| Literature DB >> 24174871 |
Nina Weymann1, Martin Härter, Frank Petrak, Jörg Dirmaier.
Abstract
PURPOSE: Patient involvement in diabetes treatment such as shared decision-making and patient self-management has significant effects on clinical parameters. As a prerequisite for active involvement, patients need to be informed in an adequate and preference-sensitive way. Interactive Health Communication Applications (IHCAs) that combine web-based health information for patients with additional support offer the opportunity to reach great numbers of patients at low cost and provide them with high-quality information and support at the time, place, and learning speed they prefer. Still, web-based interventions often suffer from high attrition. Tailoring the intervention to patients' needs and preferences might reduce attrition and should thereby increase effectiveness. The purpose of this study was to develop a tailored IHCA offering evidence-based, preference-sensitive content and treatment decision support to patients with type 2 diabetes. The content was developed based on a needs assessment and two evidence-based treatment guidelines. The delivery format is a dialogue-based, tunneled design tailoring the content and tone of the dialogue to relevant patient characteristics (health literacy, attitudes toward self-care, and psychological barriers to insulin treatment). Both content and tailoring were revised by an interdisciplinary advisory committee.Entities:
Keywords: Internet; development; interactive health communication application; type 2 diabetes
Year: 2013 PMID: 24174871 PMCID: PMC3808151 DOI: 10.2147/PPA.S46924
Source DB: PubMed Journal: Patient Prefer Adherence ISSN: 1177-889X Impact factor: 2.711
Quality criteria for patient health information
| Scope and purpose |
| • Is the goal of the publication clearly defined? |
| • Is the target group of the publication clearly defined? |
| Stakeholder involvement |
| • Are the names of the authors stated? |
| • Are the qualifications of the authors stated? |
| • Is it stated whether patients or self-help organizations were involved in the development of the publication? |
| Accuracy |
| • Is it stated if the publication is based on scientific sources? |
| • Are the kinds of scientific sources stated? |
| • Is the date of creation stated? |
| • Is it stated how long the publication remains valid? |
| • Is a revision date stated? |
| • Is it stated whether the publication was developed following certain quality criteria (eg, DISCERN)? |
| • Is it stated whether the website holding the information participates in a quality initiative (eg, AFGIS, HON code, MedCIRCLE)? |
| • Does the publication contain sufficient information on additional information and literature? |
| • Are the modes of action of the medical procedures described sufficiently? |
| • Are the benefits of the medical procedures described sufficiently? |
| • Are potential risks of the medical procedures described sufficiently? |
| • Is it stated whether the medical procedures affect daily life? |
| • Is it stated whether there are contradicting results or experiences with respect to the medical procedures’ effects and side effects? |
| • Is it explicitly stated whether all known medical procedures for the problem in question are named? |
| • Is the natural course of the condition (without treatment) described? |
| Editorial independence |
| • Is the publication independent and unbiased? |
| Clarity of design |
| • Is it easy to identify the most important content? |
| • Is the content comprehensible? |
| Additional criteria for online health information |
| • Is it stated who operates the website? |
| • Is there a data security statement? |
| • Can the author and the webmaster be contacted directly? |
| • Is access unlimited? |
| • Can the content be printed in a single document? |
Notes: Translated with permission from http://www.afgis.de/.35
Abbreviations: afgis, Aktionsforum Gesundeitsinformationssystem; HON, Health On the Net;
Overview of the IHCA’s content
| Chapters and sections |
| 1. Introduction: What is this website? |
| 1.1. Where does the information on this site come from? |
| 2. Basics |
| 2.1. Different diabetes types |
| 2.2. How do I know I have type 2 diabetes? |
| 2.3. What causes type 2 diabetes? |
| 2.4. How many people live with type 2 diabetes? |
| 2.5. How is type 2 diabetes diagnosed? |
| 2.6. Diabetes ABCs |
| 2.7. Blood sugar control |
| 3. How is type 2 diabetes treated? |
| 3.1. What are the goals of diabetes treatment? |
| 3.2. What can you do to treat your diabetes? |
| 3.3. When should you consider taking pills? |
| 3.4. Insulin treatment |
| 3.5. Summary and overview over the treatment options |
| 4. Acute complications and sequelae |
| 4.1. Which acute complications can occur? |
| 4.2. Which sequelae can occur? |
| 5. Additional information and literature |
| 5.1. Associations and self-help |
| 5.2. Websites |
| 5.3. Journals |
| 5.4. Books |
| 6. Glossary |
| 7. Legal notice |
| 8. References |
Notes: Modified from Weymann N, Harter M, Dirmaier J. A tailored, interactive health communication application for patients with type 2 diabetes: study protocol of a randomised controlled trial. BMC Med Inform Decis Mak. 2013;13(1):24.32
Abbreviation: IHCA, interactive Health Communication Application.
