Marta Bassi1, Monica Falautano2, Sabina Cilia3, Benedetta Goretti4, Monica Grobberio5, Marianna Pattini6, Erika Pietrolongo7, Rosa Gemma Viterbo8, Maria Pia Amato4, Miriam Benin5, Alessandra Lugaresi7, Vittorio Martinelli2, Enrico Montanari6, Francesco Patti3, Maria Trojano8, Antonella Delle Fave9. 1. Department of Biomedical and Clinical Sciences L. Sacco, University of Milano, Milano, Italy. Electronic address: marta.bassi@unimi.it. 2. Neurological Department, IRCCS Hospital San Raffaele, Milano, Italy. 3. Multiple Sclerosis Centre, University Polyclinic Hospital G. Rodolico, Catania, Italy. 4. Department of NEUROFARBA, University of Florence, Florence, Italy. 5. Department of Neurology, S. Anna Hospital, Como, Italy. 6. Multiple Sclerosis Centre, UOC Neurology Unit, Hospital of Vaio-Fidenza, Fidenza, Italy. 7. Department of Neuroscience and Imaging, University G. d'Annunzio, Chieti, Italy. 8. Department of Basic Medical Sciences, Neurosciences and Sense Organs, University of Bari, Bari, Italy. 9. Department of Pathophysiology and Transplantation, University of Milano, Milano, Italy.
Abstract
BACKGROUND: Studies on emotional distress and health-related quality of life (HRQOL) broadened the traditional bio-medical focus in MS research, but little attention was paid to general well-being indicators. OBJECTIVE: To investigate for the first time both ill-being and well-being dimensions in persons with MS (PwMSs), caregivers and health professionals, in relation to both health and life in general. METHODS: A multi-center study assessed participants' depression (Beck Depression Inventory-II), HRQOL (Short Form-36), psychological well-being (Psychological Well-Being Scales), optimal experience (Flow Questionnaire), life satisfaction (Satisfaction with Life Scale), hedonic balance (Positive Affect and Negative Affect Schedule). Demographic and clinical information was also gathered. RESULTS: Overall, 71 PwMSs, 71 caregivers and 26 professionals were enrolled (N=168). Compared to healthy populations, PwMSs reported higher depression, lower HRQOL and lower general well-being; caregivers presented higher depression and lower general well-being; professionals reported the best ill- and well-being profiles. However, after controlling for demographic differences in age and education, hierarchical regressions highlighted that, though PwMSs reported higher depression and lower HRQOL than caregivers and professionals, their general well-being substantially leveled off. CONCLUSIONS: Well-being coexists with ill-being. It can counterbalance the negative effects of disease or caregiving, and its measurement could complement and support medical intervention.
BACKGROUND: Studies on emotional distress and health-related quality of life (HRQOL) broadened the traditional bio-medical focus in MS research, but little attention was paid to general well-being indicators. OBJECTIVE: To investigate for the first time both ill-being and well-being dimensions in persons with MS (PwMSs), caregivers and health professionals, in relation to both health and life in general. METHODS: A multi-center study assessed participants' depression (Beck Depression Inventory-II), HRQOL (Short Form-36), psychological well-being (Psychological Well-Being Scales), optimal experience (Flow Questionnaire), life satisfaction (Satisfaction with Life Scale), hedonic balance (Positive Affect and Negative Affect Schedule). Demographic and clinical information was also gathered. RESULTS: Overall, 71 PwMSs, 71 caregivers and 26 professionals were enrolled (N=168). Compared to healthy populations, PwMSs reported higher depression, lower HRQOL and lower general well-being; caregivers presented higher depression and lower general well-being; professionals reported the best ill- and well-being profiles. However, after controlling for demographic differences in age and education, hierarchical regressions highlighted that, though PwMSs reported higher depression and lower HRQOL than caregivers and professionals, their general well-being substantially leveled off. CONCLUSIONS: Well-being coexists with ill-being. It can counterbalance the negative effects of disease or caregiving, and its measurement could complement and support medical intervention.
Authors: Andrea Giordano; Silvia Testa; Marta Bassi; Sabina Cilia; Antonio Bertolotto; Maria Esmeralda Quartuccio; Erika Pietrolongo; Monica Falautano; Monica Grobberio; Claudia Niccolai; Beatrice Allegri; Rosa Gemma Viterbo; Paolo Confalonieri; Ambra Mara Giovannetti; Eleonora Cocco; Maria Grazia Grasso; Alessandra Lugaresi; Elisa Ferriani; Ugo Nocentini; Mauro Zaffaroni; Alysha De Livera; George Jelinek; Alessandra Solari; Rosalba Rosato Journal: Qual Life Res Date: 2019-11-09 Impact factor: 4.147
Authors: Małgorzata Szcześniak; Andrzej Potemkowski; Waldemar Brola; Zdzisław Kroplewski; Roman Ryszard Szałachowski; Marek Zak; Maciej Wilski; Piotr Sobolewski; Halina Bartosik-Psujek; Katarzyna Kapica-Topczewska; Joanna Tarasiuk; Agata Czarnowska; Alina Kułakowska; Beata Zakrzewska-Pniewska; Katarzyna Kubicka-Bączyk; Natalia Morawiec; Monika Adamczyk-Sowa; Adam Stępień; Jacek Zaborski; Anna Ratajczak; Marcin Ratajczak Journal: Int J Environ Res Public Health Date: 2022-04-29 Impact factor: 4.614
Authors: Antonella Delle Fave; Marta Bassi; Elena S Boccaletti; Carlotta Roncaglione; Giuseppina Bernardelli; Daniela Mari Journal: Front Psychol Date: 2018-05-28