Literature DB >> 24554777

Improving medical decisions for incapacitated persons: does focusing on "accurate predictions" lead to an inaccurate picture?

Scott Y H Kim1.   

Abstract

The Patient Preference Predictor (PPP) proposal places a high priority on the accuracy of predicting patients' preferences and finds the performance of surrogates inadequate. However, the quest to develop a highly accurate, individualized statistical model has significant obstacles. First, it will be impossible to validate the PPP beyond the limit imposed by 60%-80% reliability of people's preferences for future medical decisions--a figure no better than the known average accuracy of surrogates. Second, evidence supports the view that a sizable minority of persons may not even have preferences to predict. Third, many, perhaps most, people express their autonomy just as much by entrusting their loved ones to exercise their judgment than by desiring to specifically control future decisions. Surrogate decision making faces none of these issues and, in fact, it may be more efficient, accurate, and authoritative than is commonly assumed.

Entities:  

Keywords:  advance directive; decisional capacity; end of life decision making; surrogate

Mesh:

Year:  2014        PMID: 24554777      PMCID: PMC4047281          DOI: 10.1093/jmp/jhu010

Source DB:  PubMed          Journal:  J Med Philos        ISSN: 0360-5310


  22 in total

1.  Stability of elderly persons' expressed preferences regarding the use of life-sustaining treatments.

Authors:  S Carmel; E J Mutran
Journal:  Soc Sci Med       Date:  1999-08       Impact factor: 4.634

2.  Micromanaging death: process preferences, values, and goals in end-of-life medical decision making.

Authors:  Nikki Ayers Hawkins; Peter H Ditto; Joseph H Danks; William D Smucker
Journal:  Gerontologist       Date:  2005-02

Review 3.  The accuracy of surrogate decision makers: a systematic review.

Authors:  David I Shalowitz; Elizabeth Garrett-Mayer; David Wendler
Journal:  Arch Intern Med       Date:  2006-03-13

4.  How strictly do dialysis patients want their advance directives followed?

Authors:  A Sehgal; A Galbraith; M Chesney; P Schoenfeld; G Charles; B Lo
Journal:  JAMA       Date:  1992-01-01       Impact factor: 56.272

5.  Stability of choices about life-sustaining treatments.

Authors:  M Danis; J Garrett; R Harris; D L Patrick
Journal:  Ann Intern Med       Date:  1994-04-01       Impact factor: 25.391

6.  Inconsistency over time in the preferences of older persons with advanced illness for life-sustaining treatment.

Authors:  Terri R Fried; John O'Leary; Peter Van Ness; Liana Fraenkel
Journal:  J Am Geriatr Soc       Date:  2007-07       Impact factor: 5.562

7.  The stability of preferences for life-sustaining care among persons with AIDS in the Boston Health Study.

Authors:  J S Weissman; J S Haas; F J Fowler; C Gatsonis; M P Massagli; G R Seage; P Cleary
Journal:  Med Decis Making       Date:  1999 Jan-Mar       Impact factor: 2.583

8.  How should treatment decisions be made for incapacitated patients, and why?

Authors:  David I Shalowitz; Elizabeth Garrett-Mayer; David Wendler
Journal:  PLoS Med       Date:  2007-03       Impact factor: 11.069

9.  Survey of the general public's attitudes toward advance directives in Japan: how to respect patients' preferences.

Authors:  Hiroaki Miyata; Hiromi Shiraishi; Ichiro Kai
Journal:  BMC Med Ethics       Date:  2006-10-18       Impact factor: 2.652

10.  Perspectives on advance directives in Japanese society: A population-based questionnaire survey.

Authors:  Akira Akabayashi; Brian Taylor Slingsby; Ichiro Kai
Journal:  BMC Med Ethics       Date:  2003-10-31       Impact factor: 2.652

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  3 in total

1.  The Trial of Ascertaining Individual Preferences for Loved Ones' Role in End-of-Life Decisions (TAILORED) Study: A Randomized Controlled Trial to Improve Surrogate Decision Making.

Authors:  Daniel P Sulmasy; Mark T Hughes; Gayane Yenokyan; Joan Kub; Peter B Terry; Alan B Astrow; Julie A Johnson; Grace Ho; Marie T Nolan
Journal:  J Pain Symptom Manage       Date:  2017-07-14       Impact factor: 3.612

2.  Patients' priorities for treatment decision making during periods of incapacity: quantitative survey.

Authors:  Annette Rid; Robert Wesley; Mark Pavlick; Sharon Maynard; Katalin Roth; David Wendler
Journal:  Palliat Support Care       Date:  2014-10-02

3.  A Call for a Patient Preference Predictor.

Authors:  David Wendler
Journal:  Crit Care Med       Date:  2021-06-01       Impact factor: 9.296

  3 in total

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