Yvonne van Eijk-Hustings1, Mwidimi Ndosi2, Beate Buss2, Françoise Fayet2, Antonella Moretti2, Sarah Ryan2, Carine Savel2, Marieke Scholte-Voshaar2, Jenny de la Torre-Aboki2, Astrid van Tubergen3. 1. Department of Patient and Care, Division of Rheumatology, Department of Internal Medicine, Maastricht University Medical Centre, School for Public Health and Primary Care (CAPHRI), University of Maastricht, Maastricht, The Netherlands, Academic and Clinical Unit for Musculoskeletal Nursing (ACUMeN), Section of Clinical Biomechanics and Physical Medicine, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UK, Charité Universitätsmedizin, Department Rheumatology, Berlin, Germany, Service de Rhumatologie 4e HE, Hôpital Gabriel Montpied, Clermont-Ferrand, France, Clinica Reumatologica, Università Politecnica delle Marche, Ospedale C. Urbani, Jesi (An), Italy, Staffordshire and Stoke on Trent NHS Partnership Trust, Rheumatology Centre, Stoke on Trent, UK, Tools, Foundation for Patient Empowerment, Bussum, The Netherlands and Department of Rheumatology, Alicante General and University Hospital, Alicante, Spain.Department of Patient and Care, Division of Rheumatology, Department of Internal Medicine, Maastricht University Medical Centre, School for Public Health and Primary Care (CAPHRI), University of Maastricht, Maastricht, The Netherlands, Academic and Clinical Unit for Musculoskeletal Nursing (ACUMeN), Section of Clinical Biomechanics and Physical Medicine, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UK, Charité Universitätsmedizin, Department Rheumatology, Berlin, Germany, Service de Rhumatologie 4e HE, Hôpital Gabriel Montpied, Clermont-Ferrand, France, Clinica Reumatologica, Università Politecnica delle Marche, Ospedale C. Urbani, Jesi (An), Italy, Staffordshire and Stoke on Trent NHS Partnership Trust, Rheumatology Centre, Stoke on Trent, UK, Tools, Foundation for Patient Empowerment, Bussum, The Netherlands and Department of Rheumatology, Alicante General and University Hospital, Alicante, Spain.Department of Patient and Care, Division of Rheumatology, Department of Internal Med 2. Department of Patient and Care, Division of Rheumatology, Department of Internal Medicine, Maastricht University Medical Centre, School for Public Health and Primary Care (CAPHRI), University of Maastricht, Maastricht, The Netherlands, Academic and Clinical Unit for Musculoskeletal Nursing (ACUMeN), Section of Clinical Biomechanics and Physical Medicine, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UK, Charité Universitätsmedizin, Department Rheumatology, Berlin, Germany, Service de Rhumatologie 4e HE, Hôpital Gabriel Montpied, Clermont-Ferrand, France, Clinica Reumatologica, Università Politecnica delle Marche, Ospedale C. Urbani, Jesi (An), Italy, Staffordshire and Stoke on Trent NHS Partnership Trust, Rheumatology Centre, Stoke on Trent, UK, Tools, Foundation for Patient Empowerment, Bussum, The Netherlands and Department of Rheumatology, Alicante General and University Hospital, Alicante, Spain. 3. Department of Patient and Care, Division of Rheumatology, Department of Internal Medicine, Maastricht University Medical Centre, School for Public Health and Primary Care (CAPHRI), University of Maastricht, Maastricht, The Netherlands, Academic and Clinical Unit for Musculoskeletal Nursing (ACUMeN), Section of Clinical Biomechanics and Physical Medicine, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UK, Charité Universitätsmedizin, Department Rheumatology, Berlin, Germany, Service de Rhumatologie 4e HE, Hôpital Gabriel Montpied, Clermont-Ferrand, France, Clinica Reumatologica, Università Politecnica delle Marche, Ospedale C. Urbani, Jesi (An), Italy, Staffordshire and Stoke on Trent NHS Partnership Trust, Rheumatology Centre, Stoke on Trent, UK, Tools, Foundation for Patient Empowerment, Bussum, The Netherlands and Department of Rheumatology, Alicante General and University Hospital, Alicante, Spain.Department of Patient and Care, Division of Rheumatology, Department of Internal Medicine, Maastricht University Medical Centre, School for Public Health and Primary Care (CAPHRI), University of Maastricht, Maastricht, The Netherlands, Academic and Clinical Unit for Musculoskeletal Nursing (ACUMeN), Section of Clinical Biomechanics and Physical Medicine, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UK, Charité Universitätsmedizin, Department Rheumatology, Berlin, Germany, Service de Rhumatologie 4e HE, Hôpital Gabriel Montpied, Clermont-Ferrand, France, Clinica Reumatologica, Università Politecnica delle Marche, Ospedale C. Urbani, Jesi (An), Italy, Staffordshire and Stoke on Trent NHS Partnership Trust, Rheumatology Centre, Stoke on Trent, UK, Tools, Foundation for Patient Empowerment, Bussum, The Netherlands and Department of Rheumatology, Alicante General and University Hospital, Alicante, Spain.
