Literature DB >> 24768358

The Burden of Narcolepsy Disease (BOND) study: health-care utilization and cost findings.

Jed Black1, Nancy L Reaven2, Susan E Funk2, Karen McGaughey3, Maurice Ohayon4, Christian Guilleminault4, Chad Ruoff4, Emmanuel Mignot4.   

Abstract

OBJECTIVES: The aim of this study was to characterize health-care utilization, costs, and productivity in a large population of patients diagnosed with narcolepsy in the United States.
METHODS: This retrospective, observational study using data from the Truven Health Analytics MarketScan Research Databases assessed 5 years of claims data (2006-2010) to compare health-care utilization patterns, productivity, and associated costs among narcolepsy patients (identified by International Classification of Diseases, Ninth Revision (ICD9) narcolepsy diagnosis codes) versus matched controls. A total of 9312 narcolepsy patients (>18 years of age, continuously insured between 2006 and 2010) and 46,559 matched controls were identified.
RESULTS: Compared with controls, narcolepsy subjects had approximately twofold higher annual rates of inpatient admissions (0.15 vs. 0.08), emergency department (ED) visits w/o admission (0.34 vs. 0.17), hospital outpatient (OP) visits (2.8 vs. 1.4), other OP services (7.0 vs. 3.2), and physician visits (11.1 vs. 5.6; all p<0.0001). The rate of total annual drug transactions was doubled in narcolepsy versus controls (26.4 vs. 13.3; p<0.0001), including a 337% and 72% higher usage rate of narcolepsy drugs and non-narcolepsy drugs, respectively (both p<0.0001). Mean yearly costs were significantly higher in narcolepsy compared with controls for medical services ($8346 vs. $4147; p<0.0001) and drugs ($3356 vs. $1114; p<0.0001).
CONCLUSIONS: Narcolepsy was found to be associated with substantial personal and economic burdens, as indicated by significantly higher rates of health-care utilization and medical costs in this large US group of narcolepsy patients.
Copyright © 2014 Elsevier B.V. All rights reserved.

Entities:  

Keywords:  Burden of illness; Cataplexy; Cost of illness; Health-care utilization; Narcolepsy; Socioeconomic impact

Mesh:

Year:  2014        PMID: 24768358     DOI: 10.1016/j.sleep.2014.02.001

Source DB:  PubMed          Journal:  Sleep Med        ISSN: 1389-9457            Impact factor:   3.492


  22 in total

1.  A Sleep Medicine Curriculum for Pulmonary and Pulmonary/Critical Care Fellowship Programs: A Multisociety Expert Panel Report.

Authors:  David A Schulman; Craig A Piquette; Mir M Alikhan; Neil Freedman; Sunita Kumar; Jennifer McCallister; Babak Mokhlesi; Jean Santamauro; Effie Singas; Eric Stern; Kingman P Strohl; Kenneth R Casey
Journal:  Chest       Date:  2018-10-28       Impact factor: 9.410

Review 2.  Neurobiological and immunogenetic aspects of narcolepsy: Implications for pharmacotherapy.

Authors:  Steven T Szabo; Michael J Thorpy; Geert Mayer; John H Peever; Thomas S Kilduff
Journal:  Sleep Med Rev       Date:  2018-11-08       Impact factor: 11.609

3.  Effect of Oral JZP-110 (ADX-N05) on Wakefulness and Sleepiness in Adults with Narcolepsy: A Phase 2b Study.

Authors:  Chad Ruoff; Todd J Swick; Robert Doekel; Helene A Emsellem; Neil T Feldman; Russell Rosenberg; Gary Bream; Moise A Khayrallah; Yuan Lu; Jed Black
Journal:  Sleep       Date:  2016-07-01       Impact factor: 5.849

4.  The Humanistic and Economic Burden of Narcolepsy.

Authors:  Natalia M Flores; Kathleen F Villa; Jed Black; Ronald D Chervin; Edward A Witt
Journal:  J Clin Sleep Med       Date:  2016-03       Impact factor: 4.062

Review 5.  [Advances in treatment of narcolepsy].

Authors:  Qinglin Xu; Guodong Lou; Tiantian Wang; Lisan Zhang
Journal:  Zhejiang Da Xue Xue Bao Yi Xue Ban       Date:  2020-08-25

6.  Frequencies and Associations of Narcolepsy-Related Symptoms: A Cross-Sectional Study.

Authors:  Lenise Jihe Kim; Fernando Morgadinho Coelho; Camila Hirotsu; Paula Araujo; Lia Bittencourt; Sergio Tufik; Monica Levy Andersen
Journal:  J Clin Sleep Med       Date:  2015-12-15       Impact factor: 4.062

Review 7.  The Medical and Economic Burden of Narcolepsy: Implications for Managed Care.

Authors:  Michael J Thorpy; George Hiller
Journal:  Am Health Drug Benefits       Date:  2017-07

8.  Changes in Medical Services and Drug Utilization and Associated Costs After Narcolepsy Diagnosis in the United States.

Authors:  Kathleen F Villa; Nancy L Reaven; Susan E Funk; Karen McGaughey; Jed Black
Journal:  Am Health Drug Benefits       Date:  2018-05

Review 9.  Reviewing the Clinical Implications of Treating Narcolepsy as an Autoimmune Disorder.

Authors:  Maria Pia Giannoccaro; Rocco Liguori; Giuseppe Plazzi; Fabio Pizza
Journal:  Nat Sci Sleep       Date:  2021-05-11

10.  Developing a cognitive behavioral therapy for hypersomnia using telehealth: a feasibility study.

Authors:  Jason C Ong; Spencer C Dawson; Jennifer M Mundt; Cameron Moore
Journal:  J Clin Sleep Med       Date:  2020-12-15       Impact factor: 4.062

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