Literature DB >> 24300454

Towards reducing inequalities: European Standards of Care for Children with Cancer.

Jerzy R Kowalczyk1, Marzena Samardakiewicz2, Edel Fitzgerald3, Samira Essiaf3, Ruth Ladenstein4, Gilles Vassal5, Anita Kienesberger6, Kathy Pritchard-Jones7.   

Abstract

Despite the increase of cure rates in the treatment of children with cancer there is a significant discrepancy in the outcome within Europe. Data are showing us that there is a difference of 20% in outcomes for young people with cancer when comparing North and Western Europe with Central and Eastern Europe. One of the most important necessities, in order to be able to have comparable results and equitable outcomes about inequalities, is to have the Principle Treatment Centres, meeting a minimum level of standards and being accessible to continuously updated 'best practice'. The European Society of Paediatric Oncology (SIOPE) has initiated a study in order to monitor the current situation of the European Standards of Paediatric Oncology Centres. The results of the study showed disparities of Standards of Care in the Treatment Centres across Europe. Therefore SIOPE initiated a project aimed at improving the Quality-of-Care of children and adolescents with cancer and to assess the relevant organisational aspects within paediatric oncology. At the first European Union (EU) Conference in Warsaw 2009, an agreement was obtained from all involved stakeholders to initiate the creation of Pan-European guidelines entitled 'European Standards of Care for Children with Cancer'. The guidelines outlined in this document represent the minimum standards of care that should be implemented at the EU level. Describing the different aspects of Care over 15 chapters and available in more than 16 different EU languages these guidelines are used as tools for both professionals and parent/patients groups in order to advocate 'improved standards across EU'.
Copyright © 2013 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  Children with cancer; Standards of care

Mesh:

Year:  2013        PMID: 24300454     DOI: 10.1016/j.ejca.2013.11.004

Source DB:  PubMed          Journal:  Eur J Cancer        ISSN: 0959-8049            Impact factor:   9.162


  12 in total

1.  Survey on paediatric tumour boards in Europe: current situation and results from the ExPo-r-Net project.

Authors:  A Juan Ribelles; P Berlanga; G Schreier; M Nitzlnader; B Brunmair; V Castel; S Essiaf; A Cañete; R Ladenstein
Journal:  Clin Transl Oncol       Date:  2018-01-08       Impact factor: 3.405

2.  Transplant center practices for psychosocial assessment and management of pediatric hematopoietic stem cell donors.

Authors:  Lori Wiener; Jennifer A Hoag; Wendy Pelletier; Nirali N Shah; Bronwen E Shaw; Michael A Pulsipher; Jessica Bruce; Peter Bader; Andre M Willasch; Arnaud Dalissier; Gregory Guilcher; Chloe Anthias; Dennis L Confer; Jennifer A Sees; Brent Logan; Galen E Switzer
Journal:  Bone Marrow Transplant       Date:  2019-04-10       Impact factor: 5.483

3.  Cancer in children and adolescents in Spain: incidence, treatment setting and provider specialty.

Authors:  P Berlanga; M L Vicente; A Cañete; C Alberich; V Castel
Journal:  Clin Transl Oncol       Date:  2015-06-25       Impact factor: 3.405

4.  Paediatric tumour boards in Spain: a national survey.

Authors:  P Berlanga; V Segura; A Juan Ribelles; P Sánchez de Toledo; T Acha; V Castel; A Cañete
Journal:  Clin Transl Oncol       Date:  2015-12-22       Impact factor: 3.405

Review 5.  Pediatric psycho-oncology care: standards, guidelines, and consensus reports.

Authors:  Lori Wiener; Adrienne Viola; Julia Koretski; Emily Diana Perper; Andrea Farkas Patenaude
Journal:  Psychooncology       Date:  2014-06-06       Impact factor: 3.894

6.  Declining childhood and adolescent cancer mortality: great progress but still much to be done.

Authors:  Kathy Pritchard-Jones; Darren Hargrave
Journal:  Cancer       Date:  2014-05-22       Impact factor: 6.860

7.  Years of life lost as a measure of cancer burden on a national level.

Authors:  O T Brustugun; B Møller; A Helland
Journal:  Br J Cancer       Date:  2014-07-01       Impact factor: 7.640

8.  Childhood cancer incidence and survival in Japan and England: A population-based study (1993-2010).

Authors:  Kayo Nakata; Yuri Ito; Winnie Magadi; Audrey Bonaventure; Charles A Stiller; Kota Katanoda; Tomohiro Matsuda; Isao Miyashiro; Kathy Pritchard-Jones; Bernard Rachet
Journal:  Cancer Sci       Date:  2017-12-26       Impact factor: 6.716

9.  Concurrence of sleep problems and distress: prevalence and determinants in parents of children with cancer.

Authors:  Niki Rensen; Lindsay M H Steur; Sasja A Schepers; Johannes H M Merks; Annette C Moll; Martha A Grootenhuis; Gertjan J L Kaspers; Raphaële R L van Litsenburg
Journal:  Eur J Psychotraumatol       Date:  2019-07-22

10.  Challenges for children and adolescents with cancer in Europe: the SIOP-Europe agenda.

Authors:  Gilles Vassal; Edel Fitzgerald; Martin Schrappe; Frédéric Arnold; Jerzy Kowalczyk; David Walker; Lars Hjorth; Riccardo Riccardi; Anita Kienesberger; Kathy-Pritchard Jones; Maria Grazia Valsecchi; Dragana Janic; Henrik Hasle; Pamela Kearns; Giulia Petrarulo; Francesco Florindi; Samira Essiaf; Ruth Ladenstein
Journal:  Pediatr Blood Cancer       Date:  2014-04-07       Impact factor: 3.167

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