Sue Patterson1, Jenny Trite1, Tim Weaver1. 1. Sue Patterson, PhD, Metro North Mental Health - Royal Brisbane & Women's Hospital, Queensland Australia; Jenny Trite, North London Hub, Mental Health Research Network, Central and North West London Foundation Trust, London, UK; Tim Weaver, PhD, Centre for Mental Health, Imperial College London, UK.
Abstract
BACKGROUND: Optimisation of the process and outcomes of service user involvement in research is dependent on understanding current practice, challenges and opportunities. AIMS: To describe activities, roles and experiences of service users involved in mental health research. METHOD: National cross-sectional online questionnaire survey, using snowball sampling. Descriptive statistics and framework analysis undertaken collaboratively with a service user reference group. RESULTS: The survey revealed a previously undescribed, highly qualified service user research workforce. Positioned within and alongside mainstream research, respondents reported drawing on extensive service use, and passion for service improvement to challenge perceived clinical academic dominance of research. The support of peers was crucial to involvement, which typically enhanced mental health but for some, pervasive stigma and scrutiny undermined self-confidence and practical difficulties challenged equitable participation. CONCLUSIONS: Recognition of the service user research workforce will support the constructive amalgamation of academic and experiential expertise needed to shape and realise investment in mental health research. Royal College of Psychiatrists.
BACKGROUND: Optimisation of the process and outcomes of service user involvement in research is dependent on understanding current practice, challenges and opportunities. AIMS: To describe activities, roles and experiences of service users involved in mental health research. METHOD: National cross-sectional online questionnaire survey, using snowball sampling. Descriptive statistics and framework analysis undertaken collaboratively with a service user reference group. RESULTS: The survey revealed a previously undescribed, highly qualified service user research workforce. Positioned within and alongside mainstream research, respondents reported drawing on extensive service use, and passion for service improvement to challenge perceived clinical academic dominance of research. The support of peers was crucial to involvement, which typically enhanced mental health but for some, pervasive stigma and scrutiny undermined self-confidence and practical difficulties challenged equitable participation. CONCLUSIONS: Recognition of the service user research workforce will support the constructive amalgamation of academic and experiential expertise needed to shape and realise investment in mental health research. Royal College of Psychiatrists.
Authors: Carole Mockford; Kate Seers; Matt Murray; Jan Oyebode; Rosemary Clarke; Sophie Staniszewska; Rashida Suleman; Sue Boex; Yvonne Diment; Richard Grant; Jim Leach; Uma Sharma Journal: Health Expect Date: 2016-07-08 Impact factor: 3.377