Literature DB >> 24350732

Teaming up: feasibility of an online treatment environment for adolescents with type 1 diabetes.

Emiel A Boogerd1, Cees Noordam, Jan Am Kremer, Judith B Prins, Chris M Verhaak.   

Abstract

OBJECTIVE: To evaluate the feasibility of an online interactive treatment environment for adolescents with type 1 diabetes, called Sugarsquare, to supplement usual care. RESEARCH DESIGN AND METHODS: Sugarsquare provides easily accessible contact with the diabetes team, peer support, and treatment overview. Of 120 eligible patients, 62 adolescents aged 11-21 (M = 15.23, SD = 2.00) were assigned to a usual-care group (n = 31) or a usual-care + intervention group (n = 31). Feasibility was assessed in terms of acceptability, demand, practicability, integration, and efficacy in a 9-month study-period.
RESULTS: Assessment of acceptability and demand revealed that 20 adolescents in the intervention group (65%) logged in at least once; 16 adolescents (52%) logged in repeatedly. Usage resulted in 5795 page-views, 3580 chat-messages, 427 forum-messages, and in 40 private interactions between 11 adolescents (35%) and professionals. Assessment of practicability revealed that all 13 professionals (100%) accessed the intervention. Slow processing speed and security procedures formed obstacles for usage. Assessment of integration showed that international standards for diabetes care (International Diabetes Federation/International Society for Pediatric and Adolescent Diabetes/American Diabetes Association) were met. Assessment of efficacy revealed improvement in the intervention group in evaluation of care (Patients' Evaluation of Quality of Diabetes), F(1,30) = 5.35, p < 0.05, and quality of life, communication (PedsQL), F(1,30) = 11.65, p <0.05. The latter was correlated with posted chat-messages (r = 0.42, p < 0.05). No between-group differences were found.
CONCLUSIONS: This study shows that Sugarsquare is feasible in adolescents with type 1 diabetes. It meets a demand in adolescents and can support professionals when organizing on-going care according to international standards. Results are promising and next steps are a full-scale randomized controlled trial and subsequent implementation in daily care.
© 2013 John Wiley & Sons A/S. Published by John Wiley & Sons Ltd.

Entities:  

Keywords:  Internet; adolescents; diabetes mellitus, type 1; feasibility studies; quality of life

Mesh:

Year:  2013        PMID: 24350732     DOI: 10.1111/pedi.12103

Source DB:  PubMed          Journal:  Pediatr Diabetes        ISSN: 1399-543X            Impact factor:   4.866


  13 in total

Review 1.  Screening and support for emotional burdens of youth with type 1 diabetes: Strategies for diabetes care providers.

Authors:  Marisa E Hilliard; Maartje De Wit; Rachel M Wasserman; Ashley M Butler; Meredyth Evans; Jill Weissberg-Benchell; Barbara J Anderson
Journal:  Pediatr Diabetes       Date:  2017-09-22       Impact factor: 4.866

2.  Smartphone App as Motivational Intervention to Improve Glycemic Control in Adolescents with Type 1 Diabetes.

Authors:  Binay Kumar Pramanik; J Jebashini Angelin; Vineeth John Mathai; Sarah Mathai; Sophy Korula; Anna Simon
Journal:  Indian J Pediatr       Date:  2019-07-29       Impact factor: 1.967

3.  Peer Support Interventions on Digital Platforms for Children With Type 1 Diabetes and Their Caregivers.

Authors:  Reena Titoria; Shazhan Amed; Tricia S Tang
Journal:  Diabetes Spectr       Date:  2022-02-08

4.  CONSORT 2010 statement: extension to randomised pilot and feasibility trials.

Authors:  Sandra M Eldridge; Claire L Chan; Michael J Campbell; Christine M Bond; Sally Hopewell; Lehana Thabane; Gillian A Lancaster
Journal:  BMJ       Date:  2016-10-24

5.  Sugarsquare, a Web-Based Patient Portal for Parents of a Child With Type 1 Diabetes: Multicenter Randomized Controlled Feasibility Trial.

Authors:  Emiel Boogerd; Nienke M Maas-Van Schaaijk; Theo C Sas; Agnes Clement-de Boers; Mischa Smallenbroek; Roos Nuboer; Cees Noordam; Chris M Verhaak
Journal:  J Med Internet Res       Date:  2017-08-22       Impact factor: 5.428

6.  Mixed methods study exploring parent engagement in child health research in British Columbia.

Authors:  Jennifer Smith; Ian Pike; Mariana Brussoni; Lori Tucker; Louise Mâsse; Janet W T Mah; Ainsley Boudreau; Dawn Mount; Russell Bonaguro; Stephanie Glegg; S Amed
Journal:  BMJ Open       Date:  2019-06-01       Impact factor: 2.692

Review 7.  Shared decision-making using personal health record technology: a scoping review at the crossroads.

Authors:  Selena Davis; Abdul Roudsari; Rebecca Raworth; Karen L Courtney; Lee MacKay
Journal:  J Am Med Inform Assoc       Date:  2017-07-01       Impact factor: 4.497

8.  The Sugarsquare study: protocol of a multicenter randomized controlled trial concerning a web-based patient portal for parents of a child with type 1 diabetes.

Authors:  Emiel A Boogerd; Cees Noordam; Chris M Verhaak
Journal:  BMC Pediatr       Date:  2014-01-28       Impact factor: 2.125

9.  Defining Feasibility and Pilot Studies in Preparation for Randomised Controlled Trials: Development of a Conceptual Framework.

Authors:  Sandra M Eldridge; Gillian A Lancaster; Michael J Campbell; Lehana Thabane; Sally Hopewell; Claire L Coleman; Christine M Bond
Journal:  PLoS One       Date:  2016-03-15       Impact factor: 3.240

10.  CONSORT 2010 statement: extension to randomised pilot and feasibility trials.

Authors:  Sandra M Eldridge; Claire L Chan; Michael J Campbell; Christine M Bond; Sally Hopewell; Lehana Thabane; Gillian A Lancaster
Journal:  Pilot Feasibility Stud       Date:  2016-10-21
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