Literature DB >> 24157936

Conceptualizing prognostic awareness in advanced cancer: a systematic review.

Allison J Applebaum1, Elissa A Kolva2, Julia R Kulikowski3, Jordana D Jacobs3, Antonio DeRosa3, Wendy G Lichtenthal3, Megan E Olden4, Barry Rosenfeld2, William Breitbart3.   

Abstract

This systematic review synthesizes the complex literature on prognostic awareness in cancer. A total of 37 studies examining cancer patients' understanding of their prognosis were included. Prognostic awareness definitions and assessment methods were inconsistent across studies. A surprisingly high percentage of patients (up to 75%) were unaware of their poor prognosis, and in several studies, even their cancer diagnosis (up to 96%), particularly in studies conducted outside of North America. This review highlights surprisingly low rates of prognostic awareness in patients with advanced cancer as well as discrepancies in prognostic awareness assessment, suggesting the need for empirically validated measures of prognostic awareness.
© The Author(s) 2013.

Entities:  

Keywords:  advanced cancer; awareness of diagnosis; peaceful awareness; prognosis; prognostic awareness

Mesh：

Year:  2013        PMID： 24157936      PMCID： PMC4665620          DOI： 10.1177/1359105313484782

Source DB:  PubMed          Journal:  J Health Psychol        ISSN： 1359-1053


  58 in total

1.  The brief illness perception questionnaire.

Authors:  Elizabeth Broadbent; Keith J Petrie; Jodie Main; John Weinman
Journal:  J Psychosom Res       Date:  2006-06       Impact factor: 3.006

2.  Impact of awareness of terminal illness and use of palliative care or intensive care unit on the survival of terminally ill patients with cancer: prospective cohort study.

Authors:  Young Ho Yun; Myung Kyung Lee; Seon Young Kim; Woo Jin Lee; Kyung Hae Jung; Young Rok Do; Samyong Kim; Dae Seog Heo; Jong Soo Choi; Sang Yoon Park; Hyun Sik Jeong; Jung Hun Kang; Si-Young Kim; Jungsil Ro; Jung Lim Lee; Sook Ryun Park; Sohee Park
Journal:  J Clin Oncol       Date:  2011-05-16       Impact factor: 44.544

3.  Awareness of disease among Italian cancer patients: is there a need for further improvement in patient information? The Italian Group for the Evaluation of Outcomes in Oncology (IGEO).

Authors: 
Journal:  Ann Oncol       Date:  1999-09       Impact factor: 32.976

4.  Peaceful awareness in patients with advanced cancer.

Authors:  Alaka Ray; Susan D Block; Robert J Friedlander; Baohui Zhang; Paul K Maciejewski; Holly G Prigerson
Journal:  J Palliat Med       Date:  2006-12       Impact factor: 2.947

5.  Communicating prognosis to patients with metastatic disease: what do they really want to know?

Authors:  P N Butow; S Dowsett; R Hagerty; M H N Tattersall
Journal:  Support Care Cancer       Date:  2001-09-07       Impact factor: 3.603

6.  Cancer by another name: a randomized trial of the effects of euphemism and uncertainty in communicating with cancer patients.

Authors:  S M Dunn; P U Patterson; P N Butow; H H Smartt; W H McCarthy; M H Tattersall
Journal:  J Clin Oncol       Date:  1993-05       Impact factor: 44.544

7.  Cancer patients' awareness of disease and satisfaction with services: the influence of their general education level.

Authors:  U Derman; P Serbest
Journal:  J Cancer Educ       Date:  1993       Impact factor: 2.037

8.  Do rates of mental disorders and existential distress among advanced stage cancer patients increase as death approaches?

