Literature DB >> 24742876

"We're all thrown in the same boat … ": A qualitative analysis of peer support in dementia care.

Sarah E Keyes1, Charlotte L Clarke2, Heather Wilkinson2, Eva Joanna Alexjuk2, Jane Wilcockson3, Louise Robinson4, Joanna Reynolds5, Siobhan McClelland6, Lynne Corner4, Mima Cattan5.   

Abstract

Peer support is well established in fields such as the disability movement and mental health and is increasingly recognised as one way of enabling support by and for people with a diagnosis of dementia and their immediate carers. It was central to the implementation of the National Dementia Strategy (NDS) for England, when 40 demonstration sites were established. This mixed-methods study included in-depth qualitative interviews with people living with dementia (n = 101) and staff/stakeholders (n = 82) at 8 of the 40 sites. Data analysis was a five-stage process: coding framework developed (using 25 transcripts); further development of the framework (using a further 70 transcripts); development of emerging themes; modelling of themes and verification of models based on the entire data set. Peer support had positive emotional and social impact that was rooted in identification with others, a commonality of experience and reciprocity of support. There was also a contrast between the quality of peer support and support from professionals. This emphasises the significance of lived experience and promoting a strength-based approach to interpersonal support that is enabling and challenges a deficit approach to understanding dementia.
© The Author(s) 2014.

Entities:  

Keywords:  carers of people with dementia; commonality; lived experience; peer support; people with dementia; qualitative research

Mesh:

Year:  2014        PMID: 24742876     DOI: 10.1177/1471301214529575

Source DB:  PubMed          Journal:  Dementia (London)        ISSN: 1471-3012


  11 in total

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Review 4.  What does the general public understand about prevention and treatment of dementia? A systematic review of population-based surveys.

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7.  Experiences of community-dwelling older people with dementia participating in a person-centred multidimensional interdisciplinary rehabilitation program.

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8.  "A Real Bucket of Worms": Views of People Living with Dementia and Family Members on Supported Decision-Making.

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Journal:  J Bioeth Inq       Date:  2019-12-12       Impact factor: 1.352

9.  Resonating moments: Exploring socio-material connectivity through artistic encounters with people living with dementia.

Authors:  Lilli Mittner
Journal:  Dementia (London)       Date:  2021-10-24

10.  The feasibility and acceptability of a psychosocial intervention to support people with dementia with Lewy bodies and family care partners.

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Journal:  Dementia (London)       Date:  2021-06-25
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