Literature DB >> 24438203

Open-label, multicenter study of self-administered icatibant for attacks of hereditary angioedema.

W Aberer, M Maurer, A Reshef, H Longhurst, S Kivity, A Bygum, T Caballero, B Bloom, N Nair, A Malbrán.   

Abstract

BACKGROUND: Historically, treatment for hereditary angioedema (HAE) attacks has been administered by healthcare professionals (HCPs). Patient self-administration could reduce delays between symptom onset and treatment, and attack burden. The primary objective was to assess the safety of self-administered icatibant in patients with HAE type I or II. Secondary objectives included patient convenience and clinical efficacy of self-administration.
METHODS: In this phase IIIb, open-label, multicenter study, adult patients were trained to self-administer a single 30-mg icatibant subcutaneous injection to treat their next attack. Icatibant-naïve patients were treated by an HCP prior to self-administration. Evaluations included adverse event (AE) reporting, a validated questionnaire for convenience, and visual analog scale for efficacy.
RESULTS: A total of 151 patients were enrolled; 104 had an attack requiring treatment during the study, and 97 patients (19 naïve) were included in the self-administration cohort. Recurrence or worsening of HAE symptoms (22 of 97) was the most commonly reported AE; rescue medications including icatibant (N = 3) and C1-inhibitor concentrate (N = 6) were used in 13 cases. Overall, 89 of 97 patients used a single injection of icatibant. No serious AEs or hospitalizations were reported. Most patients (91.7%) found self-administration preferable to administration in the clinic. The median time to symptom relief (3.8 h) was comparable with results from controlled trials of icatibant.
CONCLUSIONS: With appropriate training, patients were successfully able to recognize HAE attacks and decide when to self-administer icatibant. This, coupled with the patient-reported high degree of satisfaction, convenience and ease of use supports the adoption of icatibant self-administration in clinical practice.

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Year:  2014        PMID: 24438203     DOI: 10.1111/all.12303

Source DB:  PubMed          Journal:  Allergy        ISSN: 0105-4538            Impact factor:   13.146


  11 in total

Review 1.  A Decade of Change: Recent Developments in Pharmacotherapy of Hereditary Angioedema (HAE).

Authors:  Konrad Bork
Journal:  Clin Rev Allergy Immunol       Date:  2016-10       Impact factor: 8.667

2.  Repeat treatment of acute hereditary angioedema attacks with open-label icatibant in the FAST-1 trial.

Authors:  A Malbrán; M Riedl; B Ritchie; W B Smith; W Yang; A Banerji; J Hébert; G J Gleich; D Hurewitz; K W Jacobson; J A Bernstein; D A Khan; C H Kirkpatrick; D Resnick; H Li; D S Fernández Romero; W Lumry
Journal:  Clin Exp Immunol       Date:  2014-08       Impact factor: 4.330

Review 3.  The Humanistic, Societal, and Pharmaco-economic Burden of Angioedema.

Authors:  Hilary Longhurst; Anette Bygum
Journal:  Clin Rev Allergy Immunol       Date:  2016-10       Impact factor: 8.667

4.  The international WAO/EAACI guideline for the management of hereditary angioedema - The 2021 revision and update.

Authors:  Marcus Maurer; Markus Magerl; Stephen Betschel; Werner Aberer; Ignacio J Ansotegui; Emel Aygören-Pürsün; Aleena Banerji; Noémi-Anna Bara; Isabelle Boccon-Gibod; Konrad Bork; Laurence Bouillet; Henrik Balle Boysen; Nicholas Brodszki; Paula J Busse; Anette Bygum; Teresa Caballero; Mauro Cancian; Anthony J Castaldo; Danny M Cohn; Dorottya Csuka; Henriette Farkas; Mark Gompels; Richard Gower; Anete S Grumach; Guillermo Guidos-Fogelbach; Michihiro Hide; Hye-Ryun Kang; Allen P Kaplan; Constance H Katelaris; Sorena Kiani-Alikhan; Wei-Te Lei; Richard F Lockey; Hilary Longhurst; William Lumry; Andrew MacGinnitie; Alejandro Malbran; Inmaculada Martinez Saguer; Juan José Matta Campos; Alexander Nast; Dinh Nguyen; Sandra A Nieto-Martinez; Ruby Pawankar; Jonathan Peter; Grzegorz Porebski; Nieves Prior; Avner Reshef; Marc Riedl; Bruce Ritchie; Farrukh Rafique Sheikh; William B Smith; Peter J Spaeth; Marcin Stobiecki; Elias Toubi; Lilian Agnes Varga; Karsten Weller; Andrea Zanichelli; Yuxiang Zhi; Bruce Zuraw; Timothy Craig
Journal:  World Allergy Organ J       Date:  2022-04-07       Impact factor: 5.516

5.  The Icatibant Outcome Survey: experience of hereditary angioedema management from six European countries.

Authors:  T Caballero; W Aberer; H J Longhurst; M Maurer; A Zanichelli; A Perrin; L Bouillet; I Andresen
Journal:  J Eur Acad Dermatol Venereol       Date:  2017-06-01       Impact factor: 6.166

6.  Long-term safety of icatibant treatment of patients with angioedema in real-world clinical practice.

Authors:  A Zanichelli; M Maurer; W Aberer; T Caballero; H J Longhurst; L Bouillet; V Fabien; I Andresen
Journal:  Allergy       Date:  2017-03-13       Impact factor: 13.146

Review 7.  Hereditary Angioedema: The Economics of Treatment of an Orphan Disease.

Authors:  William Raymond Lumry
Journal:  Front Med (Lausanne)       Date:  2018-02-16

8.  Real-world outcomes in hereditary angioedema: first experience from the Icatibant Outcome Survey in the United Kingdom.

Authors:  Hilary J Longhurst; John Dempster; Lorena Lorenzo; Matthew Buckland; Sofia Grigoriadou; Christine Symons; Claire Bethune; Vincent Fabien; Catherine Bangs; Tomaz Garcez
Journal:  Allergy Asthma Clin Immunol       Date:  2018-08-06       Impact factor: 3.406

9.  Dedicated call center (SOS-HAE) for hereditary angioedema attacks: study protocol for a randomised controlled trial.

Authors:  Nicolas Javaud; Olivier Fain; Isabelle Durand-Zaleski; David Launay; Laurence Bouillet; Anne Gompel; Alain Sobel; Maguy Woimant; Hasina Rabetrano; Tomislav Petrovic; Frédéric Lapostolle; Isabelle Boccon-Gibod; Paul-Georges Reuter; Philippe Bertrand; Brigitte Coppere; Bernard Floccard; Gisele Kanny; Ludovic Martin; Eric Vicaut; Frédéric Adnet
Journal:  Trials       Date:  2016-04-30       Impact factor: 2.279

10.  High attack frequency in patients with angioedema due to C1-inhibitor deficiency is a major determinant in switching to home therapy: a real-life observational study.

Authors:  Veronica Squeglia; Alessandro Barbarino; Maria Bova; Carmela Gravante; Angelica Petraroli; Giuseppe Spadaro; Massimo Triggiani; Arturo Genovese; Gianni Marone
Journal:  Orphanet J Rare Dis       Date:  2016-09-29       Impact factor: 4.123

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