Literature DB >> 24446151

Protecting human health and security in digital Europe: how to deal with the "privacy paradox"?

Isabell Büschel1, Rostane Mehdi, Anne Cammilleri, Yousri Marzouki, Bernice Elger.   

Abstract

This article is the result of an international research between law and ethics scholars from Universities in France and Switzerland, who have been closely collaborating with technical experts on the design and use of information and communication technologies in the fields of human health and security. The interdisciplinary approach is a unique feature and guarantees important new insights in the social, ethical and legal implications of these technologies for the individual and society as a whole. Its aim is to shed light on the tension between secrecy and transparency in the digital era. A special focus is put from the perspectives of psychology, medical ethics and European law on the contradiction between individuals' motivations for consented processing of personal data and their fears about unknown disclosure, transferal and sharing of personal data via information and communication technologies (named the "privacy paradox"). Potential benefits and harms for the individual and society resulting from the use of computers, mobile phones, the Internet and social media are being discussed. Furthermore, the authors point out the ethical and legal limitations inherent to the processing of personal data in a democratic society governed by the rule of law. Finally, they seek to demonstrate that the impact of information and communication technology use on the individuals' well-being, the latter being closely correlated with a high level of fundamental rights protection in Europe, is a promising feature of the socalled "e-democracy" as a new way to collectively attribute meaning to large-scale online actions, motivations and ideas.

Entities:  

Mesh:

Year:  2014        PMID: 24446151     DOI: 10.1007/s11948-013-9511-y

Source DB:  PubMed          Journal:  Sci Eng Ethics        ISSN: 1353-3452            Impact factor:   3.525


  8 in total

1.  Ethics watch: DNA theft: your genetic information at risk.

Authors:  Elizabeth E Joh
Journal:  Nat Rev Genet       Date:  2011-10-25       Impact factor: 53.242

2.  The contribution of Facebook to the 2011 Tunisian revolution: a cyberpsychological insight.

Authors:  Yousri Marzouki; Inès Skandrani-Marzouki; Moez Béjaoui; Haythem Hammoudi; Tarek Bellaj
Journal:  Cyberpsychol Behav Soc Netw       Date:  2012-04-23

3.  The Lancet Technology: June, 2012. Maps, apps--and evidence?

Authors:  Niall Boyce
Journal:  Lancet       Date:  2012-06-16       Impact factor: 79.321

4.  The data protection and medical device frameworks - obstacles to the deployment of mHealth across Europe?

Authors:  Paul Quinn; Ann-Katrin Habbig; Eugenio Mantovani; Paul De Hert
Journal:  Eur J Health Law       Date:  2013-04

5.  Evidence for building a smarter health and wellness future--key messages and collected visions from a joint OECD and NSF workshop.

Authors:  Michael Rigby; Elettra Ronchi; Susan Graham
Journal:  Int J Med Inform       Date:  2012-10-30       Impact factor: 4.046

Review 6.  Body identification, biometrics and medicine: ethical and social considerations.

Authors:  Emilio Mordini; Corinna Ottolini
Journal:  Ann Ist Super Sanita       Date:  2007       Impact factor: 1.663

7.  Information disclosure and control on Facebook: are they two sides of the same coin or two different processes?

Authors:  Emily Christofides; Amy Muise; Serge Desmarais
Journal:  Cyberpsychol Behav       Date:  2009-06

8.  Survey of patient and public perceptions of electronic health records for healthcare, policy and research: study protocol.

Authors:  Serena Luchenski; Anjali Balasanthiran; Cicely Marston; Kaori Sasaki; Azeem Majeed; Derek Bell; Julie E Reed
Journal:  BMC Med Inform Decis Mak       Date:  2012-05-23       Impact factor: 2.796

  8 in total
  5 in total

Review 1.  Using e-technologies in clinical trials.

Authors:  Carmen Rosa; Aimee N C Campbell; Gloria M Miele; Meg Brunner; Erin L Winstanley
Journal:  Contemp Clin Trials       Date:  2015-07-12       Impact factor: 2.226

2.  Considering the human implications of new and emerging technologies in the area of human security.

Authors:  Emilio Mordini
Journal:  Sci Eng Ethics       Date:  2014-09       Impact factor: 3.525

3.  Evaluating the Balance Between Privacy and Access in Digital Information Sharing.

Authors:  Sarah J Beesley; Alex Powell; Danielle Groat; Jorie Butler; Ramona O Hopkins; Ronen Rozenblum; Hanan Aboumatar; Allison M Butler; Jeremy Sugarman; Leslie Francis; Samuel M Brown
Journal:  Crit Care Med       Date:  2022-02-01       Impact factor: 9.296

4.  Medical records confidentiality and public health research: two values at stake? An italian survey focus on individual preferences.

Authors:  Virgilia Toccaceli; Corrado Fagnani; Maria Antonietta Stazi
Journal:  J Public Health Res       Date:  2015-02-25

Review 5.  Technology-Based Innovations to Foster Personalized Healthy Lifestyles and Well-Being: A Targeted Review.

Authors:  Emmanouil G Spanakis; Silvina Santana; Manolis Tsiknakis; Kostas Marias; Vangelis Sakkalis; António Teixeira; Joris H Janssen; Henri de Jong; Chariklia Tziraki
Journal:  J Med Internet Res       Date:  2016-06-24       Impact factor: 5.428

  5 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.