Literature DB >> 24594560

A shared e-decision support portal for pediatric asthma.

Alexander G Fiks1, Stephanie Mayne, Dean J Karavite, Elena DeBartolo, Robert W Grundmeier.   

Abstract

We describe the user-centered development of an electronic medical record-based portal, "MyAsthma," designed to facilitate shared decision making in pediatric asthma. Interviews and focus groups with 7 parents of children with asthma and 51 clinical team members elicited 2 overarching requirements: that the portal should support sustained communication and ensure patient safety. Parents and clinicians prioritized features including collecting parent and child concerns and goals; symptom, side effect, and medication adherence tracking with decision support; and accessible educational materials. Iterative usability testing refined the system. MyAsthma provides a model for using technology to foster shared decision making in ambulatory care settings.

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Year:  2014        PMID: 24594560      PMCID: PMC4189083          DOI: 10.1097/JAC.0000000000000025

Source DB:  PubMed          Journal:  J Ambul Care Manage        ISSN: 0148-9917


  9 in total

1.  Medicare and Medicaid programs; electronic health record incentive program. Final rule.

Authors: 
Journal:  Fed Regist       Date:  2010-07-28

2.  Usability testing finds problems for novice users of pediatric portals.

Authors:  Maria T Britto; Holly B Jimison; Jennifer Knopf Munafo; Jennifer Wissman; Michelle L Rogers; William Hersh
Journal:  J Am Med Inform Assoc       Date:  2009-06-30       Impact factor: 4.497

3.  Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango).

Authors:  C Charles; A Gafni; T Whelan
Journal:  Soc Sci Med       Date:  1997-03       Impact factor: 4.634

4.  Shared decision-making in pediatrics: a national perspective.

Authors:  Alexander G Fiks; A Russell Localio; Evaline A Alessandrini; David A Asch; James P Guevara
Journal:  Pediatrics       Date:  2010-07-12       Impact factor: 7.124

Review 5.  Comparative effectiveness research using the electronic medical record: an emerging area of investigation in pediatric primary care.

Authors:  Alexander G Fiks; Robert W Grundmeier; Benyamin Margolis; Louis M Bell; Jennifer Steffes; James Massey; Richard C Wasserman
Journal:  J Pediatr       Date:  2012-02-24       Impact factor: 4.406

6.  Shared decision-making and health care expenditures among children with special health care needs.

Authors:  Alexander G Fiks; Stephanie Mayne; A Russell Localio; Evaline A Alessandrini; James P Guevara
Journal:  Pediatrics       Date:  2011-12-19       Impact factor: 7.124

Review 7.  Designing computerized decision support that works for clinicians and families.

Authors:  Alexander G Fiks
Journal:  Curr Probl Pediatr Adolesc Health Care       Date:  2011-03

8.  Summary health statistics for U.S. children: National Health Interview Survey, 2010.

Authors:  Barbara Bloom; Robin A Cohen; Gulnur Freeman
Journal:  Vital Health Stat 10       Date:  2011-12

9.  A demonstration of shared decision making in primary care highlights barriers to adoption and potential remedies.

Authors:  Mark W Friedberg; Kristin Van Busum; Richard Wexler; Megan Bowen; Eric C Schneider
Journal:  Health Aff (Millwood)       Date:  2013-02       Impact factor: 6.301

  9 in total
  20 in total

1.  Sharing of ADHD Information between Parents and Teachers Using an EHR-Linked Application.

Authors:  Jeremy J Michel; Stephanie Mayne; Robert W Grundmeier; James P Guevara; Nathan J Blum; Thomas J Power; Emily Coffin; Jeffrey M Miller; Alexander G Fiks
Journal:  Appl Clin Inform       Date:  2018-12-19       Impact factor: 2.342

2.  Assessing the Safety of Custom Web-Based Clinical Decision Support Systems in Electronic Health Records: A Case Study.

Authors:  Jeritt G Thayer; Jeffrey M Miller; Alexander G Fiks; Linda Tague; Robert W Grundmeier
Journal:  Appl Clin Inform       Date:  2019-04-03       Impact factor: 2.342

3.  Antenatal and neonatal antecedents of learning limitations in 10-year old children born extremely preterm.

Authors:  Alan Leviton; Robert M Joseph; Elizabeth N Allred; T Michael O'Shea; Karl K C Kuban
Journal:  Early Hum Dev       Date:  2018-02-07       Impact factor: 2.079

4.  Parent-reported outcomes of a shared decision-making portal in asthma: a practice-based RCT.

Authors:  Alexander G Fiks; Stephanie L Mayne; Dean J Karavite; Andrew Suh; Ryan O'Hara; A Russell Localio; Michelle Ross; Robert W Grundmeier
Journal:  Pediatrics       Date:  2015-03-09       Impact factor: 7.124

5.  Physician Perception of the Role of the Patient Portal in Pediatric Health.

Authors:  Ruth A Bush; Cynthia D Connelly; Alexa Pérez; Neilson Chan; Cynthia Kuelbs; George J Chiang
Journal:  J Ambul Care Manage       Date:  2017 Jul/Sep

6.  Exploring perceptions and use of the electronic health record by parents of children with autism spectrum disorder: A qualitative study.

Authors:  Ruth A Bush; Aubyn C Stahmer; Cynthia D Connelly
Journal:  Health Informatics J       Date:  2015-05-18       Impact factor: 2.681

7.  Implementation of the Integrated Electronic Patient Portal in the Pediatric Population: A Systematic Review.

Authors:  Ruth A Bush; Cynthia D Connelly; Martha Fuller; Alexa Pérez
Journal:  Telemed J E Health       Date:  2015-08-10       Impact factor: 3.536

8.  Asthma Academy: Developing educational technology to improve Asthma medication adherence and intervention efficiency.

Authors:  Aiswaria S Nair; Karen DeMuth; May D Wang
Journal:  Conf Proc IEEE Eng Med Biol Soc       Date:  2017-07

9.  Neonatal systemic inflammation and the risk of low scores on measures of reading and mathematics achievement at age 10 years among children born extremely preterm.

Authors:  Alan Leviton; Olaf Dammann; Elizabeth N Allred; Robert M Joseph; Raina N Fichorova; T Michael O'Shea; Karl C K Kuban
Journal:  Int J Dev Neurosci       Date:  2018-02-02       Impact factor: 2.457

10.  Long-term Patterns of Patient Portal Use for Pediatric Patients at an Academic Medical Center.

Authors:  Bryan Steitz; Robert M Cronin; Sharon E Davis; Ellen Yan; Gretchen P Jackson
Journal:  Appl Clin Inform       Date:  2017-08-02       Impact factor: 2.342

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