Patricia E Hershberger1, Lorna Finnegan2, Susan Altfeld2, Sara Lake2, Jennifer Hirshfeld-Cytron3. 1. Department of Women, Children and Family Health Science, University of Illinois at Chicago, USA. phersh@uic.edu 2. Department of Women, Children and Family Health Science, University of Illinois at Chicago, USA. 3. University of Illinois at Chicago, Fertility Centers of Illinois, Chicago, USA.
Abstract
BACKGROUND: Young women with cancer now face the complex decision about whether to undergo fertility preservation. Yet little is known about how these women process information involved in making this decision. OBJECTIVE: The purpose of this article is to expand theoretical understanding of the decision-making process by examining aspects of information processing among young women diagnosed with cancer. METHODS: Using a grounded theory approach, 27 women with cancer participated in individual, semistructured interviews. Data were coded and analyzed using constant-comparison techniques that were guided by 5 dimensions within the Contemplate phase of the decision-making process framework. RESULTS: In the first dimension, young women acquired information primarily from clinicians and Internet sources. Experiential information, often obtained from peers, occurred in the second dimension. Preferences and values were constructed in the third dimension as women acquired factual, moral, and ethical information. Women desired tailored, personalized information that was specific to their situation in the fourth dimension; however, women struggled with communicating these needs to clinicians. In the fifth dimension, women offered detailed descriptions of clinician behaviors that enhance or impede decisional debriefing. CONCLUSION: Better understanding of theoretical underpinnings surrounding women's information processes can facilitate decision support and improve clinical care.
BACKGROUND: Young women with cancer now face the complex decision about whether to undergo fertility preservation. Yet little is known about how these women process information involved in making this decision. OBJECTIVE: The purpose of this article is to expand theoretical understanding of the decision-making process by examining aspects of information processing among young women diagnosed with cancer. METHODS: Using a grounded theory approach, 27 women with cancer participated in individual, semistructured interviews. Data were coded and analyzed using constant-comparison techniques that were guided by 5 dimensions within the Contemplate phase of the decision-making process framework. RESULTS: In the first dimension, young women acquired information primarily from clinicians and Internet sources. Experiential information, often obtained from peers, occurred in the second dimension. Preferences and values were constructed in the third dimension as women acquired factual, moral, and ethical information. Women desired tailored, personalized information that was specific to their situation in the fourth dimension; however, women struggled with communicating these needs to clinicians. In the fifth dimension, women offered detailed descriptions of clinician behaviors that enhance or impede decisional debriefing. CONCLUSION: Better understanding of theoretical underpinnings surrounding women's information processes can facilitate decision support and improve clinical care.
Authors: J H Chelf; P Agre; A Axelrod; L Cheney; D D Cole; K Conrad; S Hooper; I Liu; A Mercurio; K Stepan; L Villejo; C Weaver Journal: Oncol Nurs Forum Date: 2001-08 Impact factor: 2.172
Authors: Karen A Skalla; Marie Bakitas; Charlotte T Furstenberg; Tim Ahles; Joseph V Henderson Journal: Oncol Nurs Forum Date: 2004 Mar-Apr Impact factor: 2.172