Richard J Siegert1, Diana M Jackson2, Lynne Turner-Stokes3. 1. Department of Palliative Care Policy and Rehabilitation, King's College London, School of Medicine, London, UK Person-Centred Research Centre, School of Public Health and Psychosocial Studies and School of Rehabilitation and Occupational Studies, AUT University, Auckland, New Zealand richard.siegert@aut.ac.nz. 2. Department of Palliative Care Policy and Rehabilitation, King's College London, School of Medicine, London, UK. 3. Department of Palliative Care Policy and Rehabilitation, King's College London, School of Medicine, London, UK Regional Rehabilitation Unit, Northwick Park Hospital, London, UK.
Abstract
OBJECTIVE: A psychometric evaluation of the Needs and Provision Complexity Scale (NPCS). MAIN MEASURE: The NPCS is designed to evaluate both needs for health and social support (NPCS-Needs) and services provided to meet those needs (NPCS-Gets). DESIGN: A consecutive cohort of patients were recruited from nine specialist neurorehabilitation units in London. SUBJECTS: Four hundred and twenty-eight patients were assessed at discharge (63.1% males; mean age 49 years) of whom 73.6% had acquired brain injury (49.5% stroke/subarachnoid, 14.7% traumatic brain injury, 9.3% 'other acquired brain injury'), 8.9% spinal cord injury, 6.1% peripheral neuropathy, 4.9% progressive neurological and 6.3% other neurological conditions. RESULTS: The NPCS-Needs was completed by the clinical team at discharge and 212 patients reported NPCS-Gets after six months. NPCS-Gets repeatability was tested in a subsample (n = 60). Factor analysis identified two principal domains ('Health and personal care' and 'Social care and support') accounting for 66% of variance, and suggested a large general factor underpinning the NPCS. Internal consistency was high (alpha = 0.94) and repeatability acceptable. Intraclass coefficients for domain scores were healthcare 0.67 (95% confidence interval (CI) 0.48-0.80); personal care 0.83 (0.73-0.90); rehabilitation 0.65 (0.45-0.78); social/family support 0.66 (0.46-0.79) and environment 0.84 (0.74-0.90). Linear-weighted kappas for item-by-item agreement ranged from 0.42 to 0.83. Concurrent validity was demonstrated through correlations with measures of dependency and community integration. CONCLUSIONS: Notwithstanding a 50% response rate after six months, the NPCS has good internal consistency, a robust two-factor structure, acceptable test-retest reliability and initial evidence of concurrent validity.
OBJECTIVE: A psychometric evaluation of the Needs and Provision Complexity Scale (NPCS). MAIN MEASURE: The NPCS is designed to evaluate both needs for health and social support (NPCS-Needs) and services provided to meet those needs (NPCS-Gets). DESIGN: A consecutive cohort of patients were recruited from nine specialist neurorehabilitation units in London. SUBJECTS: Four hundred and twenty-eight patients were assessed at discharge (63.1% males; mean age 49 years) of whom 73.6% had acquired brain injury (49.5% stroke/subarachnoid, 14.7% traumatic brain injury, 9.3% 'other acquired brain injury'), 8.9% spinal cord injury, 6.1% peripheral neuropathy, 4.9% progressive neurological and 6.3% other neurological conditions. RESULTS: The NPCS-Needs was completed by the clinical team at discharge and 212 patients reported NPCS-Gets after six months. NPCS-Gets repeatability was tested in a subsample (n = 60). Factor analysis identified two principal domains ('Health and personal care' and 'Social care and support') accounting for 66% of variance, and suggested a large general factor underpinning the NPCS. Internal consistency was high (alpha = 0.94) and repeatability acceptable. Intraclass coefficients for domain scores were healthcare 0.67 (95% confidence interval (CI) 0.48-0.80); personal care 0.83 (0.73-0.90); rehabilitation 0.65 (0.45-0.78); social/family support 0.66 (0.46-0.79) and environment 0.84 (0.74-0.90). Linear-weighted kappas for item-by-item agreement ranged from 0.42 to 0.83. Concurrent validity was demonstrated through correlations with measures of dependency and community integration. CONCLUSIONS: Notwithstanding a 50% response rate after six months, the NPCS has good internal consistency, a robust two-factor structure, acceptable test-retest reliability and initial evidence of concurrent validity.
Authors: Marleen R van Walsem; Emilie I Howe; Gunvor A Ruud; Jan C Frich; Nada Andelic Journal: Health Qual Life Outcomes Date: 2017-01-07 Impact factor: 3.186
Authors: Marleen R van Walsem; Emilie I Howe; Kristin Iversen; Jan C Frich; Nada Andelic Journal: Orphanet J Rare Dis Date: 2015-09-28 Impact factor: 4.123
Authors: Richard J Siegert; Diana M Jackson; E Diane Playford; Simon Fleminger; Lynne Turner-Stokes Journal: BMJ Open Date: 2014-02-28 Impact factor: 2.692