Literature DB >> 24136318

English consensus protocol evaluating candidacy for auditory brainstem and cochlear implantation in neurofibromatosis type 2.

James R Tysome1, Patrick R Axon, Neil P Donnelly, Dafydd Gareth Evans, Rosalie E Ferner, Alec F Fitzgerald O'Connor, Simon R Freeman, Michael Gleeson, Dorothy Halliday, Frances Harris, Dan Jiang, Richard Kerr, Andrew King, Richard D Knight, Simon K Lloyd, Robert Macfarlane, Richard Mannion, Deborah Mawman, Martin O'Driscoll, Allyson Parry, James Ramsden, Richard Ramsden, Scott A Rutherford, Shakeel R Saeed, Nick Thomas, Zebunnisa H Vanat.   

Abstract

OBJECTIVE: Hearing loss resulting from bilateral vestibular schwannomas (VSs) has a significant effect on the quality of life of patients with neurofibromatosis Type 2 (NF2). A national consensus protocol was produced in England as a guide for cochlear implantation (CI) and auditory brainstem implantation (ABI) in these patients. STUDY
DESIGN: Consensus statement.
SETTING: English NF2 Service. PARTICIPANTS: Clinicians from all 4 lead NF2 units in England. MAIN OUTCOME MEASURES: A protocol for the assessment, insertion and rehabilitation of CI and ABI in NF2 patients.
RESULTS: Patients should undergo more detailed hearing assessment once their maximum aided speech discrimination score falls below 50% in the better hearing ear. Bamford-Kowal-Bench sentence testing scores below 50% should trigger assessment for auditory implantation, as recommended by the National Institute for Clinical Excellence guidelines on CI. Where this occurs in patients with bilateral stable VS or a unilateral stable VS where the contralateral cochlear nerve was lost at previous surgery, CI should be considered. Where VS surgery is planned, CI should be considered where cochlear nerve preservation is thought possible, otherwise an ABI should be considered. Intraoperative testing using electrically evoked auditory brainstem responses or cochlear nerve action potentials may be used to determine whether a CI or ABI is inserted.
CONCLUSION: The NF2 centers in England agreed on this protocol. Multisite, prospective assessments of standardized protocols for auditory implantation in NF2 provide an essential model for evaluating candidacy and outcomes in this challenging patient population.

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Year:  2013        PMID: 24136318     DOI: 10.1097/MAO.0b013e3182a1a8b4

Source DB:  PubMed          Journal:  Otol Neurotol        ISSN: 1531-7129            Impact factor:   2.311


  4 in total

1.  Ipsilateral cochlear implantation in patients with sporadic vestibular schwannoma in the only or best hearing ear and in patients with NF2.

Authors:  Luis Lassaletta; Miguel Aristegui; Marimar Medina; Gracia Aranguez; Rosa M Pérez-Mora; Maurizio Falcioni; Javier Gavilán; Paolo Piazza; Mario Sanna
Journal:  Eur Arch Otorhinolaryngol       Date:  2014-12-24       Impact factor: 2.503

2.  Cochlear implantation for hearing rehabilitation in single-sided deafness after translabyrinthine vestibular schwannoma surgery.

Authors:  Frederike Hassepass; Susan Arndt; Antje Aschendorff; Roland Laszig; Thomas Wesarg
Journal:  Eur Arch Otorhinolaryngol       Date:  2015-10-23       Impact factor: 2.503

3.  Regulatory and funding strategies to develop a safety study of an auditory brainstem implant in young children who are deaf.

Authors:  Laurel M Fisher; Laurie S Eisenberg; Mark Krieger; Eric P Wilkinson; Robert V Shannon
Journal:  Ther Innov Regul Sci       Date:  2015-09       Impact factor: 1.778

4.  Genetic Severity Score predicts clinical phenotype in NF2.

Authors:  Dorothy Halliday; Beatrice Emmanouil; Pieter Pretorius; Samuel MacKeith; Sally Painter; Helen Tomkins; D Gareth Evans; Allyson Parry
Journal:  J Med Genet       Date:  2017-08-28       Impact factor: 6.318

  4 in total

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