Literature DB >> 24117031

Breaking through the silence: the experience of living with HIV-positive serostatus, and its implications on disclosure.

Rena Feigin1, Yaffa Sapir, Naama Patinkin, Dan Turner.   

Abstract

AIDS has reached pandemic proportions and despite advances in medical treatment both the medical and social consequences of HIV-positive serostatus continue to be of concern throughout the world. In countries with greater access to antiretroviral therapy (ARV), HIV/AIDS it is no longer defined as fatal, but rather a chronic disease, thereby this study seeks to understand the experience of individuals living with HIV-positive serostatus, a multifaceted disease, from the time the infection is diagnosed through the four post-diagnosis years, and in particular its implications on the issue of disclosure. A qualitative analysis was conducted, based on 13 in-depth interviews with participants who are HIV-positive and the data was analyzed by inductive content analysis. The results identify six themes, four central elements that compose the experience of living with HIV: the emotional experience, the stigma attached to HIV, the inner dialogue, and disclosure. A three-phase coping process and personality differences were found, all of which will be discussed. The issue of disclosure was found to be cardinal and problematic in its impact on the patient's wellbeing.

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Year:  2013        PMID: 24117031     DOI: 10.1080/00981389.2013.827143

Source DB:  PubMed          Journal:  Soc Work Health Care        ISSN: 0098-1389


  8 in total

1.  Psychosocial Aspects of ART Counseling: A Comparison of HIV Beliefs and Knowledge in PMTCT and ART-Naïve Women.

Authors:  Hetta Gouse; Michelle Henry; Reuben N Robbins; Javier Lopez-Rios; Claude A Mellins; Robert H Remien; John A Joska
Journal:  J Assoc Nurses AIDS Care       Date:  2017-03-16       Impact factor: 1.354

2.  Quality of Life of People Living with HIV in Australia: The Role of Stigma, Social Disconnection and Mental Health.

Authors:  Carley J Mendonca; Toby R O Newton-John; Dion M Alperstein; Kim Begley; Ruth M Hennessy; Shiraze M Bulsara
Journal:  AIDS Behav       Date:  2022-07-13

3.  Predictors of Stigma and Health-Related Quality of Life Among People Living with HIV in Northern Thailand.

Authors:  Ajaree Rayanakorn; Parichat Ong-Artborirak; Zanfina Ademi; Suwat Chariyalertsak
Journal:  AIDS Patient Care STDS       Date:  2022-05       Impact factor: 5.944

4.  Stigmas, symptom severity and perceived social support predict quality of life for PLHIV in urban Indian context.

Authors:  Helena Garrido-Hernansaiz; Elsa Heylen; Shalini Bharat; Jayashree Ramakrishna; Maria L Ekstrand
Journal:  Health Qual Life Outcomes       Date:  2016-11-03       Impact factor: 3.186

5.  How HIV patients construct liveable identities in a shame based culture: the case of Singapore.

Authors:  Lai Peng Ho; Esther C L Goh
Journal:  Int J Qual Stud Health Well-being       Date:  2017-12

6.  Role of psychosocial status in predicting health-related quality of life at 1-year follow-up among newly diagnosed people living with HIV.

Authors:  Yunxiang Huang; Dan Luo; Xi Chen; Dexing Zhang; Zhulin Huang; Shuiyuan Xiao
Journal:  PLoS One       Date:  2019-10-23       Impact factor: 3.240

7.  What's in the telling? Understanding social, psychological and clinical aspects of HIV disclosure.

Authors:  Xiaoming Li; Shan Qiao; John de Wit; Lorraine Sherr
Journal:  AIDS Care       Date:  2015

8.  HIV-Related Stress Experienced by Newly Diagnosed People Living with HIV in China: A 1-Year Longitudinal Study.

Authors:  Yunxiang Huang; Dan Luo; Xi Chen; Dexing Zhang; Zhulin Huang; Shuiyuan Xiao
Journal:  Int J Environ Res Public Health       Date:  2020-04-14       Impact factor: 3.390

  8 in total

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