Literature DB >> 24689359

Use of an online community to provide support to caregivers of people with dementia.

Marta E Pagán-Ortiz1, Dharma E Cortés, Noelle Rudloff, Patricia Weitzman, Sue Levkoff.   

Abstract

One challenge faced by many family members caring for persons with dementia is lack of information about how to take care of others and themselves. This is especially important for persons from ethnic minority groups, because linguistically and culturally appropriate information is often not available. In response to these needs, we developed a web site for Spanish-speaking caregivers. Cuidatecuidador.com provides bilingual information on dementia and caregiver issues. Content was developed and then evaluated by caregivers residing in 3 countries. Findings suggest trends that exposure to information may be related to a higher sense of mastery and a reduction of depressive symptomatology.

Entities:  

Keywords:  caregiving; dementia; ethnicity and multicultural issues; mental health and mental illness; mixed methods

Mesh:

Year:  2014        PMID: 24689359      PMCID: PMC4127129          DOI: 10.1080/01634372.2014.901998

Source DB:  PubMed          Journal:  J Gerontol Soc Work        ISSN: 0163-4372


  19 in total

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Journal:  West J Nurs Res       Date:  2002-02       Impact factor: 1.967

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Journal:  Aging Ment Health       Date:  2004-11       Impact factor: 3.658

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Authors:  Martin Pinquart; Silvia Sörensen
Journal:  Gerontologist       Date:  2005-02

Review 6.  Culture-fair behavioral symptom differential assessment and intervention in dementing illness.

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Authors:  S H Zarit; K E Reever; J Bach-Peterson
Journal:  Gerontologist       Date:  1980-12

Review 8.  Caregiver burden among dementia patient caregivers: a review of the literature.

Authors:  Lynn Etters; Debbie Goodall; Barbara E Harrison
Journal:  J Am Acad Nurse Pract       Date:  2008-08

9.  The effect of a family therapy and technology-based intervention on caregiver depression.

Authors:  Carl Eisdorfer; Sara J Czaja; David A Loewenstein; Mark P Rubert; Soledad Argüelles; Victoria B Mitrani; José Szapocznik
Journal:  Gerontologist       Date:  2003-08

10.  Internet use as a predictor of sense of community in older people.

Authors:  Shima Sum; R Mark Mathews; Mohsen Pourghasem; Ian Hughes
Journal:  Cyberpsychol Behav       Date:  2009-04
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  19 in total

1.  Caregivers Help-Seeking Related to Physical and Mental Burden.

Authors:  Carmela Mento; Amelia Rizzo; Salvatore Settineri
Journal:  Clin Neuropsychiatry       Date:  2019-06

2.  Perceptions of the impact of COVID-19 on healthcare communication in a nationally representative cross-sectional survey of family caregivers.

Authors:  Reed W R Bratches; Noah Z Freundlich; J Nicholas Dionne-Odom; A James O'Malley; Paul J Barr
Journal:  BMJ Open       Date:  2022-04-13       Impact factor: 3.006

Review 3.  Components and Outcomes of Internet-Based Interventions for Caregivers of Older Adults: Systematic Review.

Authors:  Cassioppée Guay; Claudine Auger; Louise Demers; W Ben Mortenson; William C Miller; Dominique Gélinas-Bronsard; Sara Ahmed
Journal:  J Med Internet Res       Date:  2017-09-19       Impact factor: 5.428

4.  Study protocol: pragmatic randomized control trial of an internet-based intervention (My tools 4 care) for family carers.

Authors:  Wendy Duggleby; Jenny Ploeg; Carrie McAiney; Kathryn Fisher; Jenny Swindle; Tracey Chambers; Sunita Ghosh; Shelley Peacock; Maureen Markle-Reid; Jean Triscott; Allison Williams; Dorothy Forbes; Lori Pollard
Journal:  BMC Geriatr       Date:  2017-08-14       Impact factor: 3.921

Review 5.  Web-Based Interventions to Improve Mental Health, General Caregiving Outcomes, and General Health for Informal Caregivers of Adults With Chronic Conditions Living in the Community: Rapid Evidence Review.

Authors:  Jenny Ploeg; Maureen Markle-Reid; Ruta Valaitis; Carrie McAiney; Wendy Duggleby; Amy Bartholomew; Diana Sherifali
Journal:  J Med Internet Res       Date:  2017-07-28       Impact factor: 5.428

6.  The Association of Health Literacy and Electronic Health Literacy With Self-Efficacy, Coping, and Caregiving Perceptions Among Carers of People With Dementia: Research Protocol for a Descriptive Correlational Study.

Authors:  Areti Efthymiou; Nicos Middleton; Andreas Charalambous; Evridiki Papastavrou
Journal:  JMIR Res Protoc       Date:  2017-11-13

7.  An integrative review of information and communication technology based support interventions for carers of home dwelling older people.

Authors:  Aileen L Bergström; Elizabeth Hanson
Journal:  Technol Disabil       Date:  2018-02-05

8.  Impact of Internet-Based Interventions on Caregiver Mental Health: Systematic Review and Meta-Analysis.

Authors:  Diana Sherifali; Muhammad Usman Ali; Jenny Ploeg; Maureen Markle-Reid; Ruta Valaitis; Amy Bartholomew; Donna Fitzpatrick-Lewis; Carrie McAiney
Journal:  J Med Internet Res       Date:  2018-07-03       Impact factor: 5.428

Review 9.  Computer and telephone delivered interventions to support caregivers of people with dementia: a systematic review of research output and quality.

Authors:  Amy Waller; Sophie Dilworth; Elise Mansfield; Rob Sanson-Fisher
Journal:  BMC Geriatr       Date:  2017-11-16       Impact factor: 3.921

10.  The Feasibility and Utility of a Personal Health Record for Persons With Dementia and Their Family Caregivers for Web-Based Care Coordination: Mixed Methods Study.

Authors:  Colleen M Peterson; Jude P Mikal; Hayley R McCarron; Jessica M Finlay; Lauren L Mitchell; Joseph E Gaugler
Journal:  JMIR Aging       Date:  2020-06-26
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