Literature DB >> 24117033

Examining preferences for website support to parents of adolescents with diabetes.

David B Nicholas1, Carl Gutwin, Barbara Paterson.   

Abstract

Diabetes can be stressful as parents seek optimal outcomes for their adolescent with type 1 diabetes. This study examined parents' interest and perspectives related to online diabetes resources. Based on a qualitative description approach, 14 qualitative group interviews were conducted with (i) parents of adolescents with diabetes (n = 29), and (ii) pediatric health care providers (n = 31). Participants were recruited, through a purposive sampling approach, at pediatric centers in three Canadian cities. Qualitative data were subjected to thematic analysis comprising data coding, categorization, and ultimate theme generation. Participants described parental care for adolescents with diabetes as complex and reflective of difficult and nuanced tasks. They recommended the development of a comprehensive parent-based information and support website, and identified crucial elements of the website. Overarching themes comprised the following: complex parenting processes in diabetes care, parents' need for information and support, challenges and benefits of online support, key elements of an online resource, and caution regarding online resources. Based on these findings, website information and support emerged as a viable and desired resource for augmenting pediatric care within clinical settings. Caution was also offered in addressing potential challenges inherent in online support. Findings offer guidance for online support to parents.

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Year:  2013        PMID: 24117033     DOI: 10.1080/00981389.2013.827144

Source DB:  PubMed          Journal:  Soc Work Health Care        ISSN: 0098-1389


  7 in total

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4.  Sugarsquare, a Web-Based Patient Portal for Parents of a Child With Type 1 Diabetes: Multicenter Randomized Controlled Feasibility Trial.

Authors:  Emiel Boogerd; Nienke M Maas-Van Schaaijk; Theo C Sas; Agnes Clement-de Boers; Mischa Smallenbroek; Roos Nuboer; Cees Noordam; Chris M Verhaak
Journal:  J Med Internet Res       Date:  2017-08-22       Impact factor: 5.428

5.  The Sugarsquare study: protocol of a multicenter randomized controlled trial concerning a web-based patient portal for parents of a child with type 1 diabetes.

Authors:  Emiel A Boogerd; Cees Noordam; Chris M Verhaak
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6.  An Evaluation and Ranking of Children's Hospital Websites in the United States.

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Journal:  J Med Internet Res       Date:  2016-08-22       Impact factor: 5.428

7.  Contesting Sexual Prejudice to Support Sexual Minorities: Views of Chinese Social Workers.

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  7 in total

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