: Banking for alcohol and major neuropsychiatric disorders research.

Authors:  G T Sutherland; D Sheedy; J Stevens; T McCrossin; C C Smith; M van Roijen; J J Kril
Journal:  Alcohol       Date:  2016-03-14       Impact factor: 2.405

Review 3.  Banking brains: a pre-mortem "how to" guide to successful donation.

Authors:  Daniel Trujillo Diaz; Nora C Hernandez; Etty P Cortes; Phyllis L Faust; Jean Paul G Vonsattel; Elan D Louis
Journal:  Cell Tissue Bank       Date:  2018-09-15       Impact factor: 1.522

4.  What does engagement mean to participants in longitudinal cohort studies? A qualitative study.

Authors:  Cynthia A Ochieng; Joel T Minion; Andrew Turner; Mwenza Blell; Madeleine J Murtagh
Journal:  BMC Med Ethics       Date:  2021-06-24       Impact factor: 2.652

  4 in total

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