INTRODUCTION: Nowadays, health education has been elevated to a higher standing in healthcare systems in managing chronic illness; yet, this approach has not received sufficient support in developing countries as these societies still tend to the traditional stage of 'treatment after disease'. Adolescence is a critical period and voyage into adulthood can be more challenging for haemophilia teens. For teens with haemophilia, learning to care for their own disorder is a giant step forward in asserting their independence and preparation for adult life. AIM: We aimed to determine impact of health instructions on improving knowledge and practices of haemophilia A adolescents. METHODS: An interventional study was conducted on 50 haemophilia A adolescents at outpatient clinic of Pediatric Hematology Unit of Zagazig University Hospitals. Three tools were used. The first was a structured interview sheet to evaluate patients' knowledge. The second was a clinical checklist to evaluate patients' practices. The third was health instructions program. Tools were developed by the researchers based on a thorough review of related literature and a full understanding of the needs of haemophilic adolescents. Evaluation of health instructions success was based on comparing scores of tool I and tool II before health instructions (pretest) and after health instructions immediately (posttest) and after 2 months (follow-up test). RESULTS: There was a significant improvement in knowledge and practices of haemophilia A adolescents in posttest and follow-up test compared to pretest. CONCLUSION: Health instructions have an impact on improving knowledge and practices of haemophilia A adolescents.
INTRODUCTION: Nowadays, health education has been elevated to a higher standing in healthcare systems in managing chronic illness; yet, this approach has not received sufficient support in developing countries as these societies still tend to the traditional stage of 'treatment after disease'. Adolescence is a critical period and voyage into adulthood can be more challenging for haemophilia teens. For teens with haemophilia, learning to care for their own disorder is a giant step forward in asserting their independence and preparation for adult life. AIM: We aimed to determine impact of health instructions on improving knowledge and practices of haemophilia A adolescents. METHODS: An interventional study was conducted on 50 haemophilia A adolescents at outpatient clinic of Pediatric Hematology Unit of Zagazig University Hospitals. Three tools were used. The first was a structured interview sheet to evaluate patients' knowledge. The second was a clinical checklist to evaluate patients' practices. The third was health instructions program. Tools were developed by the researchers based on a thorough review of related literature and a full understanding of the needs of haemophilic adolescents. Evaluation of health instructions success was based on comparing scores of tool I and tool II before health instructions (pretest) and after health instructions immediately (posttest) and after 2 months (follow-up test). RESULTS: There was a significant improvement in knowledge and practices of haemophilia A adolescents in posttest and follow-up test compared to pretest. CONCLUSION: Health instructions have an impact on improving knowledge and practices of haemophilia A adolescents.
Authors: Sophie le Doré; Nathalie Grinda; Emmanuelle Ferré; Valerie Roussel-Robert; Birgit Frotscher; Pierre Chamouni; Sandrine Meunier; Sophie Bayart; Edita Dolimier; Francoise Truong-Berthoz; Emmanuelle de Raucourt Journal: J Blood Med Date: 2021-03-09