Literature DB >> 24584528

Health care experiences and perceived financial impact among families of children with an autism spectrum disorder.

Benjamin Zablotsky, Luther G Kalb, Brian Freedman, Roma Vasa, Elizabeth A Stuart.   

Abstract

OBJECTIVE: The authors compared the health care experiences of families raising a child with autism spectrum disorder (ASD), an intellectual disability disorder (IDD), or attention-deficit hyperactivity disorder (ADHD).
METHODS: Children with a current diagnosis of ASD (N=3,005), ADHD (N=9,662), or IDD (N=949) were identified in the 2009-2010 National Survey of Children With Special Health Care Needs. Weighted structural equation modeling was used to determine the association between family satisfaction with medical care, timeliness of care, and medical insurance coverage and the impact of the child's condition on the family's financial situation.
RESULTS: Families of children diagnosed as having ASD comorbid with either ADHD or IDD or comorbid with both conditions reported the highest levels of dissatisfaction across all health care quality variables and experienced the greatest impact on the family's financial situation.
CONCLUSIONS: The findings underscore the need for comprehensive and accessible health care services for children with ASD, particularly those with comorbid conditions.

Entities:  

Mesh:

Year:  2014        PMID: 24584528      PMCID: PMC4384426          DOI: 10.1176/appi.ps.201200552

Source DB:  PubMed          Journal:  Psychiatr Serv        ISSN: 1075-2730            Impact factor:   3.084


  13 in total

1.  A survey of autism knowledge in a health care setting.

Authors:  Amanda D Heidgerken; Gary Geffken; Avani Modi; Laura Frakey
Journal:  J Autism Dev Disord       Date:  2005-06

2.  How many doctors does it take to make an autism spectrum diagnosis?

Authors:  Robin P Goin-Kochel; Virginia H Mackintosh; Barbara J Myers
Journal:  Autism       Date:  2006-09

3.  Examination of the time between first evaluation and first autism spectrum diagnosis in a population-based sample.

Authors:  Lisa D Wiggins; Jon Baio; Catherine Rice
Journal:  J Dev Behav Pediatr       Date:  2006-04       Impact factor: 2.225

4.  Autism spectrum disorder screening and management practices among general pediatric providers.

Authors:  Susan Dosreis; Courtney L Weiner; Lakeshia Johnson; Craig J Newschaffer
Journal:  J Dev Behav Pediatr       Date:  2006-04       Impact factor: 2.225

5.  Exclusions and limitations in children's behavioral health care coverage.

Authors:  Pamela B Peele; Judith R Lave; Kelly J Kelleher
Journal:  Psychiatr Serv       Date:  2002-05       Impact factor: 3.084

6.  Mothers supporting children with autistic spectrum disorders: social support, mental health status and satisfaction with services.

Authors:  Jo Bromley; Dougal Julian Hare; Kerry Davison; Eric Emerson
Journal:  Autism       Date:  2004-12

7.  Financial and employment problems in families of children with special health care needs: implications for research and practice.

Authors:  Wendy S Looman; Susan K O'Conner-Von; Gabriela J Ferski; Debra A Hildenbrand
Journal:  J Pediatr Health Care       Date:  2008-04-18       Impact factor: 1.812

8.  Understanding factors associated with work loss for families caring for CSHCN.

Authors:  Megumi J Okumura; Jeanne Van Cleave; Sangeeth Gnanasekaran; Amy Houtrow
Journal:  Pediatrics       Date:  2009-12       Impact factor: 7.124

9.  A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005-2006.

Authors:  Michael D Kogan; Bonnie B Strickland; Stephen J Blumberg; Gopal K Singh; James M Perrin; Peter C van Dyck
Journal:  Pediatrics       Date:  2008-12       Impact factor: 7.124

10.  Psychiatric-related emergency department visits among children with an autism spectrum disorder.

Authors:  Luther G Kalb; Elizabeth A Stuart; Brian Freedman; Benjamin Zablotsky; Roma Vasa
Journal:  Pediatr Emerg Care       Date:  2012-12       Impact factor: 1.454

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  10 in total

1.  Integrating Measurement-Based Care into Treatment for Autism Spectrum Disorder: Insights from a Community Clinic.

Authors:  Tyler C McFayden; Alyssa J Gatto; Angela V Dahiya; Ligia Antezana; Yasuo Miyazaki; Lee D Cooper
Journal:  J Autism Dev Disord       Date:  2021-01-02

2.  Brief Report: Factors Influencing Healthcare Satisfaction in Adults with Autism Spectrum Disorder.

Authors:  Alan H Gerber; Carolyn E B McCormick; Todd P Levine; Eric M Morrow; Thomas F Anders; Stephen J Sheinkopf
Journal:  J Autism Dev Disord       Date:  2017-06

3.  The Transition to the Adult Health Care System Among Youths With Autism Spectrum Disorder.

Authors:  Robert A Nathenson; Benjamin Zablotsky
Journal:  Psychiatr Serv       Date:  2017-03-15       Impact factor: 3.084

4.  Spirituality to build resilience in primary caregiver parents of children with autism spectrum disorders: a cross-country experiment.

Authors:  Samta P Pandya
Journal:  Int J Dev Disabil       Date:  2016-08-22

5.  Parenting Stress and Resilience in Parents of Children With Autism Spectrum Disorder (ASD) in Southeast Asia: A Systematic Review.

Authors:  Kartini Ilias; Kim Cornish; Auretta S Kummar; Miriam Sang-Ah Park; Karen J Golden
Journal:  Front Psychol       Date:  2018-04-09

Review 6.  Characterizing the Interplay Between Autism Spectrum Disorder and Comorbid Medical Conditions: An Integrative Review.

Authors:  Charlotte Tye; Abigail K Runicles; Andrew J O Whitehouse; Gail A Alvares
Journal:  Front Psychiatry       Date:  2019-01-23       Impact factor: 4.157

Review 7.  A Bibliometric Insight of Genetic Factors in ASD: Emerging Trends and New Developments.

Authors:  Kang Wang; Weicheng Duan; Yijie Duan; Yuxin Yu; Xiuyi Chen; Yinhui Xu; Haihong Chen; Hongzhi Huang; Bo Xiong
Journal:  Brain Sci       Date:  2020-12-31

8.  Comparison of unmet health care needs in children with intellectual disability, autism spectrum disorder and both disorders combined.

Authors:  K Haller; A Stolfi; J Duby
Journal:  J Intellect Disabil Res       Date:  2022-03-31

9.  Mental Health and Resilient Coping in Caregivers of Autistic Individuals during the COVID-19 Pandemic: Findings from the Families Facing COVID Study.

Authors:  Kelsey A Friesen; Jonathan A Weiss; Stephanie J Howe; Connor M Kerns; Carly A McMorris
Journal:  J Autism Dev Disord       Date:  2021-07-08

Review 10.  Pediatric Consultation-Liaison Psychiatry: An Update and Review.

Authors:  Jessica E Becker; Joshua R Smith; Eric P Hazen
Journal:  Psychosomatics       Date:  2020-04-25       Impact factor: 2.386

  10 in total

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