Literature DB >> 24500657

Concept analysis of the patient reported outcomes measurement information system (PROMIS(®)) and the international classification of functioning, disability and health (ICF).

Carole A Tucker1, Alarcos Cieza, Anne W Riley, Gerold Stucki, Jin Shei Lai, T Bedirhan Ustun, Nenad Kostanjsek, William Riley, David Cella, Christopher B Forrest.   

Abstract

PURPOSE: The Patient Reported Outcomes Measurement Information System (PROMIS (®) ) is a US National Institutes of Health initiative that has produced self-report outcome measures, using a framework of physical, mental, and social health defined by the World Health Organization in 1948 (WHO, in Preamble to the Constitution of the World Health Organization as adopted by the International Health Conference, New York, 1948). The World Health Organization's International Classification of Functioning, Disability and Health (ICF) is a comprehensive classification system of health and health-related domains that was put forward in 2001. The purpose of this report is to compare and contrast PROMIS and ICF conceptual frameworks to support mapping of PROMIS instruments to the ICF classification system .
METHODS: We assessed the objectives and the classification schema of the PROMIS and ICF frameworks, followed by content analysis to determine whether PROMIS domain and sub-domain level health concepts can be linked to the ICF classification.
RESULTS: Both PROMIS and ICF are relevant to all individuals, irrespective of the presence of health conditions, person characteristics, or environmental factors in which persons live. PROMIS measures are intended to assess a person's experiences of his or her health, functional status, and well-being in multiple domains across physical, mental, and social dimensions. The ICF comprehensively describes human functioning from a biological, individual, and social perspective. The ICF supports classification of health and health-related states such as functioning, but is not a specific measure or assessment of health, per se. PROMIS domains and sub-domain concepts can be meaningfully mapped to ICF concepts.
CONCLUSIONS: Theoretical and conceptual similarities support the use of PROMIS instruments to operationalize self-reported measurement for many body function, activity and participation ICF concepts, as well as several environmental factor concepts. Differences observed in PROMIS and ICF conceptual frameworks provide a stimulus for future research and development.

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Year:  2014        PMID: 24500657     DOI: 10.1007/s11136-014-0622-y

Source DB:  PubMed          Journal:  Qual Life Res        ISSN: 0962-9343            Impact factor:   3.440


  14 in total

Review 1.  The ICF model of functioning and disability: incorporating quality of life and human development.

Authors:  Janette McDougall; Virginia Wright; Peter Rosenbaum
Journal:  Dev Neurorehabil       Date:  2010       Impact factor: 2.308

2.  Linking health-status measurements to the international classification of functioning, disability and health.

Authors:  Alarcos Cieza; Thomas Brockow; Thomas Ewert; Edda Amman; Barbara Kollerits; Somnath Chatterji; T Berdihan Ustün; Gerold Stucki
Journal:  J Rehabil Med       Date:  2002-09       Impact factor: 2.912

3.  The International Classification of Functioning, Disability and Health: a new tool for understanding disability and health.

Authors:  T B Ustün; S Chatterji; J Bickenbach; N Kostanjsek; M Schneider
Journal:  Disabil Rehabil       Date:  2003 Jun 3-17       Impact factor: 3.033

4.  Creating mappings for ontologies in biomedicine: simple methods work.

Authors:  Amir Ghazvinian; Natalya F Noy; Mark A Musen
Journal:  AMIA Annu Symp Proc       Date:  2009-11-14

5.  Patient-reported outcomes measurement information system (PROMIS) domain names and definitions revisions: further evaluation of content validity in IRT-derived item banks.

Authors:  William T Riley; Nan Rothrock; Bonnie Bruce; Christopher Christodolou; Karon Cook; Elizabeth A Hahn; David Cella
Journal:  Qual Life Res       Date:  2010-07-01       Impact factor: 4.147

6.  Calling a spade a spade: meaningful definitions of health conditions.

Authors:  Bedirhan T Ustün; Robert Jakob
Journal:  Bull World Health Organ       Date:  2005-11-10       Impact factor: 9.408

7.  ICF linking rules: an update based on lessons learned.

Authors:  Alarcos Cieza; Szilvia Geyh; Somnath Chatterji; Nenad Kostanjsek; Bedirhan Ustün; Gerold Stucki
Journal:  J Rehabil Med       Date:  2005-07       Impact factor: 2.912

8.  Statistical validation of the brief International Classification of Functioning, Disability and Health Core Set for osteoarthritis based on a large international sample of patients with osteoarthritis.

Authors:  Cornelia Oberhauser; Reuben Escorpizo; Annelies Boonen; Gerold Stucki; Alarcos Cieza
Journal:  Arthritis Care Res (Hoboken)       Date:  2013-02       Impact factor: 4.794

9.  Advancing PROMIS's methodology: results of the Third Patient-Reported Outcomes Measurement Information System (PROMIS(®)) Psychometric Summit.

