J Meirte1, N E E van Loey2, K Maertens3, P Moortgat4, G Hubens5, U Van Daele6. 1. Oscare, Organisation for Burns, Scar After-care and Research, Antwerp, Belgium; University of Antwerp, Department of Rehabilitation Sciences and Physiotherapy, Antwerp, Belgium. Electronic address: jill.meirte@uantwerpen.be. 2. Association of Dutch Burn Centres, Department of Behavioural Research, Beverwijk, the Netherlands; Utrecht University, Department of Clinical and Health Psychology, Utrecht, the Netherlands. 3. Oscare, Organisation for Burns, Scar After-care and Research, Antwerp, Belgium; Vrije Universiteit Brussel, Department of Clinical and Lifespan Psychology, Brussels, Belgium. 4. Oscare, Organisation for Burns, Scar After-care and Research, Antwerp, Belgium. 5. University of Antwerp, Department of Antwerp Surgical Training Anatomy and Research Centre, Antwerp, Belgium. 6. University of Antwerp, Department of Rehabilitation Sciences and Physiotherapy, Antwerp, Belgium.
Abstract
OBJECTIVE: Quality of life (QOL) is one of the leading outcomes in burn care research. This study classifies subscales of common QOL measures within the International Classification of Functioning disability and health (ICF) framework to determine to which extent the measures are complementary or overlapping and to investigate whether the instruments are able to describe the full spectrum of patients' functioning. METHODS: A literature search was performed to determine the most frequently used questionnaires in burn research. The subscales of the three mostly used questionnaires were classified within the ICF framework. RESULTS: Two generic measures, the Short Form-36 items (SF-36) and the European Quality of Life 5 Dimensions (EQ-5D), and a disease specific measure, the Burn Specific Health Scale-Brief (BSHS-B), were analyzed. The BSHS-B covered most domains and was the only scale that included personal factors. The SF-36 included only one domain in the activity limitations and similar to the EQ-5D no contextual factors were included. Environmental factors were not addressed in the questionnaires, even though these may have an impact on the quality of life in patients with burns. CONCLUSION: To capture the full spectrum of dysfunctioning a combination of the BSHS-B with a generic questionnaire seems obligatory. However still some domains of functioning remain uncovered.
OBJECTIVE: Quality of life (QOL) is one of the leading outcomes in burn care research. This study classifies subscales of common QOL measures within the International Classification of Functioning disability and health (ICF) framework to determine to which extent the measures are complementary or overlapping and to investigate whether the instruments are able to describe the full spectrum of patients' functioning. METHODS: A literature search was performed to determine the most frequently used questionnaires in burn research. The subscales of the three mostly used questionnaires were classified within the ICF framework. RESULTS: Two generic measures, the Short Form-36 items (SF-36) and the European Quality of Life 5 Dimensions (EQ-5D), and a disease specific measure, the Burn Specific Health Scale-Brief (BSHS-B), were analyzed. The BSHS-B covered most domains and was the only scale that included personal factors. The SF-36 included only one domain in the activity limitations and similar to the EQ-5D no contextual factors were included. Environmental factors were not addressed in the questionnaires, even though these may have an impact on the quality of life in patients with burns. CONCLUSION: To capture the full spectrum of dysfunctioning a combination of the BSHS-B with a generic questionnaire seems obligatory. However still some domains of functioning remain uncovered.
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