Literature DB >> 24412834

A data recipient centered de-identification method to retain statistical attributes.

Tamas S Gal1, Thomas C Tucker2, Aryya Gangopadhyay3, Zhiyuan Chen4.   

Abstract

Privacy has always been a great concern of patients and medical service providers. As a result of the recent advances in information technology and the government's push for the use of Electronic Health Record (EHR) systems, a large amount of medical data is collected and stored electronically. This data needs to be made available for analysis but at the same time patient privacy has to be protected through de-identification. Although biomedical researchers often describe their research plans when they request anonymized data, most existing anonymization methods do not use this information when de-identifying the data. As a result, the anonymized data may not be useful for the planned research project. This paper proposes a data recipient centered approach to tailor the de-identification method based on input from the recipient of the data. We demonstrate our approach through an anonymization project for biomedical researchers with specific goals to improve the utility of the anonymized data for statistical models used for their research project. The selected algorithm improves a privacy protection method called Condensation by Aggarwal et al. Our methods were tested and validated on real cancer surveillance data provided by the Kentucky Cancer Registry.
Copyright © 2014 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Privacy; Statistical analysis; Utility based privacy preserving data mining

Mesh:

Year:  2014        PMID: 24412834     DOI: 10.1016/j.jbi.2014.01.001

Source DB:  PubMed          Journal:  J Biomed Inform        ISSN: 1532-0464            Impact factor:   6.317


  2 in total

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Authors:  Wendy Lipworth; Paul H Mason; Ian Kerridge; John P A Ioannidis
Journal:  J Bioeth Inq       Date:  2017-03-20       Impact factor: 1.352

2.  Access to Routinely Collected Clinical Data for Research: A Process Implemented at an Academic Medical Center.

Authors:  Susan C Guerrero; Sujatha Sridhar; Cynthia Edmonds; Christina F Solis; Jiajie Zhang; David D McPherson; Elmer V Bernstam
Journal:  Clin Transl Sci       Date:  2019-02-12       Impact factor: 4.689

  2 in total

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