INTRODUCTION: Congenital adrenal hyperplasia (CAH) is a group of autosomal recessively inherited disorders with significant morbidity. The long-term implications result in immense psychological stress to the parents. This study assessing the psychological impact on the parents is a first in Sri Lanka and one of the few worldwide. OBJECTIVE: Document the presence of depressive symptoms in parents of children with CAH. DESIGN: Study participants were 37 parents of children diagnosed with CAH who were attending an endocrinology clinic of the largest children's hospital in Sri Lanka. Centre for Epidemiological Studies-Depression scale (CES-D), a psychometrically sound scale for assessing depressive symptomatology, was used. RESULTS: The study classified 59% of the parents as being affected, and the psychological impact on them did not reduce with time. CONCLUSION: Parents of children with CAH demonstrated symptoms of depression that did not abate with the passage of time.
INTRODUCTION:Congenital adrenal hyperplasia (CAH) is a group of autosomal recessively inherited disorders with significant morbidity. The long-term implications result in immense psychological stress to the parents. This study assessing the psychological impact on the parents is a first in Sri Lanka and one of the few worldwide. OBJECTIVE: Document the presence of depressive symptoms in parents of children with CAH. DESIGN: Study participants were 37 parents of children diagnosed with CAH who were attending an endocrinology clinic of the largest children's hospital in Sri Lanka. Centre for Epidemiological Studies-Depression scale (CES-D), a psychometrically sound scale for assessing depressive symptomatology, was used. RESULTS: The study classified 59% of the parents as being affected, and the psychological impact on them did not reduce with time. CONCLUSION: Parents of children with CAH demonstrated symptoms of depression that did not abate with the passage of time.
Authors: Peter James B Abad; Cora A Anonuevo; Sandra Daack-Hirsch; Lorna R Abad; Carmencita D Padilla; Mercy Y Laurino Journal: J Genet Couns Date: 2016-11-10 Impact factor: 2.537
Authors: Hedi L Claahsen-van der Grinten; Phyllis W Speiser; S Faisal Ahmed; Wiebke Arlt; Richard J Auchus; Henrik Falhammar; Christa E Flück; Leonardo Guasti; Angela Huebner; Barbara B M Kortmann; Nils Krone; Deborah P Merke; Walter L Miller; Anna Nordenström; Nicole Reisch; David E Sandberg; Nike M M L Stikkelbroeck; Philippe Touraine; Agustini Utari; Stefan A Wudy; Perrin C White Journal: Endocr Rev Date: 2022-01-12 Impact factor: 19.871