Literature DB >> 24337331

Negotiating the balance: the triadic relationship between spousal caregivers, people with dementia and Admiral Nurses.

Catherine Quinn1, Linda Clare, Ted McGuinness, Robert T Woods.   

Abstract

Informal caregiving for a person with dementia often takes place within a health care triad, whose members include the caregiver, the care-recipient and the health care-professional. The aim of the current study was to explore how the members work together with this triadic context. Six spousal caregiving dyads and the three Admiral Nurses who worked with the couples were interviewed. Transcripts of these interviews were analysed to form six case studies, each containing the perspectives of the three members of the triad. The processes emerging in these case studies were encompassed under an overarching dynamic process of 'negotiating the balance'. This describes the ongoing struggle of the members to balance the views of the other members against their own needs. Coalitions could occur as members worked together to tackle problems. The findings of this study highlight the importance of exploring the perspectives of all members of the triad. This should help health care professionals to improve the quality of the support they provide to caregivers and care-recipients.

Entities:  

Keywords:  Coalitions; health care professionals; interpretative phenomenological analysis; qualitative; subjective experience

Mesh:

Year:  2012        PMID: 24337331     DOI: 10.1177/1471301212437780

Source DB:  PubMed          Journal:  Dementia (London)        ISSN: 1471-3012


  9 in total

1.  Co-Designing Ambient Assisted Living (AAL) Environments: Unravelling the Situated Context of Informal Dementia Care.

Authors:  Amy S Hwang; Khai N Truong; Jill I Cameron; Eva Lindqvist; Louise Nygård; Alex Mihailidis
Journal:  Biomed Res Int       Date:  2015-06-16       Impact factor: 3.411

Review 2.  What is the effectiveness of the support worker role for people with dementia and their carers? A systematic review.

Authors:  Dianne Goeman; Emma Renehan; Susan Koch
Journal:  BMC Health Serv Res       Date:  2016-07-19       Impact factor: 2.655

3.  Carer Experience Supporting Someone With Dementia and Cancer: A Narrative Approach.

Authors:  Gary Witham; Carol Haigh; Duncan Mitchell; Anna Beddow
Journal:  Qual Health Res       Date:  2017-10-28

4.  Residential immersive life skills programs for youth with disabilities: a case study of youth developmental trajectories of personal growth and caregiver perspectives.

Authors:  Shauna Kingsnorth; Alanna E F Rudzik; Gillian King; Amy C McPherson
Journal:  BMC Pediatr       Date:  2019-11-06       Impact factor: 2.125

5.  "A piece of paper is not the same as having someone to talk to": accessing post-diagnostic dementia care before and since COVID-19 and associated inequalities.

Authors:  Clarissa Giebel; Kerry Hanna; Hilary Tetlow; Kym Ward; Justine Shenton; Jacqueline Cannon; Sarah Butchard; Aravind Komuravelli; Anna Gaughan; Ruth Eley; Carol Rogers; Manoj Rajagopal; Stan Limbert; Steve Callaghan; Rosie Whittington; Lisa Shaw; Mark Gabbay
Journal:  Int J Equity Health       Date:  2021-03-11

6.  Towards a middle-range theory of 'Stability of home-based care arrangements for people living with dementia' (SoCA-Dem): findings from a meta-study on mixed research.

Authors:  Kerstin Köhler; Jan Dreyer; Iris Hochgraeber; Milena von Kutzleben; Christiane Pinkert; Martina Roes; Bernhard Holle
Journal:  BMJ Open       Date:  2021-04-14       Impact factor: 2.692

7.  "Nobody Seems to Know Where to Even Turn To": Barriers in Accessing and Utilising Dementia Care Services in England and The Netherlands.

Authors:  Clarissa Giebel; Sarah Robertson; Audrey Beaulen; Sandra Zwakhalen; Dawn Allen; Hilde Verbeek
Journal:  Int J Environ Res Public Health       Date:  2021-11-22       Impact factor: 3.390

8.  Differences and commonalities of home-based care arrangements for persons living with dementia in Germany - a theory-driven development of types using multiple correspondence analysis and hierarchical cluster analysis.

Authors:  Jan Dreyer; Johannes Michael Bergmann; Kerstin Köhler; Iris Hochgraeber; Christiane Pinkert; Martina Roes; Jochen René Thyrian; Henrik Wiegelmann; Bernhard Holle
Journal:  BMC Geriatr       Date:  2022-09-01       Impact factor: 4.070

9.  "He Just Doesn't Want to Get Out of the Chair and Do It": The Impact of Apathy in People with Dementia on Their Carers.

Authors:  Chern Yi Marybeth Chang; Waqaar Baber; Tom Dening; Jennifer Yates
Journal:  Int J Environ Res Public Health       Date:  2021-06-11       Impact factor: 3.390

  9 in total

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