Literature DB >> 24453757

Clinical management of multiple sclerosis through home telehealth monitoring: results of a pilot project.

Aaron P Turner1, Mitchell T Wallin1, Alicia Sloan1, Heidi Maloni1, Robert Kane1, Lore Martz1, Jodie K Haselkorn1.   

Abstract

This study examined the feasibility of using home telehealth monitoring to improve clinical care and promote symptom self-management among veterans with multiple sclerosis (MS). This was a longitudinal cohort study linking mailed survey data at baseline and 6-month follow-up with information from home telehealth monitors. The study was conducted in two large Department of Veterans Affairs (VA) MS clinics in Seattle, Washington, and Washington, DC, and involved 41 veterans with MS. The measures were demographic information and data from a standardized question set using a home telehealth monitor. Participants reported moderate levels of disability (median Expanded Disability Status Scale [EDSS] score, 6.5) and substantial distance from the nearest VA MS clinic (mean distance, 93.6 miles). Of the participants, 61.0% reported current use of MS disease-modifying treatments. A total of 85.4% of participants provided consistent data from home monitoring. Overall satisfaction with home telehealth monitoring was high, with 87.5% of participants rating their experience as good or better. The most frequently reported symptoms at month 1 were fatigue (95.1%), depression (78.0%), and pain (70.7%). All symptoms were reported less frequently by month 6, with the greatest reduction in depression (change of 23.2 percentage points), although these changes were not statistically significant. Home telehealth monitoring is a promising tool for the management of chronic disease, although substantial practical barriers to efficient implementation remain.

Entities:  

Year:  2013        PMID: 24453757      PMCID: PMC3883035          DOI: 10.7224/1537-2073.2012-012

Source DB:  PubMed          Journal:  Int J MS Care        ISSN: 1537-2073


  24 in total

Review 1.  The role of patient care teams in chronic disease management.

Authors:  E H Wagner
Journal:  BMJ       Date:  2000-02-26

2.  Integrated multiple sclerosis care: new approaches and paradigm shifts.

Authors:  Mitchell T Wallin
Journal:  J Rehabil Res Dev       Date:  2010

3.  Implementation of health information technology in Veterans Health Administration to support transformational change: telehealth and personal health records.

Authors:  Neale R Chumbler; David Haggstrom; Jason J Saleem
Journal:  Med Care       Date:  2011-12       Impact factor: 2.983

4.  Psychosocial outcomes of telephone-based counseling for adults with an acquired physical disability: A meta-analysis.

Authors:  D S Dorstyn; J L Mathias; L A Denson
Journal:  Rehabil Psychol       Date:  2011-02

5.  Depressive symptoms and severity of illness in multiple sclerosis: epidemiologic study of a large community sample.

Authors:  Lydia Chwastiak; Dawn M Ehde; Laura E Gibbons; Mark Sullivan; James D Bowen; George H Kraft
Journal:  Am J Psychiatry       Date:  2002-11       Impact factor: 18.112

6.  Telemedicine for multiple sclerosis patients: assessment using Health Value Compass.

Authors:  Keren Zissman; Izabella Lejbkowicz; Ariel Miller
Journal:  Mult Scler       Date:  2011-09-30       Impact factor: 6.312

7.  Quality of life among persons with multiple sclerosis and their caregivers.

Authors:  K J Aronson
Journal:  Neurology       Date:  1997-01       Impact factor: 9.910

8.  Prevalence and impact of pain in multiple sclerosis: physical and psychologic contributors.

Authors:  Adam T Hirsh; Aaron P Turner; Dawn M Ehde; Jodie K Haselkorn
Journal:  Arch Phys Med Rehabil       Date:  2009-04       Impact factor: 3.966

9.  Care Coordination/Home Telehealth: the systematic implementation of health informatics, home telehealth, and disease management to support the care of veteran patients with chronic conditions.

Authors:  Adam Darkins; Patricia Ryan; Rita Kobb; Linda Foster; Ellen Edmonson; Bonnie Wakefield; Anne E Lancaster
Journal:  Telemed J E Health       Date:  2008-12       Impact factor: 3.536

Review 10.  Telemedicine and the delivery of health services to veterans with multiple sclerosis.

Authors:  Michael Hatzakis; Jodie Haselkorn; Rhonda Williams; Aaron Turner; Paul Nichol
Journal:  J Rehabil Res Dev       Date:  2003 May-Jun
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  6 in total

1.  Repeated sugammadex usage in a patient with multiple sclerosis: a case report.

Authors:  Nadir Sinikoglu; Tolga Totoz; Funda Gumus; Onur Karagulle
Journal:  Wien Klin Wochenschr       Date:  2015-01-14       Impact factor: 1.704

2.  Telemedicine for Monitoring MS Activity and Progression.

Authors:  Nuria Sola-Valls; Yolanda Blanco; Maria Sepúlveda; Eugenia Martinez-Hernandez; Albert Saiz
Journal:  Curr Treat Options Neurol       Date:  2015-11       Impact factor: 3.598

3.  Practicing in a Pandemic: A Clinician's Guide to Remote Neurologic Care.

Authors:  Christopher G Tarolli; Julia M Biernot; Peter D Creigh; Emile Moukheiber; Rachel Marie E Salas; E Ray Dorsey; Adam B Cohen
Journal:  Neurol Clin Pract       Date:  2021-04

Review 4.  Telehealth in Multiple Sclerosis Clinical Care and Research.

Authors:  Xinran Maria Xiang; Jacqueline Bernard
Journal:  Curr Neurol Neurosci Rep       Date:  2021-02-28       Impact factor: 5.081

5.  Patient and health care professional perspectives on using telehealth to deliver pulmonary rehabilitation.

Authors:  J A Inskip; H Novak Lauscher; L C Li; G A Dumont; A Garde; K Ho; A M Hoens; J D Road; C J Ryerson; P G Camp
Journal:  Chron Respir Dis       Date:  2017-06-01       Impact factor: 2.444

6.  The Use of Digital and Remote Communication Technologies as a Tool for Multiple Sclerosis Management: Narrative Review.

Authors:  Martin Marziniak; Giampaolo Brichetto; Peter Feys; Uta Meyding-Lamadé; Karen Vernon; Sven G Meuth
Journal:  JMIR Rehabil Assist Technol       Date:  2018-04-24
  6 in total

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