Literature DB >> 24239434

Understanding the perceived treatment needs of patients with psychogenic nonepileptic seizures.

Gillian Fairclough1, John Fox2, Gemma Mercer3, Markus Reuber4, Richard James Brown2.   

Abstract

Psychological therapy is generally considered the treatment of choice for psychogenic nonepileptic seizures (PNES), but there is a paucity of research on patients' attitudes towards psychological referral. We conducted semistructured interviews with twelve patients with PNES awaiting psychological treatment in order to understand their perceived treatment needs. Data were analyzed inductively according to the principles of thematic analysis. The results indicated that our patients had clear ideas about their treatment needs and a desire to recover by 'returning to normality'. Many participants felt 'caught in limbo' following their PNES diagnosis, however, because of uncertainties about their condition and a lack of support from professionals. This linked with participants feeling unsure whether psychological treatment would meet their needs; there was also apprehension for some participants about the potential negative consequences of therapy. The clinical implications of these findings are discussed, and recommendations for future research are made.
© 2013.

Entities:  

Keywords:  Perspectives; Psychogenic nonepileptic seizures; Psychology; Therapy; Treatment needs; Views

Mesh:

Year:  2013        PMID: 24239434     DOI: 10.1016/j.yebeh.2013.10.025

Source DB:  PubMed          Journal:  Epilepsy Behav        ISSN: 1525-5050            Impact factor:   2.937


  6 in total

1.  Cognitive-behavioural therapy compared with standardised medical care for adults with dissociative non-epileptic seizures: the CODES RCT.

Authors:  Laura H Goldstein; Emily J Robinson; Izabela Pilecka; Iain Perdue; Iris Mosweu; Julie Read; Harriet Jordan; Matthew Wilkinson; Gregg Rawlings; Sarah J Feehan; Hannah Callaghan; Elana Day; James Purnell; Maria Baldellou Lopez; Alice Brockington; Christine Burness; Norman A Poole; Carole Eastwood; Michele Moore; John Dc Mellers; Jon Stone; Alan Carson; Nick Medford; Markus Reuber; Paul McCrone; Joanna Murray; Mark P Richardson; Sabine Landau; Trudie Chalder
Journal:  Health Technol Assess       Date:  2021-06       Impact factor: 4.014

2.  " Blaming, shaming, humiliation": Stigmatising medical interactions among people with non-epileptic seizures.

Authors:  Catherine Robson; Olaug S Lian
Journal:  Wellcome Open Res       Date:  2017-10-24

3.  Disentangling Stigma from Functional Neurological Disorders: Conference Report and Roadmap for the Future.

Authors:  Karen S Rommelfanger; Stewart A Factor; Suzette LaRoche; Phyllis Rosen; Raymond Young; Mark H Rapaport
Journal:  Front Neurol       Date:  2017-03-29       Impact factor: 4.003

4.  The experience of trial participation, treatment approaches and perceptions of change among participants with dissociative seizures within the CODES randomized controlled trial: A qualitative study.

Authors:  Julie Read; Harriet Jordan; Iain Perdue; James Purnell; Joanna Murray; Trudie Chalder; Markus Reuber; Jon Stone; Laura H Goldstein
Journal:  Epilepsy Behav       Date:  2020-07-05       Impact factor: 2.937

5.  Health related quality of life of people with non-epileptic seizures: The role of socio-demographic characteristics and stigma.

Authors:  Catherine Robson; Lorna Myers; Chrisma Pretorius; Olaug S Lian; Markus Reuber
Journal:  Seizure       Date:  2018-01-12       Impact factor: 3.184

6.  Functional seizures: The patient's perspective of a diagnostic and treatment odyssey.

Authors:  Heather J Andrini; Sydni L Au Hoy; Ashley M Okhovat; Juliana Lockman; Gregory R Goldsmith
Journal:  Epilepsy Behav Rep       Date:  2021-11-26
  6 in total

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