Tailoring to knowledge on symptoms of hyperglycemia
| Item | If you feel thirsty and urinate frequently, it usually means your blood sugar is: | ||
| Response options | |||
| Reply | That’s correct! if you want to learn more about what happens in the body and how you know that you have type 2 diabetes, you can go into more detail. Otherwise you can proceed to the next questin. | No, that’s not correct. Actually it’s the other way round: When you have type 2 diabetes, there is too much sugar in your blood. Unfortunately, you don’t realize it in the beginning. But there are warning signs. The most important signs are […] | That’s ok, [name], that’s what we are here for: to learn, for example, what high blood sugar does to your body. When you have type 2 diabetes, there is too much sugar in your blood. Unfortunately, you don’t realize it in the beginning. But there are warning signs. The most important signs are […] |
Tailoring to attitudes toward foot care
| Item | People with diabetes are advised to regularly check their feet and the inside of their shoes. People differ a lot with respect to the importance they attach to ‘good advice’ of this kind. How important is this advice for you personally? | ||
| Reply options | |||
| OK, so this recommendation is not important for you. Maybe you are very aware of the inconvenience of daily foot care. You are right there; it takes some effort in the beginning. At the same time, it helps a lot to prevent diabetic foot syndrome. A diabetic foot can be painful and can lead to amputation. There is a great benefit for the comparatively small effort of taking care of your feet. For many people, the first step is the hardest. Once you get used to it, the effort does not seem so great anymore. | OK, so this recommendation is a little important for you. Maybe you are aware of the inconvenience of daily foot care. At the same time, it helps a lot to prevent diabetic foot syndrome. A diabetic foot can be painful and can lead to amputation. There is a great benefit for the comparatively small effort of taking care of your feet. For many people, the first step is the hardest. Once you get used to it, the effort does not seem so great anymore. | You are right, this recommendation is really important. Looking after your feet can be inconvenient but helps a lot to prevent diabetic foot syndrome. (br/)A diabetic foot can be painful and can lead to amputation. There is a great benefit for the comparatively small effort of taking care of your feet. | |
Notes: Modified from Weymann N, Harter M, Dirmaier J. A tailored, interactive health communication application for patients with type 2 diabetes: study protocol of a randomised controlled trial. BMC Med Inform Decis Mak. 2013;13(1):24.32
Tailoring to an expressed fear of hypoglycemia
| Items | 1. An overdose of insulin can lead to extremely low blood sugar (hypoglycemia). I am afraid of disagreeable symptoms. | |||||||||
| Completely disagree | Completely agree | |||||||||
| 1 | 2 | 3 | 4 | 5 | 6 | 7 | 8 | 9 | 10 | |
| 2. An overdose of insulin can lead to extremely low blood sugar (hypoglycemia). i am afraid of resulting health damages. | ||||||||||
| Completely disagree | Completely agree | |||||||||
| 1 | 2 | 3 | 4 | 5 | 6 | 7 | 8 | 9 | 10 | |
| Reply | Having slightly low blood sugar is hard to avoid when your blood sugar is in tight control. Usually, this can be handled easily. As long as you reliably notice the first symptoms of such a slight hypoglycemia, it is no serious problem. They are an annoying but harmless side effect of insulin treatment. | |||||||||
| Most people with diabetes notice these warning signs very well, at the start of hypoglycemia so they can counteract them (eg, by taking glucose). A minority of people with diabetes suffer from hypoglycemia unawareness. That means that you have difficulties noticing these helpful warning signs. Mostly people who have been living with diabetes for a longer time suffer from hypoglycemia unawareness. There are things you can do to improve hypoglycemia awareness, for example, by taking part in blood glucose awareness training. If slight hypoglycemia occurs frequently or if you have severe hypoglycemia you should talk to your doctor about adapting your therapy. | ||||||||||
Note:
The reply is given if a user reaches a sum score >1 in the two items.