Literature DB >> 24700153

German translation of the caregiver priorities and child health index of life with disabilities questionnaire: test-retest reliability and correlation with gross motor function in children with cerebral palsy.

Nikolai H Jung1, Olga Brix2, Peter Bernius3, A Sebastian Schroeder2, Gerhard J Kluger4, Andreas Beyerlein5, Shannon Weir6, Rudiger von Kries7, Unni G Narayanan6, Volker Mall1, Steffen Berweck2.   

Abstract

We aimed to translate the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) questionnaire into German and to evaluate its reliability and validity by studying the association between CPCHILD scores and gross motor function as measured by the gross motor function classification system (GMFCS) in children with cerebral palsy (CP). The original CPCHILD questionnaire and manual were translated and back translated. It was administered to primary caregivers of persons with CP (GMFCS levels III-V) and was completed a second time 2 weeks after the first to measure test-retest reliability (n = 17). Primary caregivers of 68 children with CP; GMFCS level III (n = 14), level IV (n = 28), and level V (n = 26) completed the questionnaire. Mean total CPCHILD scores across GMFCS levels were 67.1 ± 14.9 for GMFCS level III, 56.6 ± 11.8 for level IV, and 44.3 ± 12.9 for level V. Good correlation (r =  - 0.56) was observed between GMFCS and total scores test-retest reliability showed intraclass correlation coefficients between 0.4 and 0.9. The German CPCHILD yielded similar test-retest reliability and score distributions across the GMFCS level as the original version. The best correlations were observed for domains that are close to the functional deficits. Georg Thieme Verlag KG Stuttgart · New York.

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Year:  2014        PMID: 24700153     DOI: 10.1055/s-0034-1372304

Source DB:  PubMed          Journal:  Neuropediatrics        ISSN: 0174-304X            Impact factor:   1.947


  3 in total

1.  Validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) in a sample of Turkish non-ambulatory children with cerebral palsy.

Authors:  Tülay Tarsuslu Şimşek; Meral Sertel; Eylem Tütün Yümin; Bahar Aras; Unni G Narayanan
Journal:  Turk Pediatri Ars       Date:  2019-03-01

2.  Psychometric Evaluation of the Polish Version of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD).

Authors:  Paulina Nowak; Unni Narayanan; Małgorzata Szmurło; Anna Krzyżańska; Maciej Głowacki; Ewa Misterska; Marek Jóźwiak
Journal:  Neuropsychiatr Dis Treat       Date:  2022-04-07       Impact factor: 2.570

3.  Disease Severity and Motor Impairment Correlate With Health-Related Quality of Life in AP-4-Associated Hereditary Spastic Paraplegia.

Authors:  Catherine Jordan; Gregory Geisel; Julian E Alecu; Bo Zhang; Mustafa Sahin; Darius Ebrahimi-Fakhari
Journal:  Neurol Genet       Date:  2021-07-20
  3 in total

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