Literature DB >> 24345206

Lurking as an active participation process: a longitudinal investigation of engagement with an online cancer support group.

Jeong Yeob Han1, Jiran Hou, Eunkyung Kim, David H Gustafson.   

Abstract

To better understand participation in computer-mediated social support (CMSS) groups for breast cancer patients, this study examines two overarching questions of (1) who are posters, lurkers, or nonusers and (2) what role do these different types of engagement play in explaining psychosocial health outcomes? This study incorporates the comprehensive model of information seeking and two competing models of social enhancement and social compensation, as well as the literature on lurking and posting behaviors in online groups to answer research questions. Our findings suggest that patterns of engagement in a CMSS group differed according to patients' sociodemographic characteristics and psychosocial factors. In addition, we found that lurkers had a higher level of perceived functional well-being than posters at 3 months post baseline. Theoretical and practical implications for effective online cancer support group campaigns are discussed.

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Mesh:

Year:  2013        PMID: 24345206      PMCID: PMC4469645          DOI: 10.1080/10410236.2013.816911

Source DB:  PubMed          Journal:  Health Commun        ISSN: 1041-0236


  29 in total

1.  Help seeking behavior and the Internet: a national survey.

Authors:  Michele L Ybarra; Michael Suman
Journal:  Int J Med Inform       Date:  2005-08-29       Impact factor: 4.046

2.  Information needs and sources of information for women with breast cancer: a follow-up study.

Authors:  K A Luker; K Beaver; S J Leinster; R G Owens
Journal:  J Adv Nurs       Date:  1996-03       Impact factor: 3.187

3.  Cancer patients' information needs and information seeking behaviour: in depth interview study.

Authors:  G M Leydon; M Boulton; C Moynihan; A Jones; J Mossman; M Boudioni; K McPherson
Journal:  BMJ       Date:  2000-04-01

4.  Optimizing eHealth breast cancer interventions: which types of eHealth services are effective?

Authors:  Timothy B Baker; Robert Hawkins; Suzanne Pingree; Linda J Roberts; Helene E McDowell; Bret R Shaw; Ron Serlin; Lisa Dillenburg; Christopher M Swoboda; Jeong-Yeob Han; James A Stewart; Cindy L Carmack-Taylor; Andrew Salner; Tanya R Schlam; Fiona McTavish; David H Gustafson
Journal:  Transl Behav Med       Date:  2011-03       Impact factor: 3.046

5.  A longitudinal study of use of an interactive health communication system.

Authors:  Jeong Yeob Han
Journal:  Health Commun       Date:  2011-09-14

6.  Reliability and validity of the Functional Assessment of Cancer Therapy-Breast quality-of-life instrument.

Authors:  M J Brady; D F Cella; F Mo; A E Bonomi; D S Tulsky; S R Lloyd; S Deasy; M Cobleigh; G Shiomoto
Journal:  J Clin Oncol       Date:  1997-03       Impact factor: 44.544

7.  Mediating processes of two communication interventions for breast cancer patients.

Authors:  Robert P Hawkins; Suzanne Pingree; Bret Shaw; Ronald C Serlin; Chris Swoboda; Jeong-Yeob Han; Cindy L Carmack; Andrew Salner
Journal:  Patient Educ Couns       Date:  2010-12

8.  Doctor-patient relationship as motivation and outcome: examining uses of an Interactive Cancer Communication System.

Authors:  Bret R Shaw; Jeong Yeob Han; Robert P Hawkins; James Stewart; Fiona McTavish; David H Gustafson
Journal:  Int J Med Inform       Date:  2006-02-03       Impact factor: 4.046

9.  What are the most important symptom targets when treating advanced cancer? A survey of providers in the National Comprehensive Cancer Network (NCCN).

Authors:  David Cella; Diane Paul; Susan Yount; Rodger Winn; Chih-Hung Chang; Donald Banik; Jane Weeks
Journal:  Cancer Invest       Date:  2003       Impact factor: 2.176

10.  Unraveling Uses and Effects of an Interactive Health Communication System.

Authors:  Jeong Yeob Han; Robert P Hawkins; Bret R Shaw; Suzanne Pingree; Fiona McTavish; David H Gustafson
Journal:  J Broadcast Electron Media       Date:  2009-03-12
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  18 in total

Review 1.  Addressing engagement in technology-based behavioural HIV interventions through paradata metrics.

Authors:  José A Bauermeister; Jesse M Golinkoff; Kathryn E Muessig; Keith J Horvath; Lisa B Hightow-Weidman
Journal:  Curr Opin HIV AIDS       Date:  2017-09       Impact factor: 4.283

2.  Factors Contributing to Dropping-out in an Online Health Community: Static and Longitudinal Analyses.

Authors:  Shaodian Zhang; Noémie Elhadad
Journal:  AMIA Annu Symp Proc       Date:  2017-02-10

Review 3.  Social media for breast cancer survivors: a literature review.

Authors:  Angela L Falisi; Kara P Wiseman; Anna Gaysynsky; Jennifer K Scheideler; Daniel A Ramin; Wen-Ying Sylvia Chou
Journal:  J Cancer Surviv       Date:  2017-06-10       Impact factor: 4.442

4.  Opinion Leaders in Online Cancer Support Groups: An Investigation of Their Antecedents and Consequences.

Authors:  Eunkyung Kim; Dietram A Scheufele; Jeong Yeob Han; Dhavan Shah
Journal:  Health Commun       Date:  2016-05-18

5.  'I felt less alone knowing I could contribute to the forum': psychological distress and use of an online infertility peer support forum.

Authors:  Siobhan Bernadette Laura O'Connell; Eden Noah Gelgoot; Paul Henry Grunberg; Joy Schinazi; Deborah Da Costa; Cindy-Lee Dennis; Zeev Rosberger; Phyllis Zelkowitz
Journal:  Health Psychol Behav Med       Date:  2021-02-11

6.  Scientific Versus Experiential Evidence: Discourse Analysis of the Chronic Cerebrospinal Venous Insufficiency Debate in a Multiple Sclerosis Forum.

Authors:  Janka Koschack; Lara Weibezahl; Tim Friede; Wolfgang Himmel; Philip Makedonski; Jens Grabowski
Journal:  J Med Internet Res       Date:  2015-07-01       Impact factor: 5.428

7.  What influences patient participation in an online forum for weight loss surgery? A qualitative case study.

Authors:  Anita Das; Arild Faxvaag
Journal:  Interact J Med Res       Date:  2014-02-06

8.  Online cancer communities as informatics intervention for social support: conceptualization, characterization, and impact.

Authors:  Shaodian Zhang; Erin O'Carroll Bantum; Jason Owen; Suzanne Bakken; Noémie Elhadad
Journal:  J Am Med Inform Assoc       Date:  2017-03-01       Impact factor: 4.497

9.  Harnessing Facebook for Smoking Reduction and Cessation Interventions: Facebook User Engagement and Social Support Predict Smoking Reduction.

Authors:  Sunny Jung Kim; Lisa A Marsch; Mary F Brunette; Jesse Dallery
Journal:  J Med Internet Res       Date:  2017-05-23       Impact factor: 5.428

10.  The Impact of Participation in Online Cancer Communities on Patient Reported Outcomes: Systematic Review.

Authors:  Mies C van Eenbergen; Lonneke V van de Poll-Franse; Peter Heine; Floortje Mols
Journal:  JMIR Cancer       Date:  2017-09-28
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