Literature DB >> 24317955

Barriers and facilitators to engagement and retention in care among transgender women living with human immunodeficiency virus.

Jae M Sevelius1, Enzo Patouhas, Joanne G Keatley, Mallory O Johnson.   

Abstract

BACKGROUND: Transgender women have 49 times the odds of human immunodeficiency virus (HIV) infection compared to other groups, yet they are disproportionately underserved by current treatment efforts.
PURPOSE: This study aimed to examine culturally unique barriers and facilitators to engagement and retention in HIV care and strengthen efforts to mitigate health disparities, guided by the Models of Gender Affirmation and Health Care Empowerment.
METHODS: Through 20 interviews and five focus groups (n = 38), transgender women living with HIV discussed their experiences and life contexts of engagement in and adherence to HIV care and treatment.
RESULTS: Our participants faced substantial challenges to adhering to HIV care and treatment, including avoidance of healthcare due to stigma and past negative experiences, prioritization of hormone therapy, and concerns about adverse interactions between antiretroviral treatment for HIV and hormone therapy. Receiving culturally competent, transgender-sensitive healthcare was a powerful facilitator of healthcare empowerment.
CONCLUSIONS: Recommendations are offered to inform intervention research and guide providers, emphasizing gender affirming HIV care that integrates transition-related healthcare needs.

Entities:  

Mesh:

Year:  2014        PMID: 24317955      PMCID: PMC3925767          DOI: 10.1007/s12160-013-9565-8

Source DB:  PubMed          Journal:  Ann Behav Med        ISSN: 0883-6612


  36 in total

1.  Reconceptualizing qualitative evidence.

Authors:  Janice M Morse
Journal:  Qual Health Res       Date:  2006-03

2.  Sex trade in a male-to-female transgender population: psychosocial correlates of inconsistent condom use.

Authors:  Kristen Clements-Nolle; Robert Guzman; Susan G Harris
Journal:  Sex Health       Date:  2008-03       Impact factor: 2.706

3.  Quality of life of individuals with and without facial feminization surgery or gender reassignment surgery.

Authors:  Tiffiny A Ainsworth; Jeffrey H Spiegel
Journal:  Qual Life Res       Date:  2010-05-12       Impact factor: 4.147

4.  Improving HIV/AIDS care through treatment advocacy: going beyond client education to empowerment by facilitating client-provider relationships.

Authors:  Matt G Mutchler; Glenn Wagner; Burt O Cowgill; Tara McKay; Brian Risley; Laura M Bogart
Journal:  AIDS Care       Date:  2011-01

5.  Decreases in community viral load are accompanied by reductions in new HIV infections in San Francisco.

Authors:  Moupali Das; Priscilla Lee Chu; Glenn-Milo Santos; Susan Scheer; Eric Vittinghoff; Willi McFarland; Grant N Colfax
Journal:  PLoS One       Date:  2010-06-10       Impact factor: 3.240

6.  Stigma, mental health, and resilience in an online sample of the US transgender population.

Authors:  Walter O Bockting; Michael H Miner; Rebecca E Swinburne Romine; Autumn Hamilton; Eli Coleman
Journal:  Am J Public Health       Date:  2013-03-14       Impact factor: 9.308

7.  Gender Affirmation: A Framework for Conceptualizing Risk Behavior among Transgender Women of Color.

Authors:  Jae M Sevelius
Journal:  Sex Roles       Date:  2013-06-01

8.  Provider inaccuracy in assessing adherence and outcomes with newly initiated antiretroviral therapy.

Authors:  Robert Gross; Warren B Bilker; Harvey M Friedman; James C Coyne; Brian L Strom
Journal:  AIDS       Date:  2002-09-06       Impact factor: 4.177

9.  Preliminary support for the construct of health care empowerment in the context of treatment for human immunodeficiency virus.

Authors:  Mallory O Johnson; Jeanne M Sevelius; Samantha E Dilworth; Parya Saberi; Torsten B Neilands
Journal:  Patient Prefer Adherence       Date:  2012-05-11       Impact factor: 2.711

10.  Electronic medical records and the transgender patient: recommendations from the World Professional Association for Transgender Health EMR Working Group.

