Literature DB >> 24597380

Body ownership and research.

Rebekah E McWhirter1, Dianne Nicol2, Don Chalmers2, Joanne L Dickinson3.   

Abstract

This article questions whether recognition of property rights in human tissue .would enhance protection of the interests of donors of tissue used for research purposes. Best practice already obliges researchers to comply with a range of legal and ethical obligations, with particular focus on informed consent and research transparency. A number of lawsuits relating to research use of human tissue emphasise the central importance of informed consent to donors. Informed consent of communities, as well as individuals, becomes essential when engaging in research with indigenous peoples. Increasingly genetic researchers are adopting participatory governance as a model for working with communities to develop culturally appropriate genetic studies that address health problems that are priorities for the communities involved. The transparency of the participatory governance model means that participants feel that their autonomy is respected and that their interests are being represented throughout the research process. The question of ownership of samples becomes irrelevant as control is codified through alternative mechanisms.

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Year:  2013        PMID: 24597380

Source DB:  PubMed          Journal:  J Law Med        ISSN: 1320-159X


  1 in total

1.  Genomics in research and health care with Aboriginal and Torres Strait Islander peoples.

Authors:  Rebekah McWhirter; Dianne Nicol; Julian Savulescu
Journal:  Monash Bioeth Rev       Date:  2015 Jun-Sep
  1 in total

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