Literature DB >> 24381041

Palliative care services for people with dementia: a synthesis of the literature reporting the views and experiences of professionals and family carers.

Mareeni Raymond1, Alex Warner, Nathan Davies, Steve Iliffe, Jill Manthorpe, Sam Ahmedzhai.   

Abstract

The experience of being a carer of a person with dementia at the end of life is expressed in these 12 accounts. This is a synthesis of the concerns and challenges for carers at the end of life. These accounts are often insightful and provide several views of carers' and professionals' experience. Having a close relationship as a carer gives a unique and poignant view. What emerges from this review is a range of perspectives that provide contrasting views of the heterogeneity of carers and professionals. This may be helpful for professionals and policy makers to consider when planning end-of-life care strategies for people with dementia and insights drawn from hearing directly from carers may be powerful learning tools.

Entities:  

Keywords:  Alzheimer's; carer; caring; dementia; narrative; palliative care; review

Mesh:

Year:  2012        PMID: 24381041     DOI: 10.1177/1471301212450538

Source DB:  PubMed          Journal:  Dementia (London)        ISSN: 1471-3012


  13 in total

1.  Thematic analysis of blog narratives written by people with Alzheimer's disease and other dementias and care partners.

Authors:  Kristie Kannaley; Shreya Mehta; Brooks Yelton; Daniela B Friedman
Journal:  Dementia (London)       Date:  2018-04-11

2.  Expert views on the factors enabling good end of life care for people with dementia: a qualitative study.

Authors:  Richard Philip Lee; Claire Bamford; Catherine Exley; Louise Robinson
Journal:  BMC Palliat Care       Date:  2015-07-25       Impact factor: 3.234

3.  Family caregivers' conceptualisation of quality end-of-life care for people with dementia: A qualitative study.

Authors:  Nathan Davies; Greta Rait; Laura Maio; Steve Iliffe
Journal:  Palliat Med       Date:  2016-10-26       Impact factor: 4.762

4.  Achieving Prudent Dementia Care (Palliare): An International Policy and Practice Imperative.

Authors:  Debbie Tolson; Anne Fleming; Elizabeth Hanson; Wilson de Abreu; Manuel Lillo Crespo; Rhoda Macrae; Graham Jackson; Simona Hvalič-Touzery; Iva Holmerová; Pirkko Routasalo
Journal:  Int J Integr Care       Date:  2016-12-31       Impact factor: 5.120

5.  Modelling the landscape of palliative care for people with dementia: a European mixed methods study.

Authors:  Steve Iliffe; Nathan Davies; Myrra Vernooij-Dassen; Jasper van Riet Paap; Ragni Sommerbakk; Elena Mariani; Birgit Jaspers; Lukas Radbruch; Jill Manthorpe; Laura Maio; Dagny Haugen; Yvonne Engels
Journal:  BMC Palliat Care       Date:  2013-08-12       Impact factor: 3.234

6.  Quality palliative care for cancer and dementia in five European countries: some common challenges.

Authors:  Nathan Davies; Laura Maio; Jasper van Riet Paap; Elena Mariani; Birgit Jaspers; Ragni Sommerbakk; Daniela Grammatico; Jill Manthorpe; Sam Ahmedzai; Myrra Vernooij-Dassen; Steve Iliffe
Journal:  Aging Ment Health       Date:  2013-10-17       Impact factor: 3.658

7.  Barriers to the provision of high-quality palliative care for people with dementia in England: a qualitative study of professionals' experiences.

Authors:  Nathan Davies; Laura Maio; Krish Vedavanam; Jill Manthorpe; Myrra Vernooij-Dassen; Steve Iliffe
Journal:  Health Soc Care Community       Date:  2013-12-27

Review 8.  Quality end-of-life care for dementia: What have family carers told us so far? A narrative synthesis.

Authors:  Nathan Davies; Laura Maio; Greta Rait; Steve Iliffe
Journal:  Palliat Med       Date:  2014-03-13       Impact factor: 4.762

9.  Context, mechanisms and outcomes in end-of-life care for people with advanced dementia: family carers perspective.

Authors:  Nuriye Kupeli; Elizabeth L Sampson; Gerard Leavey; Jane Harrington; Sarah Davis; Bridget Candy; Michael King; Irwin Nazareth; Louise Jones; Kirsten Moore
Journal:  BMC Palliat Care       Date:  2019-10-24       Impact factor: 3.234

10.  After the Liverpool Care Pathway--development of heuristics to guide end of life care for people with dementia: protocol of the ALCP study.

Authors:  N Davies; J Manthorpe; E L Sampson; S Iliffe
Journal:  BMJ Open       Date:  2015-09-02       Impact factor: 2.692

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