Literature DB >> 24154844

Belgian siblings of children with a chronic illness: Is their quality of life different from their peers?

Trudy Havermans1, Ilse De Croock1, Trui Vercruysse1, Eveline Goethals1, Ilse Van Diest2.   

Abstract

To assess Belgian siblings' self-reported quality of life (QoL) and the impact of illness on four different paediatric illnesses. Healthy siblings (n = 131) of children with type 1 diabetes, cancer, congenital heart disease (CHD) and cystic fibrosis (CF) completed the Child Health Questionnaire and the Sibling Perception Questionnaire. Results were compared to those of a matched group of siblings of healthy children. Siblings reported a good QoL, similar to controls, with the exception that siblings reported better on the QoL domain pain (p < .01). QoL was not related to time since diagnosis but the impact of illness was higher nearer to the time of diagnosis (r = -.39, p < .001). QoL of siblings of children with CHD or cancer was lower than QoL in the CF or type 1 diabetes group whilst impact of illness was highest for the CHD group. QoL of siblings of a child with a chronic illness is similar to the QoL of peers. Studies investigating siblings' QoL or the impact of illness on siblings should include the day-to-day demands of the illness as well as less obvious illness-related issues like 'hidden stress' and 'sense of control'.
© The Author(s) 2013.

Entities:  

Keywords:  Chronic illness; impact of illness; quality of life; self-report; siblings

Mesh:

Year:  2013        PMID: 24154844     DOI: 10.1177/1367493513503582

Source DB:  PubMed          Journal:  J Child Health Care        ISSN: 1367-4935            Impact factor:   1.979


  9 in total

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2.  Students growing up with a chronically ill family member; a survey on experienced consequences, background characteristics, and risk factors.

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3.  Quality-of-life Evaluation of Healthy Siblings of Children with Chronic Illness

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Review 5.  Family reported outcomes, an unmet need in the management of a patient's disease: appraisal of the literature.

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Review 7.  Counting the Burden: Atopic Dermatitis and Health-related Quality of Life.

Authors:  Faraz Ali; Jui Vyas; Andrew Y Finlay
Journal:  Acta Derm Venereol       Date:  2020-06-09       Impact factor: 3.875

8.  Related Variables of Behavioral and Emotional Problems and Personal Growth of Hospitalized Children's Siblings: Mothers' and Other Main Caregivers' Perspectives.

Authors:  Kazuteru Niinomi; Minae Fukui
Journal:  Inquiry       Date:  2018 Jan-Dec       Impact factor: 1.730

Review 9.  Impact of congenital heart disease on siblings: A review.

Authors:  Roses Parker; Sarah Houghton; Elizabeth Bichard; Stephen McKeever
Journal:  J Child Health Care       Date:  2020-03-27       Impact factor: 1.979

  9 in total

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