Authors:  Adam C Carle; David Cella; Li Cai; Seung W Choi; Paul K Crane; S McKay Curtis; Jonathan Gruhl; Jin-Shei Lai; Shubhabrata Mukherjee; Steven P Reise; Jeanne A Teresi; David Thissen; Eric J Wu; Ron D Hays
Journal:  Expert Rev Pharmacoecon Outcomes Res       Date:  2011-12       Impact factor: 2.217

10.  The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years.

Authors:  David Cella; Susan Yount; Nan Rothrock; Richard Gershon; Karon Cook; Bryce Reeve; Deborah Ader; James F Fries; Bonnie Bruce; Mattias Rose
Journal:  Med Care       Date:  2007-05       Impact factor: 2.983

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  17 in total

1.  Augmenting cognitive training in older adults (The ACT Study): Design and Methods of a Phase III tDCS and cognitive training trial.

Authors:  Adam J Woods; Ronald Cohen; Michael Marsiske; Gene E Alexander; Sara J Czaja; Samuel Wu
Journal:  Contemp Clin Trials       Date:  2017-12-05       Impact factor: 2.226

2.  Linking of the quality of life in neurological disorders (Neuro-QoL) to the international classification of functioning, disability and health.

Authors:  Alex W K Wong; Stephen C L Lau; David Cella; Jin-Shei Lai; Guanli Xie; Lidian Chen; Chetwyn C H Chan; Allen W Heinemann
Journal:  Qual Life Res       Date:  2017-05-05       Impact factor: 4.147

3.  Establishing a Common Metric for Physical Function: Linking the HAQ-DI and SF-36 PF Subscale to PROMIS(®) Physical Function.

Authors:  Benjamin D Schalet; Dennis A Revicki; Karon F Cook; Eswar Krishnan; Jim F Fries; David Cella
Journal:  J Gen Intern Med       Date:  2015-10       Impact factor: 5.128

4.  Initial constructs for patient-centered outcome measures to evaluate brain-computer interfaces.

Authors:  Elena M Andresen; Melanie Fried-Oken; Betts Peters; Donald L Patrick
Journal:  Disabil Rehabil Assist Technol       Date:  2015-03-25

5.  Measuring PROMIS® Global Health in Early Childhood.

Authors:  Michael A Kallen; Jin-Shei Lai; Courtney K Blackwell; Julia R Schuchard; Christopher B Forrest; Lauren S Wakschlag; David Cella
Journal:  J Pediatr Psychol       Date:  2022-05-13

6.  Disability Related to Chronic Graft-versus-Host Disease.

Authors:  Betty K Hamilton; Barry E Storer; William A Wood; Joseph A Pidala; Corey S Cutler; Paul J Martin; George Chen; Mary E Flowers; Stephanie J Lee
Journal:  Biol Blood Marrow Transplant       Date:  2019-10-24       Impact factor: 5.742

7.  Mapping the content of the Patient-Reported Outcomes Measurement Information System (PROMIS®) using the International Classification of Functioning, Health and Disability.

Authors:  Carole A Tucker; Reuben Escorpizo; Alarcos Cieza; Jin Shei Lai; Gerold Stucki; T Bedirhan Ustun; Nenad Kostanjsek; David Cella; Christopher B Forrest
Journal:  Qual Life Res       Date:  2014-04-24       Impact factor: 4.147

8.  Towards an ICF-based self-report questionnaire for people with skeletal dysplasia to study health, functioning, disability and accessibility.

Authors:  Heidi Anttila; Susanna Tallqvist; Minna Muñoz; Sanna Leppäjoki-Tiistola; Outi Mäkitie; Sinikka Hiekkala
Journal:  Orphanet J Rare Dis       Date:  2021-05-22       Impact factor: 4.123

9.  Participation of Children with Disabilities in Taiwan: The Gap between Independence and Frequency.

Authors:  Ai-Wen Hwang; Chia-Feng Yen; Tsan-Hon Liou; Rune J Simeonsson; Wen-Chou Chi; Donald J Lollar; Hua-Fang Liao; Lin-Ju Kang; Ting-Fang Wu; Sue-Wen Teng; Wen-Ta Chiu
Journal:  PLoS One       Date:  2015-05-11       Impact factor: 3.240

10.  In search of an integrative measure of functioning.

Authors:  Rosamond H Madden; Nick Glozier; Nicola Fortune; Maree Dyson; John Gilroy; Anita Bundy; Gwynnyth Llewellyn; Luis Salvador-Carulla; Sue Lukersmith; Elias Mpofu; Richard Madden
Journal:  Int J Environ Res Public Health       Date:  2015-05-26       Impact factor: 3.390

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