Abstract
OBJECTIVES: The aims of this study were to disseminate, assess agreement with, assess the application of and identify potential barriers for implementation of the European League Against Rheumatism (EULAR) recommendations for the role of nurses in the management of chronic inflammatory arthritis (CIA) using a survey of nurses, rheumatologists and patients. METHODS: A Web-based survey was distributed across Europe and the USA using snowball sampling. Levels of agreement and application were assessed using a 0-10 rating scale (0 = none, 10 = full agreement/application). Reasons for disagreement and potential barriers to application of each recommendation were sought. Regional differences with respect to agreement and application were explored. RESULTS: In total, 967 nurses, 548 rheumatologists and 2034 patients from 23 countries participated in the survey. Median level of agreement was high in all three groups, ranging from 8 to 10 per recommendation. Median level of application was substantially lower, ranging from 0 to 8 per recommendation. Agreement and application were lowest in Eastern and Central Europe. The most commonly reported reasons for incomplete agreement were too many other responsibilities (nurses), doubts about knowledge of the nurse (rheumatologists) and fear of losing contact with the rheumatologist (patients). The most commonly reported barriers to the application were time constraints and unavailability of service. Rheumatologists responses suggested that nurses had insufficient knowledge to provide the recommended care. CONCLUSION: The EULAR recommendations for the role of nurses in the management of CIA have been disseminated among nurses, rheumatologists and patients across Europe and the USA. Agreement with these recommendations is high, but application is lower and differed across regions.
OBJECTIVES: The aims of this study were to disseminate, assess agreement with, assess the application of and identify potential barriers for implementation of the European League Against Rheumatism (EULAR) recommendations for the role of nurses in the management of chronic inflammatory arthritis (CIA) using a survey of nurses, rheumatologists and patients. METHODS: A Web-based survey was distributed across Europe and the USA using snowball sampling. Levels of agreement and application were assessed using a 0-10 rating scale (0 = none, 10 = full agreement/application). Reasons for disagreement and potential barriers to application of each recommendation were sought. Regional differences with respect to agreement and application were explored. RESULTS: In total, 967 nurses, 548 rheumatologists and 2034 patients from 23 countries participated in the survey. Median level of agreement was high in all three groups, ranging from 8 to 10 per recommendation. Median level of application was substantially lower, ranging from 0 to 8 per recommendation. Agreement and application were lowest in Eastern and Central Europe. The most commonly reported reasons for incomplete agreement were too many other responsibilities (nurses), doubts about knowledge of the nurse (rheumatologists) and fear of losing contact with the rheumatologist (patients). The most commonly reported barriers to the application were time constraints and unavailability of service. Rheumatologists responses suggested that nurses had insufficient knowledge to provide the recommended care. CONCLUSION: The EULAR recommendations for the role of nurses in the management of CIA have been disseminated among nurses, rheumatologists and patients across Europe and the USA. Agreement with these recommendations is high, but application is lower and differed across regions.
Authors: Santiago Muñoz-Fernández; Ma Dolores Aguilar; Raquel Almodóvar; Laura Cano-García; Sandra Fortea; Cristina Patricia Alcañiz-Escandell; José R Rodríguez; Laura Cebrián; Pablo Lázaro Journal: Rheumatol Int Date: 2017-01-20 Impact factor: 2.631
Authors: Kristien Van der Elst; Ann Bremander; An De Groef; Ingrid Larsson; Elke G E Mathijssen; Johanna E Vriezekolk; Rene Westhovens; Yvonne J L van Eijk-Hustings Journal: BMJ Open Date: 2019-03-27 Impact factor: 2.692
Authors: Sofia Ramiro; Frank Buttgereit; Christian Dejaco; Polina Putrik; Julia Unger; Daniel Aletaha; Gerolamo Bianchi; Johannes W Bijlsma; Annelies Boonen; Nada Cikes; Axel Finckh; Laure Gossec; Tore K Kvien; Joao Madruga Dias; Eric L Matteson; Francisca Sivera; Tanja A Stamm; Zoltan Szekanecz; Dieter Wiek; Angela Zink Journal: RMD Open Date: 2018-12-05
Authors: Michaël Doumen; René Westhovens; Maryline Vandeputte; Rani Van Melder; Kristien Van der Elst; Sofia Pazmino; Delphine Bertrand; Veerle Stouten; Els Van Laeken; Nelly Creten; Claudia Neys; Patrick Verschueren; Diederik De Cock Journal: Rheumatol Adv Pract Date: 2021-11-05
Authors: Kristien Van der Elst; Elke G E Mathijssen; Ellen Landgren; Ann Bremander; An De Groef; Elisabet Lindqvist; Maria Nylander; Alma Peters; Frank Van den Hoogen; Yvonne van Eijk-Hustings; Gerard Verhoeven; Johanna E Vriezekolk; Rene Westhovens; Ingrid Larsson Journal: RMD Open Date: 2020-09