Literature DB >> 24616331

Establishing a high-risk neuroblastoma cohort using the Pediatric Health Information System Database.

Richard Aplenc1,2,3,4,5, Rochelle Bagatell1,5, Ami V Desai1,2,3, Marko Kavcic1, Yuan-Shung Huang4, Nicole Herbst6, Brian T Fisher2,4,7,5, Alix E Seif1,5, Yimei Li1,2,5, Sean Hennessy2,3,6.   

Abstract

International Classification of Diseases, 9th Revision (ICD-9) code(s) for neuroblastoma do not exist, preventing identification of these patients in administrative databases. To overcome this challenge, a three-step algorithm, using ICD-9 codes, exclusion criteria, and manual review of chemotherapy billing data, was utilized to assemble a high-risk neuroblastoma cohort (n = 952) from the Pediatric Health Information System (PHIS) Database and validated at a single institution [sensitivity 89.1%; positive predictive value (PPV) 96.1%]. This cohort provides a data source for future comparative effectiveness and clinical epidemiology studies in high-risk neuroblastoma patients.
© 2014 Wiley Periodicals, Inc.

Entities:  

Keywords:  administrative database; cohort validation; neuroblastoma

Mesh：

Substances：

Year:  2014        PMID： 24616331      PMCID： PMC4323158          DOI： 10.1002/pbc.24930

Source DB:  PubMed          Journal:  Pediatr Blood Cancer        ISSN： 1545-5009            Impact factor:   3.167


  8 in total

1.  Pilot induction regimen incorporating pharmacokinetically guided topotecan for treatment of newly diagnosed high-risk neuroblastoma: a Children's Oncology Group study.

Authors:  Julie R Park; Jeffrey R Scott; Clinton F Stewart; Wendy B London; Arlene Naranjo; Victor M Santana; Peter J Shaw; Susan L Cohn; Katherine K Matthay
Journal:  J Clin Oncol       Date:  2011-10-17       Impact factor: 44.544

2.  Feasibility of a tandem autologous peripheral blood stem cell transplant regimen for high risk neuroblastoma in a cooperative group setting: a Pediatric Oncology Group study: a report from the Children's Oncology Group.

Authors:  Meaghan Granger; Stephan A Grupp; Morris Kletzel; Cynthia Kretschmar; Arlene Naranjo; Wendy B London; Lisa Diller
Journal:  Pediatr Blood Cancer       Date:  2012-06-28       Impact factor: 3.167

3.  Establishment of an 11-year cohort of 8733 pediatric patients hospitalized at United States free-standing children's hospitals with de novo acute lymphoblastic leukemia from health care administrative data.

Authors:  Brian T Fisher; Tracey Harris; Kari Torp; Alix E Seif; Ami Shah; Yuan-Shung V Huang; L Charles Bailey; Leslie S Kersun; Anne F Reilly; Susan R Rheingold; Dana Walker; Yimei Li; Richard Aplenc
Journal:  Med Care       Date:  2014-01       Impact factor: 2.983

4.  Long-term results for children with high-risk neuroblastoma treated on a randomized trial of myeloablative therapy followed by 13-cis-retinoic acid: a children's oncology group study.

Authors:  Katherine K Matthay; C Patrick Reynolds; Robert C Seeger; Hiroyuki Shimada; E Stanton Adkins; Daphne Haas-Kogan; Robert B Gerbing; Wendy B London; Judith G Villablanca
Journal:  J Clin Oncol       Date:  2009-01-26       Impact factor: 44.544

5.  Purged versus non-purged peripheral blood stem-cell transplantation for high-risk neuroblastoma (COG A3973): a randomised phase 3 trial.

Authors:  Susan G Kreissman; Robert C Seeger; Katherine K Matthay; Wendy B London; Richard Sposto; Stephan A Grupp; Daphne A Haas-Kogan; Michael P Laquaglia; Alice L Yu; Lisa Diller; Allen Buxton; Julie R Park; Susan L Cohn; John M Maris; C Patrick Reynolds; Judith G Villablanca
Journal:  Lancet Oncol       Date:  2013-07-25       Impact factor: 41.316

6.  High-dose rapid and standard induction chemotherapy for patients aged over 1 year with stage 4 neuroblastoma: a randomised trial.

