Literature DB >> 24339101

Balancing needs: the role of motivations, meanings and relationship dynamics in the experience of informal caregivers of people with dementia.

Catherine Quinn1, Linda Clare2, Robert T Woods2.   

Abstract

This paper investigates how meaning, motivation and relationship dynamics influence the caregivers' subjective experience of caregiving. We interviewed 12 family caregivers of relatives with dementia. We analysed transcripts of these interviews using interpretative phenomenological analysis. Six key themes emerged from the analysis, which were encompassed under an overarching theme of 'balancing needs'. This describes the caregivers' constant struggle to balance their own needs against those of their relative, which created a series of dilemmas. These dilemmas emerged from the desire to try to preserve the caregivers' relationship with their relative, while recognising that this relationship was changing. The caregivers' relationship with their relative influenced the caregivers' motivations to provide care and gave caregiving meaning. Although caregivers were motivated to provide care the battle to balance needs meant that the caregivers recognised there might come a time when they may need to cease caregiving.
© The Author(s) 2013 Reprints and permissions: sagepub.co.uk/journalsPermissions.nav.

Entities:  

Keywords:  Gain; interpretative phenomenological analysis; obligation; positive aspects of caregiving; qualitative

Mesh:

Year:  2013        PMID: 24339101     DOI: 10.1177/1471301213495863

Source DB:  PubMed          Journal:  Dementia (London)        ISSN: 1471-3012


  16 in total

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2.  Motivations for being informal carers of people living with dementia: a systematic review of qualitative literature.

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7.  Informal caregivers and persons with dementia's everyday life coping.

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8.  Towards a middle-range theory of 'Stability of home-based care arrangements for people living with dementia' (SoCA-Dem): findings from a meta-study on mixed research.

Authors:  Kerstin Köhler; Jan Dreyer; Iris Hochgraeber; Milena von Kutzleben; Christiane Pinkert; Martina Roes; Bernhard Holle
Journal:  BMJ Open       Date:  2021-04-14       Impact factor: 2.692

9.  Motivations and willingness to provide care from a geographical distance, and the impact of distance care on caregivers' mental and physical health: a mixed-method systematic review protocol.

Authors:  Eva Bei; Mikołaj Zarzycki; Val Morrison; Noa Vilchinsky
Journal:  BMJ Open       Date:  2021-07-07       Impact factor: 2.692

10.  Balancing care demands and personal needs: A typology on the reconciliation of informal dementia care with personal life based on narrative interviews.

Authors:  Sophie Gottschalk; Lydia Neubert; Hans-Helmut König; Christian Brettschneider
Journal:  Dementia (London)       Date:  2021-04-13
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