Literature DB >> 24560226

National electronic health records and the digital disruption of moral orders.

Karin Garrety1, Ian McLoughlin2, Rob Wilson3, Gregor Zelle4, Mike Martin5.   

Abstract

The digitalisation of patient health data to provide national electronic health record systems (NEHRS) is a major objective of many governments. Proponents claim that NEHRS will streamline care, reduce mistakes and cut costs. However, building these systems has proved highly problematic. Using recent developments in Australia as an example, we argue that a hitherto unexamined source of difficulty concerns the way NEHRS disrupt the moral orders governing the production, ownership, use of and responsibility for health records. Policies that pursue digitalisation as a self-evident 'solution' to problems in healthcare without due regard to these disruptions risk alienating key stakeholders. We propose a more emergent approach to the development and implementation of NEHRS that supports moral re-ordering around rights and responsibilities appropriate to the intentions of those involved in healthcare relationships. Crown
Copyright © 2013. Published by Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  Australia; Digital disruption; Moral order; National electronic health record systems; Personal control; Policy; Responsibilities; Rights

Mesh:

Year:  2013        PMID: 24560226     DOI: 10.1016/j.socscimed.2013.11.029

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  10 in total

1.  The social licence for research: why care.data ran into trouble.

Authors:  Pam Carter; Graeme T Laurie; Mary Dixon-Woods
Journal:  J Med Ethics       Date:  2015-01-23       Impact factor: 2.903

2.  Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme.

Authors:  Mhairi Aitken; Sarah Cunningham-Burley; Claudia Pagliari
Journal:  Sci Public Policy       Date:  2016-05-11

3.  Investigating the Extent to Which Patients Should Control Access to Patient Records for Research: A Deliberative Process Using Citizens' Juries.

Authors:  Mary P Tully; Kyle Bozentko; Sarah Clement; Amanda Hunn; Lamiece Hassan; Ruth Norris; Malcolm Oswald; Niels Peek
Journal:  J Med Internet Res       Date:  2018-03-28       Impact factor: 5.428

4.  The anatomy of electronic patient record ethics: a framework to guide design, development, implementation, and use.

Authors:  Tim Jacquemard; Colin P Doherty; Mary B Fitzsimons
Journal:  BMC Med Ethics       Date:  2021-02-04       Impact factor: 2.652

5.  Consensus Statement on Public Involvement and Engagement with Data Intensive Health Research.

Authors:  Mhairi Aitken; Mary P Tully; Carol Porteous; Simon Denegri; Sarah Cunningham-Burley; Natalie Banner; Corri Black; Michael Burgess; Lynsey Cross; Johannes Jm van Delden; Elizabeth Ford; Sarah Fox; Natalie K Fitzpatrick; Kay Gallacher; Catharine Goddard; Lamiece Hassan; Ron Jamieson; Kerina H Jones; Minna Kaarakainen; Fiona Lugg-Widger; Kimberlyn McGrail; Anne McKenzie; Rosalyn Moran; Madeleine J Murtagh; Malcolm Oswald; Alison Paprica; Nicola Perrin; Emma Victoria Richards; John Rouse; Joanne Webb; Donald J Willison
Journal:  Int J Popul Data Sci       Date:  2019-02-12

6.  Differences that matter: developing critical insights into discourses of patient-centeredness.

Authors:  Bettine Pluut
Journal:  Med Health Care Philos       Date:  2016-12

7.  Mortality, morbidity and health in developed societies: a review of data sources.

Authors:  Guillaume Wunsch; Catherine Gourbin
Journal:  Genus       Date:  2018-01-29

8.  Public preferences regarding data linkage for research: a discrete choice experiment comparing Scotland and Sweden.

Authors:  Mary P Tully; Cecilia Bernsten; Mhairi Aitken; Caroline Vass
Journal:  BMC Med Inform Decis Mak       Date:  2020-06-16       Impact factor: 2.796

9.  Public Preferences regarding Data Linkage for Health Research: A Discrete Choice Experiment.

Authors:  Mhairi Aitken; Gareth McAteer; Sara Davidson; Clive Frostick; Sarah Cunningham-Burley
Journal:  Int J Popul Data Sci       Date:  2018-06-26

10.  Examination and diagnosis of electronic patient records and their associated ethics: a scoping literature review.

Authors:  Tim Jacquemard; Colin P Doherty; Mary B Fitzsimons
Journal:  BMC Med Ethics       Date:  2020-08-24       Impact factor: 2.652

  10 in total

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