Authors:  Andrew D J Pearson; C Ross Pinkerton; Ian J Lewis; John Imeson; Caroline Ellershaw; David Machin
Journal:  Lancet Oncol       Date:  2008-03       Impact factor: 41.316

7.  Assembly of a cohort of children treated for acute myeloid leukemia at free-standing children's hospitals in the United States using an administrative database.

Authors:  Marko Kavcic; Brian T Fisher; Kari Torp; Yimei Li; Yuan-Shung Huang; Alix E Seif; Marijana Vujkovic; Richard Aplenc
Journal:  Pediatr Blood Cancer       Date:  2012-11-28       Impact factor: 3.167

8.  A pilot study of tandem high-dose chemotherapy with stem cell rescue as consolidation for high-risk neuroblastoma: Children's Oncology Group study ANBL00P1.

Authors:  A E Seif; A Naranjo; D L Baker; N J Bunin; M Kletzel; C S Kretschmar; J M Maris; P W McGrady; D von Allmen; S L Cohn; W B London; J R Park; L R Diller; S A Grupp
Journal:  Bone Marrow Transplant       Date:  2013-01-21       Impact factor: 5.483
  8 in total
  7 in total

1.  2-Year Outcomes After Complete or Staged Procedure for Tetralogy of Fallot in Neonates.

Authors:  Jill J Savla; Jennifer A Faerber; Yuan-Shung V Huang; Theoklis Zaoutis; Elizabeth Goldmuntz; Steven M Kawut; Laura Mercer-Rosa
Journal:  J Am Coll Cardiol       Date:  2019-09-24       Impact factor: 24.094

Review 2.  Use of patient registries and administrative datasets for the study of pediatric cancer.

Authors:  Henry E Rice; Brian R Englum; Brian C Gulack; Obinna O Adibe; Elizabeth T Tracy; Susan G Kreissman; Jonathan C Routh
Journal:  Pediatr Blood Cancer       Date:  2015-03-21       Impact factor: 3.167

3.  Resource Utilization and Toxicities After Carboplatin/Etoposide/Melphalan and Busulfan/Melphalan for Autologous Stem Cell Rescue in High-Risk Neuroblastoma Using a National Administrative Database.

Authors:  Ami V Desai; Alix E Seif; Yimei Li; Kelly Getz; Brian T Fisher; Vera Huang; Adjoa Mante; Richard Aplenc; Rochelle Bagatell
Journal:  Pediatr Blood Cancer       Date:  2016-01-21       Impact factor: 3.167

4.  Aligning EHR Data for Pediatric Leukemia With Standard Protocol Therapy.

Authors:  Nicole M Wood; Sierra Davis; Karen Lewing; Janelle Noel-MacDonnell; Earl F Glynn; Doina Caragea; Mark A Hoffman
Journal:  JCO Clin Cancer Inform       Date:  2021-03

5.  Poverty and Targeted Immunotherapy: Survival in Children's Oncology Group Clinical Trials for High-Risk Neuroblastoma.

Authors:  Kira Bona; Yimei Li; Lena E Winestone; Kelly D Getz; Yuan-Shung Huang; Brian T Fisher; Ami V Desai; Troy Richardson; Matt Hall; Arlene Naranjo; Tara O Henderson; Richard Aplenc; Rochelle Bagatell
Journal:  J Natl Cancer Inst       Date:  2021-03-01       Impact factor: 11.816

Review 6.  Neuroblastoma, a Paradigm for Big Data Science in Pediatric Oncology.

Authors:  Brittany M Salazar; Emily A Balczewski; Choong Yong Ung; Shizhen Zhu
Journal:  Int J Mol Sci       Date:  2016-12-27       Impact factor: 5.923

7.  Creation of a pediatric mature B-cell non-Hodgkin lymphoma cohort within the Pediatric Health Information System Database.

Authors:  Rebecca Citrin; Joseph P Horowitz; Anne F Reilly; Yimei Li; Yuan-Shung Huang; Kelly D Getz; Alix E Seif; Brian T Fisher; Richard Aplenc
Journal:  PLoS One       Date:  2017-10-23       Impact factor: 3.240
  7 in total

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