Authors:  Wendy G Lichtenthal; Matthew Nilsson; Baohui Zhang; Elizabeth D Trice; David W Kissane; William Breitbart; Holly G Prigerson
Journal:  Psychooncology       Date:  2009-01       Impact factor: 3.894

9.  Prognostic acceptance and the well-being of patients receiving palliative care for cancer.

Authors:  Genevieve N Thompson; Harvey M Chochinov; Keith G Wilson; Christine J McPherson; Srini Chary; Fiona M O'Shea; David R Kuhl; Robin L Fainsinger; Pierre R Gagnon; Karen A Macmillan
Journal:  J Clin Oncol       Date:  2009-10-13       Impact factor: 44.544

10.  Patient-oncologist communication in advanced cancer: predictors of patient perception of prognosis.

Authors:  Tracy M Robinson; Stewart C Alexander; Margie Hays; Amy S Jeffreys; Maren K Olsen; Keri L Rodriguez; Kathryn I Pollak; Amy P Abernethy; Robert Arnold; James A Tulsky
Journal:  Support Care Cancer       Date:  2008-01-15       Impact factor: 3.603
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  30 in total

1.  Optimism, social support, and mental health outcomes in patients with advanced cancer.

Authors:  Allison J Applebaum; Emma M Stein; Jennifer Lord-Bessen; Hayley Pessin; Barry Rosenfeld; William Breitbart
Journal:  Psychooncology       Date:  2013-10-07       Impact factor: 3.894

2.  The Experience of Being Aware of Disease Status in Women with Recurrent Ovarian Cancer: A Phenomenological Study.

Authors:  Catherine Scott Finlayson; Mei R Fu; Allison Squires; Allison Applebaum; Janet Van Cleave; Roisin O'Cearbhaill; Antonio P DeRosa
Journal:  J Palliat Med       Date:  2018-11-08       Impact factor: 2.947

3.  End-of-life decision making in the context of chronic life-limiting disease: a concept analysis and conceptual model.

Authors:  Kristin Levoy; Elise C Tarbi; Joseph P De Santis
Journal:  Nurs Outlook       Date:  2020-09-15       Impact factor: 3.250

Review 4.  Serious Choices: A Protocol for an Environmental Scan of Patient Decision Aids for Seriously Ill People at Risk of Death Facing Choices about Life-Sustaining Treatments.

Authors:  Catherine H Saunders; Glyn Elwyn; Kathryn Kirkland; Marie-Anne Durand
Journal:  Patient       Date:  2018-02       Impact factor: 3.883

Review 5.  The relationship between acceptance of cancer and distress: A meta-analytic review.

Authors:  Ekin Secinti; Danielle B Tometich; Shelley A Johns; Catherine E Mosher
Journal:  Clin Psychol Rev       Date:  2019-05-03

6.  Unpacking cancer patients' preferences for information about their care.

Authors:  Erin M Ellis; Ashley Varner
Journal:  J Psychosoc Oncol       Date:  2017-11-21

7.  It Is Not What You Think: Associations Between Perceived Cognitive and Physical Status and Prognostic Understanding in Patients With Advanced Cancer.

Authors:  Keiko Kurita; Eugenia L Siegler; M Cary Reid; Renee C Maciejewski; Holly G Prigerson
Journal:  J Pain Symptom Manage       Date:  2018-05-10       Impact factor: 3.612

Review 8.  Prognostic awareness and communication of prognostic information in malignant glioma: a systematic review.

Authors:  Eli L Diamond; Geoffrey W Corner; Antonio De Rosa; William Breitbart; Allison J Applebaum
Journal:  J Neurooncol       Date:  2014-05-30       Impact factor: 4.130

9.  Accuracy of advanced cancer patients' life expectancy estimates: The role of race and source of life expectancy information.

Authors:  Kelly M Trevino; Baohui Zhang; Megan J Shen; Holly G Prigerson
Journal:  Cancer       Date:  2016-03-29       Impact factor: 6.860

10.  Perception of Curability Among Advanced Cancer Patients: An International Collaborative Study.

Authors:  Sriram Yennurajalingam; Luis Fernando Rodrigues; Omar Shamieh; Colombe Tricou; Marilène Filbet; Kyaw Naing; Akhileshwaran Ramaswamy; Pedro Emilio Perez-Cruz; Mary Jocelyn S Bautista; Sofia Bunge; Mary Ann Muckaden; Vikash Sewram; Sarah Fakrooden; Antonio Noguera-Tejedor; Shobha S Rao; Diane Liu; Minjeong Park; Janet L Williams; Zhanni Lu; Hilda Cantu; David Hui; Suresh K Reddy; Eduardo Bruera
Journal:  Oncologist       Date:  2017-11-20
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