Literature DB >> 24260990

'What I want clinicians to know'--experiences of people with arthritis.

Sarah Ryan1, Kate Lillie, Cath Thwaites, Jo Adams.   

Abstract

AIM: To explore the perceptions and experiences of people with osteoarthrits (OA) and rheumatoid arthritis (RA) regarding the knowledge and skills they want nurses and allied health professionals (AHPs) to have to manage their care needs.
METHOD: Two condition-specific focus groups were conducted in London with five people with OA and eight people with RA in January 2011. A semistructured interview guide was used. The focus groups were audiotaped and the transcripts analysed using content analysis.
RESULTS: Shared and condition-specific themes were identified. The shared themes were: living with pain; the need for self-management; and meaningful consultation. The condition-specific themes were: no experts in OA; and wanting to talk in the RA participants.
CONCLUSION: People with OA and RA wanted nurses and AHPs to listen, empathise and help them to manage their condition, especially the pain. Participants with RA would value psychological support. We need to ensure that nurses and AHPs have the knowledge and skills to address these needs.

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Mesh:

Year:  2013        PMID: 24260990     DOI: 10.12968/bjon.2013.22.14.808

Source DB:  PubMed          Journal:  Br J Nurs        ISSN: 0966-0461


  5 in total

1.  [EULAR recommendations for patient education of people with inflammatory arthritis. Translation and evaluation in Germany].

Authors:  J Patermann; I Ehlebracht-König; G Lind-Albrecht; E Genth; A Reusch; R Küffner; U Müller-Ladner; J Braun
Journal:  Z Rheumatol       Date:  2016-03       Impact factor: 1.372

2.  Value-Based Health Care for Chronic Care: Aligning Outcomes Measurement with the Patient Perspective.

Authors:  David Ebbevi; Helena Hvitfeldt Forsberg; Anna Essén; Sofia Ernestam
Journal:  Qual Manag Health Care       Date:  2016 Oct/Dec       Impact factor: 0.926

Review 3.  Challenges and controversies of complex interventions in osteoarthritis management: recognizing inappropriate and discordant care.

Authors:  Krysia S Dziedzic; Kelli D Allen
Journal:  Rheumatology (Oxford)       Date:  2018-05-01       Impact factor: 7.580

4.  Exploring what patients with musculoskeletal conditions want from first point-of-contact health practitioners.

Authors:  Jo Erwin; Kenneth Chance-Larsen; Michael Backhouse; Anthony D Woolf
Journal:  Rheumatol Adv Pract       Date:  2020-01-07

5.  Networks of Care: A Social Network Perspective of Distributed Multidisciplinary Care for People With Inflammatory Arthritis.

Authors:  Wendy Hartford; Catherine L Backman; Linda C Li; Shanon McQuitty; Annette McKinnon; Raheem Kherani; Laura Nimmon
Journal:  ACR Open Rheumatol       Date:  2021-10-22
  5 in total

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