Literature DB >> 24561078

Consumer-mediated health information exchanges: the 2012 ACMI debate.

James J Cimino1, Mark E Frisse2, John Halamka3, Latanya Sweeney4, William Yasnoff5.   

Abstract

The American College of Medical Informatics (ACMI) sponsors periodic debates during the American Medical Informatics Fall Symposium to highlight important informatics issues of broad interest. In 2012, a panel debated the following topic: "Resolved: Health Information Exchange Organizations Should Shift Their Principal Focus to Consumer-Mediated Exchange in Order to Facilitate the Rapid Development of Effective, Scalable, and Sustainable Health Information Infrastructure." Those supporting the proposition emphasized the need for consumer-controlled community repositories of electronic health records (health record banks) to address privacy, stakeholder cooperation, scalability, and sustainability. Those opposing the proposition emphasized that the current healthcare environment is so complex that development of consumer control will take time and that even then, consumers may not be able to mediate their information effectively. While privately each discussant recognizes that there are many sides to this complex issue, each followed the debater's tradition of taking an extreme position in order emphasize some of the polarizing aspects in the short time allotted them. In preparing this summary, we sought to convey the substance and spirit of the debate in printed form. Transcripts of the actual debate were edited for clarity, and appropriate supporting citations were added for the further edification of the reader. Published by Elsevier Inc.

Entities:  

Keywords:  Health information exchange; Personal health record

Mesh:

Year:  2014        PMID: 24561078      PMCID: PMC5514840          DOI: 10.1016/j.jbi.2014.02.009

Source DB:  PubMed          Journal:  J Biomed Inform        ISSN: 1532-0464            Impact factor:   6.317


  5 in total

1.  Patients' rights of access to their own medical records: the need for new law.

Authors:  Barbara L Kaiser
Journal:  Buffalo Law Rev       Date:  1975

2.  Occupational Health Information Exchange.

Authors:  D H BYERS
Journal:  Public Health Rep       Date:  1957-12       Impact factor: 2.792

3.  A survey of health information exchange organizations in the United States: implications for meaningful use.

Authors:  Julia Adler-Milstein; David W Bates; Ashish K Jha
Journal:  Ann Intern Med       Date:  2011-05-17       Impact factor: 25.391

4.  From the Office of the National Coordinator: the strategy for advancing the exchange of health information.

Authors:  Claudia Williams; Farzad Mostashari; Kory Mertz; Emily Hogin; Parmeeth Atwal
Journal:  Health Aff (Millwood)       Date:  2012-03       Impact factor: 6.301

5.  Putting health IT on the path to success.

Authors:  William A Yasnoff; Latanya Sweeney; Edward H Shortliffe
Journal:  JAMA       Date:  2013-03-13       Impact factor: 56.272

  5 in total
  3 in total

1.  The invisible work of personal health information management among people with multiple chronic conditions: qualitative interview study among patients and providers.

Authors:  Jessica S Ancker; Holly O Witteman; Baria Hafeez; Thierry Provencher; Mary Van de Graaf; Esther Wei
Journal:  J Med Internet Res       Date:  2015-06-04       Impact factor: 5.428

2.  Blockchain-Based Architecture Design for Personal Health Record: Development and Usability Study.

Authors:  Thiago Bulhões da Silva Costa; Lucas Shinoda; Ramon Alfredo Moreno; Jose E Krieger; Marco Gutierrez
Journal:  J Med Internet Res       Date:  2022-04-13       Impact factor: 7.076

Review 3.  Definitions, components and processes of data harmonisation in healthcare: a scoping review.

Authors:  Bey-Marrié Schmidt; Christopher J Colvin; Ameer Hohlfeld; Natalie Leon
Journal:  BMC Med Inform Decis Mak       Date:  2020-09-14       Impact factor: 2.796

  3 in total

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