Literature DB >> 24707826

Financial and psychological stressors associated with caring for children with disability.

Anthony Goudie1, Marie-Rachelle Narcisse2, David E Hall3, Dennis Z Kuo1.   

Abstract

The magnitude of stress and associated health consequences experienced by caregivers compromises their ability to effectively provide care to children, especially children with disability. We used latent class analysis of data from the 2010 Ohio Family Health Survey and identified 3 distinct classes of caregivers based on patterns of responses to 15 financial and psychological stresses they experienced. Compared with children residing in households in which caregivers experienced very little or no stress, children with disability were twice as likely to reside with caregivers with high levels of financial stress and almost 3.5 times as likely to reside with caregivers with high levels of financial stress and very high levels of psychological stress than typically developing children. Reducing caregiver stress is a critical step to ensuring the best health outcomes possible for children with disability. We identify the heterogeneity that is present in the population of caregivers by virtue of patterns of responses to various financial and psychological stressors. Children with disability are more likely to live in households in which a greater number of stressors affect caregivers. Different confounders are also associated with the latent classes of stress we identify. This is an important implication when determining the right interventions to target to the right subpopulations.

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Mesh:

Year:  2014        PMID: 24707826      PMCID: PMC4315505          DOI: 10.1037/fsh0000027

Source DB:  PubMed          Journal:  Fam Syst Health        ISSN: 1091-7527            Impact factor:   1.950


  31 in total

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2.  Financial burden for families of children with special health care needs.

Authors:  Karen Kuhlthau; Kristen Smith Hill; Recai Yucel; James M Perrin
Journal:  Matern Child Health J       Date:  2005-06

3.  A new definition of children with special health care needs.

Authors:  M McPherson; P Arango; H Fox; C Lauver; M McManus; P W Newacheck; J M Perrin; J P Shonkoff; B Strickland
Journal:  Pediatrics       Date:  1998-07       Impact factor: 7.124

Review 4.  Role of insurance for children with special health care needs: a synthesis of the evidence.

Authors:  Aimee E Jeffrey; Paul W Newacheck
Journal:  Pediatrics       Date:  2006-09-11       Impact factor: 7.124

5.  Mental health care services for children with special health care needs and their family members: prevalence and correlates of unmet needs.

Authors:  Michael L Ganz; Shalini A Tendulkar
Journal:  Pediatrics       Date:  2006-06       Impact factor: 7.124

6.  A family process model of economic hardship and adjustment of early adolescent boys.

Authors:  R D Conger; K J Conger; G H Elder; F O Lorenz; R L Simons; L B Whitbeck
Journal:  Child Dev       Date:  1992-06

7.  Effects of providing comprehensive ambulatory services to children with chronic conditions.

Authors:  G S Liptak; C M Burns; P W Davidson; E R McAnarney
Journal:  Arch Pediatr Adolesc Med       Date:  1998-10

8.  Mothers of children and adolescents with intellectual disability: social and economic situation, mental health status, and the self-assessed social and psychological impact of the child's difficulties.

Authors:  E Emerson
Journal:  J Intellect Disabil Res       Date:  2003 May-Jun

9.  Insurance for children with special health care needs: patterns of coverage and burden on families to provide adequate insurance.

Authors:  Amy J Davidoff
Journal:  Pediatrics       Date:  2004-08       Impact factor: 7.124

10.  A tertiary care-primary care partnership model for medically complex and fragile children and youth with special health care needs.

Authors:  John B Gordon; Holly H Colby; Tera Bartelt; Debra Jablonski; Mary L Krauthoefer; Peter Havens
Journal:  Arch Pediatr Adolesc Med       Date:  2007-10
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  13 in total

Review 1.  Children's complex care needs: a systematic concept analysis of multidisciplinary language.

Authors:  Maria Brenner; Claire Kidston; Carol Hilliard; Imelda Coyne; Jessica Eustace-Cook; Carmel Doyle; Thelma Begley; Michael J Barrett
Journal:  Eur J Pediatr       Date:  2018-08-08       Impact factor: 3.183

2.  Impact of Grandchild Caregiving on African American Grandparents.

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Journal:  Occup Ther Health Care       Date:  2016-11-02

3.  Children With Special Health Care Needs and Forgone Family Employment.

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4.  Social Work Services Utilization by Children with Medical Complexity.

Authors:  Madeline Coquillette; Joanne E Cox; Sara Cheek; Romi A Webster
Journal:  Matern Child Health J       Date:  2015-12

5.  The Role of Caregiver-Reported Risks in Predicting Adverse Pediatric Outcomes.

Authors:  Louise E Vaz; David V Wagner; Rebecca M Jungbauer; Katrina L Ramsey; Celeste Jenisch; Natalie Koskela-Staples; Steven Everist; Jared P Austin; Michael A Harris; Katharine E Zuckerman
Journal:  J Pediatr Psychol       Date:  2020-09-01

6.  Patterns of Parenting Confidence Among Infants With Medical Complexity: A Mixed-Methods Analysis.

Authors:  Ashlee J Vance; Kathleen Knafl; Debra H Brandon
Journal:  Adv Neonatal Care       Date:  2021-04-01       Impact factor: 1.874

7.  Mothers Who Take Care of Children with Disabilities in Rural Areas of a Spanish Region.

Authors:  Pablo A Cantero-Garlito; Pedro Moruno-Miralles; Juan Antonio Flores-Martos
Journal:  Int J Environ Res Public Health       Date:  2020-04-23       Impact factor: 3.390

8.  And still WE rise: Parent-child relationships, resilience, and school readiness in low-income urban Black families.

Authors:  Riana Elyse Anderson
Journal:  J Fam Psychol       Date:  2017-09-14

9.  Factors Associated with the Anxiety, Subjective Psychological Well-Being and Self-Esteem of Parents of Blind Children.

Authors:  Juan Jesús Sola-Carmona; Remedios López-Liria; David Padilla-Góngora; María Teresa Daza; José Manuel Aguilar-Parra; María Ángeles Salido-Campos
Journal:  PLoS One       Date:  2016-09-07       Impact factor: 3.240

10.  Key constituents for integration of care for children assisted with long-term home ventilation: a European study.

Authors:  Maria Brenner; Miriam P O'Shea; Philip Larkin; Jay Berry
Journal:  BMC Pediatr       Date:  2020-02-15       Impact factor: 2.125

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