BACKGROUND: The experiences of young people who have siblings with life-limiting illnesses are not well understood. AIM: The study proposed to identify the concerns of siblings of pediatric palliative care (PPC) patients. DESIGN AND MEASUREMENT: Semistructured interviews were administered to participants and analyzed using qualitative inductive thematic analysis. SETTING AND PARTICIPANTS: Study subjects were 18 siblings of PPC patients aged 9 to 22 living in the Auckland area. RESULTS: The siblings of PPC patients held concerns about their siblings' impending death and desires to be involved in their lives and care. CONCLUSIONS: Siblings may benefit from opportunities to be involved in conversations about mortality and the care of their ill sibling. They are able to express their concerns and help provide care to PPC patients.
BACKGROUND: The experiences of young people who have siblings with life-limiting illnesses are not well understood. AIM: The study proposed to identify the concerns of siblings of pediatric palliative care (PPC) patients. DESIGN AND MEASUREMENT: Semistructured interviews were administered to participants and analyzed using qualitative inductive thematic analysis. SETTING AND PARTICIPANTS: Study subjects were 18 siblings of PPC patients aged 9 to 22 living in the Auckland area. RESULTS: The siblings of PPC patients held concerns about their siblings' impending death and desires to be involved in their lives and care. CONCLUSIONS: Siblings may benefit from opportunities to be involved in conversations about mortality and the care of their ill sibling. They are able to express their concerns and help provide care to PPC patients.
Authors: Sarah Mitchell; Karina Bennett; Andrew Morris; Anne-Marie Slowther; Jane Coad; Jeremy Dale Journal: Palliat Med Date: 2019-08-21 Impact factor: 4.762
Authors: Anna Santini; Irene Avagnina; Anna Marinetto; Valentina De Tommasi; Pierina Lazzarin; Giorgio Perilongo; Franca Benini Journal: Front Psychol Date: 2022-03-22