Authors:  Madeline B Deutsch; Jamison Green; JoAnne Keatley; Gal Mayer; Jennifer Hastings; Alexandra M Hall
Journal:  J Am Med Inform Assoc       Date:  2013-04-30       Impact factor: 4.497

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  136 in total

1.  Structural Inequities and Social Networks Impact Hormone Use and Misuse Among Transgender Women in Los Angeles County.

Authors:  Kirsty Clark; Jesse B Fletcher; Ian W Holloway; Cathy J Reback
Journal:  Arch Sex Behav       Date:  2018-01-08

2.  Antiretroviral Treatment Interruptions Among Black and Latina Transgender Women Living with HIV: Characterizing Co-occurring, Multilevel Factors Using the Gender Affirmation Framework.

Authors:  Joseph G Rosen; Mannat Malik; Erin E Cooney; Andrea L Wirtz; Thespina Yamanis; Maren Lujan; Christopher Cannon; David Hardy; Tonia Poteat
Journal:  AIDS Behav       Date:  2019-09

3.  Healthcare Empowerment and HIV Viral Control: Mediating Roles of Adherence and Retention in Care.

Authors:  Tracey E Wilson; Emma Sophia Kay; Bulent Turan; Mallory O Johnson; Mirjam-Colette Kempf; Janet M Turan; Mardge H Cohen; Adaora A Adimora; Margaret Pereyra; Elizabeth T Golub; Lakshmi Goparaju; Lynn Murchison; Gina M Wingood; Lisa R Metsch
Journal:  Am J Prev Med       Date:  2018-04-12       Impact factor: 5.043

4.  A descriptive analysis of transgender participants in phase 1-2a trials of the HIV Vaccine Trials Network (HVTN) in the United States and Peru.

Authors:  Michele Andrasik; Doug Grove; Gail Broder; Hyman Scott; Mary Allen; Shelly Karuna
Journal:  Vaccine       Date:  2019-06-05       Impact factor: 3.641

Review 5.  Mapping patient-identified barriers and facilitators to retention in HIV care and antiretroviral therapy adherence to Andersen's Behavioral Model.

Authors:  Carol W Holtzman; Judy A Shea; Karen Glanz; Lisa M Jacobs; Robert Gross; Janet Hines; Karam Mounzer; Rafik Samuel; Joshua P Metlay; Baligh R Yehia
Journal:  AIDS Care       Date:  2015-02-11

6.  Anticipated HIV Stigma and Delays in Regular HIV Testing Behaviors Among Sexually-Active Young Gay, Bisexual, and Other Men Who Have Sex with Men and Transgender Women.

Authors:  Kristi E Gamarel; Kimberly M Nelson; Rob Stephenson; Olga J Santiago Rivera; Danielle Chiaramonte; Robin Lin Miller
Journal:  AIDS Behav       Date:  2018-02

7.  Transgender women's satisfaction with healthcare services: A mixed-methods pilot study.

Authors:  Joseph P De Santis; Monika Cintulova; Elias Provencio-Vasquez; Allan E Rodriguez; Ethan C Cicero
Journal:  Perspect Psychiatr Care       Date:  2020-04-14       Impact factor: 2.186

8.  HIV Care and Viral Load Suppression After Sexual Health Clinic Visits by Out-of-Care HIV-Positive Persons.

Authors:  Olga Tymejczyk; Kelly Jamison; Preeti Pathela; Sarah Braunstein; Julia A Schillinger; Denis Nash
Journal:  AIDS Patient Care STDS       Date:  2018-10       Impact factor: 5.078

Review 9.  Optimizing HIV prevention and care for transgender adults.

Authors:  Jordan E Lake; Jesse L Clark
Journal:  AIDS       Date:  2019-03-01       Impact factor: 4.177

10.  Psychiatric Epidemiology of Transgender and Nonbinary Adult Patients at an Urban Health Center.

Authors:  Noor Beckwith; Michal J McDowell; Sari L Reisner; Shayne Zaslow; Roger D Weiss; Kenneth H Mayer; Alex S Keuroghlian
Journal:  LGBT Health       Date:  2019-02-01       Impact factor: 4.151

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