Literature DB >> 24596475

Ethics challenges of transition from paediatric to adult health care services for young adults with neurodevelopmental disabilities.

Eric Racine1, Emily Bell2, Allison Yan3, Gail Andrew4, Lorraine E Bell5, Margaret Clarke6, Veljko Dubljevic2, Dan Goldowitz7, Annie Janvier8, Kaitlyn McLachlan9, Nazeem Muhajarine10, David Nicholas11, Maryam Oskoui12, Carmen Rasmussen9, Lisa Anne Rasmussen13, Wendy Roberts14, Michael Shevell15, Lucie Wade16, Jerome Y Yager17.   

Abstract

Entities:  

Year:  2014        PMID: 24596475      PMCID: PMC3941669          DOI: 10.1093/pch/19.2.65

Source DB:  PubMed          Journal:  Paediatr Child Health        ISSN: 1205-7088            Impact factor:   2.253


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  11 in total

1.  A comparison of five transition programmes for youth with chronic illness in Canada.

Authors:  C Grant; J Pan
Journal:  Child Care Health Dev       Date:  2011-11       Impact factor: 2.508

2.  Improving mental health transitions for young people with autism spectrum disorder.

Authors:  H McConachie; S Hoole; A S Le Couteur
Journal:  Child Care Health Dev       Date:  2011-11       Impact factor: 2.508

3.  Crossing the transition chasm: experiences and recommendations for improving transitional care of young adults, parents and providers.

Authors:  A L van Staa; S Jedeloo; J van Meeteren; J M Latour
Journal:  Child Care Health Dev       Date:  2011-11       Impact factor: 2.508

Review 4.  What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida.

Authors:  Jessie A Binks; Wendy S Barden; Tricia A Burke; Nancy L Young
Journal:  Arch Phys Med Rehabil       Date:  2007-08       Impact factor: 3.966

Review 5.  Growing up with cerebral palsy: contemporary challenges of healthcare transition.

Authors:  Maryam Oskoui
Journal:  Can J Neurol Sci       Date:  2012-01       Impact factor: 2.104

6.  Transition from pediatric to adult health care for young adults with neurological disorders: parental perspectives.

Authors:  Heather Davies; Janet Rennick; Annette Majnemer
Journal:  Can J Neurosci Nurs       Date:  2011

7.  Ethical considerations in transition.

Authors:  Hannah Kaufman; Laurie Horricks; Miriam Kaufman
Journal:  Int J Adolesc Med Health       Date:  2010 Oct-Dec

8.  Informed consent, parental permission, and assent in pediatric practice. Committee on Bioethics, American Academy of Pediatrics.

Authors: 
Journal:  Pediatrics       Date:  1995-02       Impact factor: 7.124

9.  Perspectives of young adults with cerebral palsy on transitioning from pediatric to adult healthcare systems.

Authors:  Danaë Larivière-Bastien; Emily Bell; Annette Majnemer; Michael Shevell; Eric Racine
Journal:  Semin Pediatr Neurol       Date:  2013-06       Impact factor: 1.636

10.  Respect for autonomy in the healthcare context: observations from a qualitative study of young adults with cerebral palsy.

Authors:  E Racine; D Larivière-Bastien; E Bell; A Majnemer; M Shevell
Journal:  Child Care Health Dev       Date:  2012-11-30       Impact factor: 2.508

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  10 in total

1.  Preferences for the research use of electronic health records among young adults with fragile X syndrome or autism spectrum disorder.

Authors:  Laura Wagner; MaryKate Frisch; Lauren Turner-Brown; Sara Andrews; Anne Edwards; Rebecca Moultrie; Alexandra Alvarez Rivas; Anne Wheeler; Melissa Raspa
Journal:  Disabil Health J       Date:  2020-04-08       Impact factor: 2.554

2.  The interface between child/adolescent and adult mental health services: results from a European 28-country survey.

Authors:  Giulia Signorini; Swaran P Singh; Vlatka Boricevic Marsanic; Gwen Dieleman; Katarina Dodig-Ćurković; Tomislav Franic; Suzanne E Gerritsen; James Griffin; Athanasios Maras; Fiona McNicholas; Lesley O'Hara; Diane Purper-Ouakil; Moli Paul; Frederick Russet; Paramala Santosh; Ulrike Schulze; Cathy Street; Sabine Tremmery; Helena Tuomainen; Frank Verhulst; Jane Warwick; Giovanni de Girolamo
Journal:  Eur Child Adolesc Psychiatry       Date:  2018-01-24       Impact factor: 4.785

3.  Diethylhexyl phthalate induces teratogenic effects through oxidative stress response in a chick embryo model.

Authors:  Ge Song; Rui Wang; Yi Cui; Chan Juan Hao; Hong-Fei Xia; Xu Ma
Journal:  Toxicol Res (Camb)       Date:  2020-09-04       Impact factor: 3.524

Review 4.  Consensus guideline for the diagnosis and treatment of aromatic l-amino acid decarboxylase (AADC) deficiency.

Authors:  Tessa Wassenberg; Marta Molero-Luis; Kathrin Jeltsch; Georg F Hoffmann; Birgit Assmann; Nenad Blau; Angeles Garcia-Cazorla; Rafael Artuch; Roser Pons; Toni S Pearson; Vincenco Leuzzi; Mario Mastrangelo; Phillip L Pearl; Wang Tso Lee; Manju A Kurian; Simon Heales; Lisa Flint; Marcel Verbeek; Michèl Willemsen; Thomas Opladen
Journal:  Orphanet J Rare Dis       Date:  2017-01-18       Impact factor: 4.123

5.  A systematic review of the literature on ethical aspects of transitional care between child- and adult-orientated health services.

Authors:  Moli Paul; Lesley O'Hara; Priya Tah; Cathy Street; Athanasios Maras; Diane Purper Ouakil; Paramala Santosh; Giulia Signorini; Swaran Preet Singh; Helena Tuomainen; Fiona McNicholas
Journal:  BMC Med Ethics       Date:  2018-07-18       Impact factor: 2.652

6.  Protocol for a scoping review about ethics in transition programmes for adolescents and young adults with neurodisabilities.

Authors:  Aline Bogossian; Jan Willem Gorter; Eric Racine
Journal:  BMJ Open       Date:  2018-08-17       Impact factor: 2.692

Review 7.  Psychological Interventions for Individuals With Acquired Brain Injury, Cerebral Palsy, and Spina Bifida: A Scoping Review.

Authors:  Morgan Jefferies; Taylor Peart; Laure Perrier; Andrea Lauzon; Sarah Munce
Journal:  Front Pediatr       Date:  2022-03-21       Impact factor: 3.418

Review 8.  Advances in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: A Practical Approach to Transition Program Design: A Scientific Statement From the American Heart Association.

Authors:  Anitha S John; Jamie L Jackson; Philip Moons; Karen Uzark; Andrew S Mackie; Susan Timmins; Keila N Lopez; Adrienne H Kovacs; Michelle Gurvitz
Journal:  J Am Heart Assoc       Date:  2022-03-17       Impact factor: 6.106

9.  Transition of Chronic Pediatric Nephrological Patients to Adult Care Excluding Patients on Renal Replacement Therapy with Literature Review.

Authors:  Mirjam Močnik; Sonja Golob Jančič; Nataša Marčun Varda
Journal:  Children (Basel)       Date:  2022-06-26

10.  Transitioning in hydrocephalus: Current practices in Canadian Paediatric Neurosurgery centres.

Authors:  Navneet Singh; Patrick J McDonald
Journal:  Paediatr Child Health       Date:  2018-03-19       Impact factor: 2.253

  10 in total

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