Literature DB >> 24394351

The coming of age of adolescent rheumatology.

Despina Eleftheriou1, David A Isenberg2, Lucy R Wedderburn1, Yiannis Ioannou3.   

Abstract

The goal of planned adolescent health-care transition procedures is to optimize functioning and well-being for all young people, including those who have special health-care needs. In this regard, the transitioning of young people with childhood-onset rheumatic diseases to adult health care is increasingly important, particularly as many of these patients might continue to have active disease or considerable sequelae well into their adult lives. Key components of a successful plan for health-care transition include encouragement of patient self-advocacy, tailoring of the process to each individuals' needs, family adaptation, and readiness and training of relevant health-care providers. Improving outcomes in patients with serious rheumatic diseases presenting in adolescence will be achieved by increasing our understanding of the aetiopathogenesis of these disorders, identifying accurate predictors of the development and/or course of disease and better defining long-term outcomes. In this article, we discuss transitional health-care models, as well as the benefits and challenges of providing transitional care to adolescents with rheumatic diseases. We also highlight the need to ensure that research is integral to transitional care pathways.

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Year:  2014        PMID: 24394351     DOI: 10.1038/nrrheum.2013.202

Source DB:  PubMed          Journal:  Nat Rev Rheumatol        ISSN: 1759-4790            Impact factor:   20.543


  53 in total

1.  Long-term follow-up of 246 adults with juvenile idiopathic arthritis: education and employment.

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Journal:  Rheumatology (Oxford)       Date:  2002-12       Impact factor: 7.580

Review 2.  Adolescent development.

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Journal:  J Adolesc Health       Date:  1993-11       Impact factor: 5.012

6.  Burden of musculoskeletal disease and its determination by urbanicity, socioeconomic status, age, and sex: Results from 14,507 subjects.

Authors:  Patrick Vavken; Ronald Dorotka
Journal:  Arthritis Care Res (Hoboken)       Date:  2011-11       Impact factor: 4.794

7.  Juvenile idiopathic arthritis and HLA class I and class II interactions and age-at-onset effects.

Authors:  Jill A Hollenbach; Susan D Thompson; Teodorica L Bugawan; Mary Ryan; Marc Sudman; Miranda Marion; Carl D Langefeld; Glenys Thomson; Henry A Erlich; David N Glass
Journal:  Arthritis Rheum       Date:  2010-06

8.  Morbidity of systemic lupus erythematosus: role of race and socioeconomic status.

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Journal:  Am J Med       Date:  1991-10       Impact factor: 4.965

9.  Young people's satisfaction of transitional care in adolescent rheumatology in the UK.

Authors:  K L Shaw; T R Southwood; J E McDonagh
Journal:  Child Care Health Dev       Date:  2007-07       Impact factor: 2.508

10.  Dehydroepiandrosterone protects mice from endotoxin toxicity and reduces tumor necrosis factor production.

Authors:  H D Danenberg; G Alpert; S Lustig; D Ben-Nathan
Journal:  Antimicrob Agents Chemother       Date:  1992-10       Impact factor: 5.191

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  10 in total

Review 1.  Adolescent urology: developing lifelong care for congenital anomalies.

Authors:  Dan Wood
Journal:  Nat Rev Urol       Date:  2014-04-08       Impact factor: 14.432

2.  [Berlin transition program: from adolescents to adults in rheumatology treatment].

Authors:  K Minden; M Niewerth; S Müther
Journal:  Z Rheumatol       Date:  2014-08       Impact factor: 1.372

3.  Transitional care in clinical networks for young people with juvenile idiopathic arthritis: current situation and challenges.

Authors:  Mary Cruikshank; Helen E Foster; Jane Stewart; Joyce E Davidson; Tim Rapley
Journal:  Clin Rheumatol       Date:  2015-04-30       Impact factor: 2.980

Review 4.  Primary care interventions to improve transition of youth with chronic health conditions from paediatric to adult healthcare: a systematic review.

Authors:  Jasmin Bhawra; Alene Toulany; Eyal Cohen; Charlotte Moore Hepburn; Astrid Guttmann
Journal:  BMJ Open       Date:  2016-05-05       Impact factor: 2.692

5.  Patient and parent perspectives on transition from paediatric to adult healthcare in rheumatic diseases: an interview study.

Authors:  Ivy Jiang; Gabor Major; Davinder Singh-Grewal; Claris Teng; Ayano Kelly; Fiona Niddrie; Jeffrey Chaitow; Sean O'Neill; Geraldine Hassett; Arvin Damodaran; Sarah Bernays; Karine Manera; Allison Tong; David J Tunnicliffe
Journal:  BMJ Open       Date:  2021-01-04       Impact factor: 2.692

6.  Transition readiness in adolescents and young adults with chronic rheumatic disease in Oman: today's needs and future challenges.

Authors:  Reem Abdwani; Rumaitha Al Sabri; Zawan Al Hasni; Seyad Rizvi; Humaid Al Wahshi; Batool Al Lawati; Safiya Al Abrawi; Yassir Wali; Mona Al Sadoon
Journal:  Pediatr Rheumatol Online J       Date:  2022-04-12       Impact factor: 3.054

7.  Person-focused care for young people with rheumatic and musculoskeletal diseases: young rheumatologists' and EULAR Young PARE perspectives.

Authors:  Alessia Alunno; Paul Studenic; Elena Nikiphorou; Petra Balážová; Linda van Nieuwkoop; Sofia Ramiro; Francesco Carubbi; Christophe Richez; Nele Caeyers; Laure Gossec; Marios Kouloumas
Journal:  RMD Open       Date:  2017-09-26

8.  Transition and transfer of the patient with paediatric-onset lupus: a practical approach for paediatric and adult rheumatology practices.

Authors:  Rebecca E Sadun; Laura E Schanberg
Journal:  Lupus Sci Med       Date:  2018-08-13

9.  Depressive symptoms, pain and disability for adolescent patients with juvenile idiopathic arthritis: results from the Childhood Arthritis Prospective Study.

Authors:  Laura Hanns; Lis Cordingley; James Galloway; Sam Norton; Livia A Carvalho; Deborah Christie; Debajit Sen; Roberto Carrasco; Amir Rashid; Helen Foster; Eileen Baildam; Alice Chieng; Joyce Davidson; Lucy R Wedderburn; Kimme Hyrich; Wendy Thomson; Yiannis Ioannou
Journal:  Rheumatology (Oxford)       Date:  2018-08-01       Impact factor: 7.580

10.  Successful implementation of a clinical transition pathway for adolescents with juvenile-onset rheumatic and musculoskeletal diseases.

Authors:  Margot Walter; Sylvia Kamphuis; Philomine van Pelt; Annemarie de Vroed; Johanna M W Hazes
Journal:  Pediatr Rheumatol Online J       Date:  2018-08-03       Impact factor: 3.054

  10 in total

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